Hope For Hypothalamic Hamartomas - December 2020
Together We Are STRONG
Another year has passed us by and it's the time where we reflect on 2020. This past year has been full of challenges for Hope For HH, our community, and the world. We have remained resolved to our mission and our supporters have not wavered. We want to express our sincere gratitude for the HH patient, caregiver, professional and volunteer community. We have proven once again this small, but mighty community is STRONG and full of HOPE for the future.

As you plan your year-end giving we hope you will consider a donation to HOPE. Your donations ensure our 2021 initiatives can be achieved. This includes developing additional educational and awareness materials, hosting a virtual 2021 Family Conference, continuing to provide patient surgical bags at three HH treatment facilities, funding a new genetic research grant, and expanding our international awareness of proper diagnosis and treatment options for those with hypothalamic hamartomas. 

Happy Holidays,
Hope for HH Board of Directors
2021 Hope For HH Family Conference
We are excited to announce Hope for HH will be hosting a virtual 2021 Virtual Patient Conference this fall. This conference will be focusing on both adult and pediatric patients.

Our goal is to present and discuss information that would be of greatest interest to our community. The diagnostic odyssey can be long and present itself very differently at different stages of life. In order to gauge interest and collect feedback, we have put together a survey of potential topics.

Please take this 3-minute survey to indicate which topics are of greatest interest to you.
Hope For Hypothalamic Hamartomas | www.hopeforhh.org | info@hopeforhh.org