Welcome to the monthly eNewsletter of the
International Foundation for Gastrointestinal Disorders (IFFGD)
Digestive Health Monthly - April 2019
Greetings!

For the millions of people around the world living with irritable bowel syndrome (IBS), the need to be understood by those closest to them often goes unfulfilled. Stigma surrounding bowel symptoms keeps many with IBS from talking openly about their condition with family and friends, employers, and even health care providers.

April is IBS Awareness Month. This event was first established by IFFGD in 1997 to raise awareness about this common, but often misunderstood, condition. Each year, we use this time to focus special attention on the challenges faced by patients and caregivers. This month we are opening up the conversation about what life with IBS really means to encourage greater understanding of the burden experienced by those affected.
"What I Wish People Understood About My IBS"
Share with #UnderstandMyIBS
Many people with IBS suffer their symptoms in silence, afraid that their illness experiences and needs will be trivialized or even dismissed by those around them. To raise awareness of the real-life impact of IBS, IFFGD is encouraging those affected to share the things they wish the people around them understood about IBS.

Share what you wish people understood about IBS on our Facebook page with #UnderstandMyIBS.
Be Here. Be Heard.
Raise awareness in Washington during IFFGD's Advocacy Event on the Hill
For the millions of Americans living with a chronic gastrointestinal (GI) illness, the fight for awareness, research into safe and effective treatments, and cures is ongoing.

Join IFFGD and advocates like you for IFFGD's National Advocacy Event on the Hill, June 24th & 25th, 2019, in Washington, DC, as we make the voice of the digestive health community heard.

Does Exercise Worsen GI Symptoms?
As the weather continues to improve, many people look for new opportunities to bump up their exercise regimen. But for those who regularly experience certain GI symptoms, such as chronic diarrhea and reflux, there may be some concern that intense exercise could trigger or worsen symptoms.

Understanding why this can happen during exercise can help you to come up with a plan to minimize your symptoms while still getting the benefits of regular exercise.

Eating for IBS
Join the conversation April 24th at
12:30 PM EST with #DDHChat
In recognition of IBS Awareness Month, we are chatting with GI dietitian Kate Scarlata, RDN, ( @KateScarlata_RD) and IBS advocate Amber ( @EandEByAmber) about dietary approaches to help manage symptoms of IBS on Wednesday, April 24th, at 12:30 PM EST.

Join the conversation on Twitter with the hashtag #DDHChat. We look forward to chatting with you!
Get the Beat on Bloating
Bloating and distension are associated with several GI conditions, including IBS, functional dyspepsia, and chronic constipation, and can cause discomfort, pain, and have a negative impact on quality of life.

But what causes bloating? And, what can be done about it?

A number of factors may contribute to bloating, and treatment often means working closely with your doctor to identify the causes and develop a strategy that works for you.

One Tweet at a Time
IFFGD talks social media in this article for BioScience Today
Social media have changed how health and health care are understood - providing patients and providers with new opportunities to connect outside of the clinic setting and learn from one another.

In this article, IFFGD talks about how social media can help bridge the healthcare divide and bring patients and providers together.

Team Building with a Purpose
The C&S Department at II-VI Inc. raises over $2,600 to support research
Instead of the usual team-building exercises, the C&S Department at II-VI Inc. hosted a Bowl-A-Thon this month to raise money for research in honor of a family member suffering with gastroparesis.

Together, they raised over $2,600. Talk about a strike!

Are you interested in raising money for research? Get ideas for hosting your own fundraising event or email us at iffgd@iffgd.org to learn more.
RESEARCH CORNER
Clinical trials and research studies are important to improving our understanding of the underlying mechanisms of diseases and developing new and better treatments. By participating in a study, you can help advance research and learn more about your condition.

Here are 3 studies currently recruiting participants:
Bowel Incontinence
Individuals with fecal incontinence (FI) are being recruited for a comparative study of three (3) treatments for FI: biofeedback, sacral nerve stimulation (SNS), and injections of bulking agents in the anal canal and rectum.

SBS
Individuals with short bowel syndrome (SBS) are being recruited to participate in a multi-center registry to evaluate the long-term safety profile for teduglutide in a routine clinical setting. SBS participants both treated and not treated with teduglutide will be enrolled.

GERD
Researchers at Vanderbilt University Medical Center (VUMC) are seeking Veterans with gastroesophageal reflux disease (GERD) for a study to investigate the use of VUMC's Diet, Body Composition, and Human Metabolism Core to compare the effects of diets on GERD.

IFFGD is a nonprofit organization. We rely on donor support to fund research and to provide reliable information and support to those affected by chronic gastrointestinal disorders.
IFFGD | 414-964-1799 | iffgd@iffgd.org | www.iffgd.org