UNDERSTANDING HH & COMORBIDITIES
In May, we shared a blog overviewing " What is a Comorbidity." Click the link if you missed it. We also shared a blog about common Endocrine Comorbidities. For June, read our blog on Psychiatric & Behavior Comorbidities brought to you by Hope for HH's super content team! 

Do you know what your HH comorbidities are? 
Are you getting the specialty care you need for all of the 
symptoms and side effects of your HH? 

Hope for HH COMORBIDITY SURVEY coming in JULY! 
We need EVERYONE  in the HH community to weigh in
on the impact of HH for our researchers and Symposium this fall.

MEET HH HEROES!

Our HH community spans the world - but we are united in our hope!
Meet Guilherme and his family from Brazil here
Your journey offers information, insight and hope to others. 
Want to share your story? Contact Erica Webster. 

HELP FUND HH RESEARCH!

The 
4th International Symposium on Hypothalamic Hamartomas for researchers and clinicians will take place this fall. Meet two more of the exceptional practitioners who will help set a path forward for HH research. 
The Symposium is organized by Hope for HH every 3 years to create an opportunity to strategize new research and clinical opportunities.
  
Want to directly support new and innovative HH research? 
Please consider a donation or sponsorship to the Symposium. 
For more information,  contact Ilene


THANKS TO OUR AWESOME FUNDRAISERS



Got a birthday, anniversary or other special occasion to celebrate? 
 Join Megan, Brittany, Trent and George by doing it in honor of Hope for HH! THANK YOU! 

  These dollars are critical toward supporting Hope's  information, support and research. 
Launch your own fundraiser here

TSHIRTS COMING SOON - WE PROMISE!
We know how excited everyone is to receive their Hope for HH 10th Anniversary t-shirts. A glitch with the manufacturer caused a small delay. We promise they will be delivered soon! Post a pic to Facebook as soon as you receive yours! 
Hope for Hypothalamic Hamartomas 

Provides information and support to HH patients, caregivers, and healthcare providers and  promotes research toward early detection, improved treatments, living with HH, and cure.

DO YOU GET IT ALL?