Thanks to those of you who joined the July 25th webinar on Focused Ultrasound and Potential New Technologies for Difficult to Control Seizures.  Shout outs to Drs. Fountain and  Tierney and our friends at the Epilepsy Foundation for partnering to disseminate such timely information. We will let you know as soon as the webinar is available online to view.

Do you live in or near Washington, DC? If so, please join us for the 1st Annual Great Strides 5K on September 24. This event is being underwritten by HH dad and surgeon Craig Miller and his orthopedic surgery practice. All monies raised will benefit Hope for HH.  

If you have not already, REGISTER NOW for the DC Family Forum, Dec. 2-3. We have top experts in HH, neurology, neuropsychology, neuropsychiatry, endocrinology, alternative therapies and more. For anyone living with HH or caring for an HH patient - this information and support event is for you!

Hope you and your families enjoy the last few weeks of summer , 
Hope for HH Board of Directors


Calling all runners and walkers in and around METRO DC. OrthoBethesda is launching their inaugural 5K with all proceeds going to Hope for HH. Hope you will join us and help spread the word about a great event for a great cause. The event is on Sunday, Sept. 24 at 8 AM. For more information or to register - click below!

Register TODAY for the DC Family Forum

Our speaker line up is superb for the 2017 Family Forum in Washington, DC December 2-3. We will be doing a deep dive on HH and cognition, behavior, memory, transitions, endocrine, family dynamics, and alternative therapies.
Hotels fill up fast in December in DC. We urge you complete your forum registration and book your rooms NOW. Click below! 

Hope for Hypothalamic Hamartomas 

Provides information and support to HH patients, caregivers, and healthcare providers and  promotes research toward early detection, improved treatments, living with HH, and cure.