MTM-CNM Family Connection
Raising Awareness for Rare Diseases
LOVE in flowers
February 2016
Lots of Love to All!

On this holiday that celebrates romantic love, we remember that there are also many other kinds of love that we can see in our community. There's the love of nurses, who give compassionate care to their patients, allowing rest for parents. There's the love of teachers and administrators, working to accommodate and include us. There's the love of therapists, rejoicing with us over every milestone. There's the love of researchers and doctors, in the diligent pursuit of treatments. There's the love of siblings with an unbreakable bond, who have a sixth sense about each other and who are always ready to cheer and protect each other. There's the love of parents, who spend every day advocating and giving their all for the sake of family. There's the love of friends, who listen and understand precisely what you're going through and, if at all able, will come directly by your side to stand alongside you through the most difficult moments. There's the love of our MTM and CNM warriors that impacts and inspires moms, dads, grandparents, brothers, sisters, and all those mentioned who are contributing to the community so that this life can be a beautiful and thriving one. 

Happy Valentine's Day, MTM-CNM Family. We hope that you are able to step back, catch your breath, and have an unforgettable day with the people you care about most, reminiscing about those who are far but forever in our hearts, and experiencing the many forms that love can take. 

Rare Disease Day is February 29!
Created by EURORDIS in 2008,  Rare Disease Day seeks to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients' lives.

Help us celebrate this special day and in particular raise awareness of our family of rare diseases, Myotubular and Centronuclear Myopathy!  Our community grows largely through word of mouth, so the more this is shared, the more people we can help!

Visit our website ( or copy one of the photos below to use as a profile picture or share via social media (Facebook, Twitter, Instagram, etc) and help spread the word! You can go with the generic option or personalize it as in the example photo. If you would like help creating a personalized version, just email a photo to us at [email protected] and we will be happy to make the profile pic for you.
Contact Us

You are part of our Beloved Community!

A Silly Poem for Our #mtmcnmfamily
Roses are red
Violet are the ribbons
that show our devotion to
family connections!

Show Your Love
Get your exclusive "I Love Someone With MTM/CNM" gear at our online store. Shirts, notecards, mugs, and more! All proceeds support MTM-CNM Family Connection, Inc.