Having trouble viewing this email? View it as a webpage here.
Does pain affect your life?
Pain is a fact of life for people with bleeding disorders, and NHF’s MASAC released new guidance on the treatment of pain. Discover more about OUCH: Managing Pain Together and other sessions you may have missed, as well as an overview of some of today’s sessions. Check it out!
Hot Topics: Thursday, August 6
Industry Symposium
Payers and HTCs: How the Comprehensive Care Sustainability Collaborative (CCSC) is Forging New Ground to Meet the Evolving Needs of Patients
12:00 PM - 1:00 PM
Track: Providers, Industry Symposium
Learn how you can prepare your HTC to thrive in this ever-changing health care landscape and improve connections with payers. Key focus will be on how HTCs can be positioned for success in a rapidly evolving healthcare reimbursement environment.
Chapter Luncheon - Genentech's Commitment to Hemophilia A: Creating What's Next Together
1:00 PM - 2:00 PM
Track: Chapters
Get yourself ready, from the waist up at least, for some conversation and a little TV magic. Sonali Chopra from advocacy relations and Adam Pryor from corporate relations at Genentech will share upcoming Genentech projects that support the hemophilia community. This includes a new professional development resource and an episode of CHALLENGE ACCEPTED, an original TV series inspired by and made for the hemophilia community that challenges the meaning of life with a bleeding disorder. We want to hear how Genentech can continue to support the hemophilia A community. You won't want to miss this magic! (You'll see what we mean.)
Sponsored by Genentech
LGBTQI Networking Hour
4:30 PM - 5:30 PM
Track: For All
Join us for this informal networking and social hour bringing together lesbian, gay, bisexual, transgender and queer (LGBTQI) members and allies of the bleeding disorders community. Join us for this informal networking and social hour.
Sponsored by Takeda
Industry Symposium
Beyond Trough Levels: Taking a Closer Look at Hemophilia B
5:30 PM - 7:00 PM
Track: For All
You know that hemophilia B is different from hemophilia A in many ways, but when it comes to factor IX there’s more to explore. Unlike factor VIII, which stays in the bloodstream, factor IX also travels outside the bloodstream and into other areas of the body. This means that trough levels, which only measure factor in the bloodstream, may not tell the full story. Join Dr. Malec and community relations and education manager Rachel Kroouze to learn more about factor IX and other PK measurements you should consider as part of your treatment.
Sponsored by Sanofi
30th Anniversary of the Ryan White CARE Act
7:00 PM - 8:00 PM
Track: For All
Jeanne White-Ginder, mother of Ryan White, will share the story of how her son worked to destigmatize HIV/AIDS in the 1980s, and how she and other advocacy groups worked on landmark bipartisan legislation to get treatment and care to people with HIV/AIDS. This important part of our history is a lesson for why advocacy around access to care is so important to our community today.
Please note that provider sessions will not be available for on-demand viewing. Stay tuned for the enduring program which will be uploaded to NHF’s website in the coming weeks.
Missed a Session? No Problem!
If you missed one of our sessions for consumers or chapters, don’t worry – the sessions are viewable on the BDC website until August 31st. (Provider sessions will not be available on-demand until a later date.) E-posters will also be available on the BDC website until August 31st.
If you have family, colleagues or friends that can benefit from attending this Conference, click here to share this event.
Don’t forget to download the BDC 2020 Conference app! Simply search for “NHF BDC” in the iOS app store or Google Play store. Participate in the BDC Scavenger Hunt app game. Look for the Exhibitors’ QR codes in their respective exhibit pages/booth images, scan the code and qualify to win!
Sponsored by Biomarin
Join Us!
Please note, you will need to enter your e-mail address and reference number. Please refer to the logistics e-mail you received on July 30 from NHFbdc@hemophilia.org.
Not registered yet? Don't forget to invite your family, colleagues, & friends!
FOLLOW US