Join a 3 Part Interactive Webinar on 
 THE TOLL OF CAREGIVING
and practical advice you can put to use!
Hope for HH is excited to join with several other rare epilepsy organizations including The Brain Recovery Project: Childhood Epilepsy Surgery Foundation;  Tess Research Foundation; Ring 14USA; Phelan-McDermid Syndrome Foundation (PMSF); and Lennox-Gastuat Syndrome (LGS) Foundation - to present a three part series on  the toll of caregiving in parents of children with medical issues.  

To join, the webinar, download zoom on your computer prior to the webinar. Then just click the links below at the designated date and time. All times are Pacific Standard Time. 

April 29 4 PM PST: Webinar 1, Toll of Caregiver Trauma - Training   [Webinar ID 177245337]
May 6    5 PM PST: Webinar 2, Toll of Caregiver Trauma - Training  [Webinar ID 491647591]
May 13  5 PM PST; Webinar 3, Toll of Caregiver Trauma - Training  [Webinar ID 294489476]


You can also join by telephone:
Dial(for higher quality, dial a number based on your current location): 
        US: +1 669 900 6833  or +1 929 436 2866 

International numbers available:  https://zoom.us/u/aeuKgYueWP

The first 100 people to join on the day of the meeting will be able to chat/interact with the facilitator, Eileen Devine . All 3 webinars will be recorded and available online after each event as well. 
IMPROVE CARE FOR CHILDREN WITH 
HARMFUL OR DISRUPTIVE BEHAVIORS

Hope for HH is proud to partner with the Child Neurology Foundation to conduct a survey to understand caregivers' experiences managing behavior in children with neurologic conditions. Results will be shared with health care providers, so they are better able to serve children with disruptive and harmful behaviors.  Please complete the brief  brief survey  before April 24th.

MEET HH HEROES!

Want to share YOUR HH journey - contact Erica.
GRAB YOUR SNEAKERS & WALK FOR HH!

April 27 is the National Walk for Epilepsy in Washington DC. But no matter where you live - grab an HH t-shirt, a purple t-shirt, or any t-shirt and take a walk, run, hike, stroll, or skip for HH. Snap a picture and post it to our facebook page.  In DC? Join our team here

How many cities, countries, and continents
can our community represent on April 27? 
Hope for Hypothalamic Hamartomas 

Provides information and support to HH patients, caregivers, and healthcare providers and  promotes research toward early detection, improved treatments, living with HH, and cure.

DO YOU GET IT ALL?