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Our virtual Bleeding Disorders Conference is a way for the global bleeding disorders community to embrace our history and work together to create a better future for all of us.

Give it a Shot: A Different Type of Hemophilia A Therapy, Sponsored by Genentech

August 1, 2020 | 5:45 PM - 7:15 PM EDT

Please join us for an engaging symposium led by, and made for, members of the hemophilia A community! Learn from our panelists as they share their personal experiences with treating and living with hemophilia A. This presentation will also include information about a subcutaneous treatment option for hemophilia A, including important clinical trial data, its half-life and dosing options. Our panelists will provide useful resources for the hemophilia A community and answer your questions in a live Q&A. We hope to see you there!

Hello Factor! - Sponsored by Takeda

August 2, 2020 | 5:00 PM - 6:30 PM EDT

Join Takeda for an educational discussion and hear from a real-life patient as they discuss their Hemophilia A experience with physical therapist Grace Hernandez. You’ll also experience an educational presentation to learn more about how you can become a greater advocate for your hemophilia A.

Staying Active with Hemophilia A - Sponsored by Takeda

August 3, 2020 | 5:30 PM - 7:00 PM EDT

Hear the real-life stories of two hemophilia A patients and how each manage and maintain their active lifestyles. You’ll also learn from Dr. Singleton as she discusses the importance of staying physically active and how you can personalize your treatment regimen to help meet your lifestyle and treatment needs.

How often do you use your joints? - Sponsored by Sanofi

August 4, 2020 | 5:30 PM - 7:00 PM EDT

Whether you’re going about your day, or doing the things you love, you may not realize how much you rely on your joints. Taking care of your bleeds and joint bleeds play an essential role in managing hemophilia A. Join Community Relations and Education Manager Shelley Gerson and physical therapist Kim Baumann as they share their insights into what it takes to care for your joints.

The path forward: Importance of healthy lifestyles - Sponsored by Novo Nordisk

August 5, 2020 | 5:30 PM - 7:00 PM EDT

During this symposium, we will discuss the importance of healthy living in people with hemophilia, including weight management. We will explain how small changes, such as managing portion sizes and engaging in the right physical activities, can improve the overall health of people with hemophilia. Information on a new treatment option for hemophilia A will also be presented.

Hemophilia Gene Therapy - Learning from Clinical Trials and Preparing for Clinical Practice - Sponsored by ISTH and The France Foundation (Providers)

August 5, 2020 | 7:00 PM - 8:30 PM EDT

With the expected approval of the first gene therapy for hemophilia in the next few months, it is important that clinicians are prepared for implementation in their respective hemophilia treatment centers (HTCs). During this 90-minute session, Drs. Steven Pipe and Guy Young will provide an overview of gene therapy for treatment of hemophilia along with an update on clinical trials in Hemophilia A and B. They will also discuss what success looks like and how HTCs should be preparing for the advent of gene therapy. The presentation will conclude with a live question and answer session between attendees and Drs. Pipe and Young.

Beyond Trough Levels: Taking a Closer Look at Hemophilia B - Sponsored by Sanofi

August 6, 2020 | 5:30 PM - 7:00 PM EDT

You know that hemophilia B is different from hemophilia A in many ways, but when it comes to factor IX there’s more to explore. Unlike factor VIII, which stays in the bloodstream, factor IX also travels outside the bloodstream and into other areas of the body. This means that trough levels, which only measure factor in the bloodstream, may not tell the full story. Join Dr. Malec and Community Relations and Education Manager Rachel Kroouze to learn more about factor IX and other PK measurements you should consider as part of your treatment.

Payers and HTCs: How the Comprehensive Care Sustainability Collaborative (CCSC) is Forging New Ground to Meet the Evolving Needs of Patients (Healthcare Providers)

August 6, 2020 | 12:00 PM - 1:30 PM EDT

Don’t miss this leading-edge session from NHF, Payers and HTCs: How the Comprehensive Care Sustainability Collaborative (CCSC) is Forging New Ground to Meet the Evolving Needs of Patients. Learn how you can prepare your HTC to thrive in this ever-changing health care landscape and improve connections with payers. Key focus will be on how HTCs can be positioned for success in a rapidly evolving health care reimbursement environment.

Gene Therapy Research: Understanding the Science- Sponsored by Biomarin

August 8, 2020 | 11:30 AM - 12:45 PM EDT

Have questions about gene therapy research? Learn about the goals of gene therapy research, possible risks and eligibility criteria from a leading expert, Guy Young, MD; Director, Hemostasis and Thrombosis Program; Children’s Hospital Los Angeles. This interactive live program will answer questions about gene therapy research, including:

No gene therapies have been approved for hemophilia A or B or been determined to be safe or effective.

Teen Impact Awards - Sponsored by Believe

August 2, 2020 | 6:30 PM - 8:00 PM EDT