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Your monthly news & updates
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ECTS Announcements and events
- Do not miss the ECTS exciting activities and events. Renew your 2019 ECTS membership here
- ECTS 2019 "New Data" abstract submission open 22 February-8 March 2019
- ECTS Webinar: Bone metabolism in liver diseases by Núria Guañabens, February 21st 2019 4 pm CET - Register here
- 9th international conference on children's bone health (ICCBH) - Registration
- Bisphosphonates' 50th anniversary meeting - More information
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ECTS-Mellanby-SVGO Training Course on Diagnostic Tests for Osteoporosis "Bone Turnover Markers", 12 September 2019, Basel, Switzerland -
More information
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ECTS PhD Training Course 2019, 8-10 September 2019, Bologna, Italy -
More information
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ECTS 2019 - Budapest 10-14 May 2019 - Pre-congress day: don't miss it!
By Anna Teti
The ECTS congress expands and provides the ECTS committed members with an exciting pre-congress day on Friday 10 May 2019. This day is dedicated to a number of activities that will delight the delegates in a lively and friendly atmosphere where they can attend many events and learn the most recent discoveries in the calcified tissue field. We will start with a reach
National Day for delegates from Hungary and neighbouring Countries, to liaise with and learn from national and international peers. The programme will then move through the ECTS/ICCBH workshop on Rare Bone Diseases, which will have the aim to provide the knowledge to facilitate the transition of the medical needs of patients from childhood to adulthood.
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Rare Disease Day on 28th February 2019: insights into "Fibrodysplasia Ossificans Progressiva"
intro by Cristiana Cipriani
The last day of February, as in the past years, the Rare Disease Day will take place with many events worldwide. On this occasion, we have asked two contributions, from an expertise centrum in Amsterdam, the Netherlands and one from a Fibrodysplasia Ossificans Progressiva (FOP) patients organization ("FOP friends") in the United Kingdom.
The clinician's perspective on this extremely rare bone disease, is provided by Drs Esmée Botman & Marelise Eekhoff who report the most recent advances and future perspective on the diagnosis, management and follow-up of these patients.
As we know, raising public awareness on the disease and their impact on patients' life is essential for rare diseases. Therefore, we have asked a contribution from FOP Friends, UK-based patient organization, taking care of many aspects of FOP from a patient point of view. Christopher and Helen Bedford-Gay, parents of an FOP patient, will tell their story on how this changed their lives and how that led to the creation of FOP friends, dedicated events, activities and research support from the organization.
You can get a refresher of rare bone diseases presentations during ECTS 2018 thanks to the
Congress Report and there will be much more coming during
ECTS 2019 in Budapest.
Improving knowledge and awareness about FOP: better knowledge, better life!
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Fibrodysplasia Ossificans Progressiva: The Clinician's Perspective
by Esmée Botman & Marelise Eekhoff
Fibrodysplasia Ossificans Progressive (FOP) is an extremely rare disease with a prevalence of 1:2,000,000. This autosomal dominant disease is characterized by heterotopic ossification (HO) in connective tissues. HO formation is often preceded by a flare-up: an inflammatory process of a yet unknown origin. Flare-ups may be triggered by traumata (surgery, intramuscular vaccinations, falls) or by (viral) infections (influenza). Over 50% of the flare-ups, however, occur spontaneously. As flare-ups come and go, FOP is a progressive disease resulting in immobility at early age.
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Fibrodysplasia Ossificans Progressiva: From a family to Friends; our story.
by Helen and Chris Bedford-Gay
Our child Oliver was the most beautiful baby when he was born, except he had funny toes. But we didn't worry, why would we? Then when he was three months old, a strange lump appeared on the back of his head. Our consultants told us it wasn't cancerous but because it was unusual, they would remove it. Again, we didn't really worry. Then, just after Oliver's first birthday we went to see Oliver's consultant and he told us they had a diagnosis for us. He wrote three words on a piece of paper for us: fibrodysplasia ossificans progressiva. He tore it off and gave it to us. We were told that so long as he didn't play rugby at school, he'd pretty much be ok.
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The effect of publishing peer review reports on referee behavior in five scholarly journals
by Giangiacomo Bravo, Francisco Grimaldo, Emilia López-Iñesta, Bahar Mehmani & Flaminio Squazzoni
To increase transparency in science, some scholarly journals are publishing peer review reports. But it is unclear how this practice affects the peer review process. Here, we examine the effect of publishing peer review reports on referee behavior in five scholarly journals involved in a pilot study at Elsevier. By considering 9,220 submissions and 18,525 reviews from 2010 to 2017, we measured changes both before and during the pilot and found that publishing reports did not significantly compromise referees' willingness to review, recommendations, or turn-around times. Younger and non-academic scholars were more willing to accept to review and provided more positive and objective recommendations. Male referees tended to write more constructive reports during the pilot. Only 8.1% of referees agreed to reveal their identity in the published report. These findings suggest that open peer review does not compromise the process, at least when referees are able to protect their anonymity.
© 2019 Springer Nature Publishing AG
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ECTS Announcements and events
- Do not miss the ECTS exciting activities and events. Renew your 2019 ECTS membership here
- ECTS 2019 "New Data" abstract submission open 22 February-8 March 2019
- ECTS Webinar: Bone metabolism in liver diseases by Núria Guañabens, February 21st 2019 4 pm CET - Register here
- 9th international conference on children's bone health (ICCBH) - Registration
- Bisphosphonates' 50th anniversary meeting - More information
-
ECTS-Mellanby-SVGO Training Course on Diagnostic Tests for Osteoporosis "Bone Turnover Markers", 12 September 2019, Basel, Switzerland -
More information
-
ECTS PhD Training Course 2019, 8-10 September 2019, Bologna, Italy -
More information
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ECTS is thankful to its Corporate Members and other companies that have supported ECTS activities through unrestricted educational grants. These sponsors have in no way contributed to or influenced the content.
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Editor in chief: Teun De Vries (Amsterdam, The Netherlands)
Co-editors: Carmen Huesa (Edinburgh, UK), Cristiana Cipriani (Rome, Italy)
Marco Ponzetti (L'Aquila, Italy)
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