New Data Reveals a Vaccine (In)Equity for People Experiencing Homelessness; Updates on Alliance Research to Support our Sector; and lots more opportunities to learn and share
Issue16 | May 20, 2022
Monthly Bulletin of the Alliance's Learning Health System
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Homelessness and Vaccine (In)Equity
EPIC Research Updates
Learning Events & Programs
Get Involved: Research & Sharing
Recently Published Research
New Tools &
Resources
Homelessness and Vaccine (In)equity
Data reveals reveals a deadly gap.
This is a story about health equity, and about how the people who experience barriers to care are often left behind in large-scale public health initiatives, such as mass vaccinations. It is a story about homelessness and how it impacts access to care. It is also a story about the power of linked administrative and practice-based data to help us understand and overcome barriers to care.
For several years, researchers at the Lawson Health Research Institute have been working with partners at the Public Health Agency of Canada, ICES, and the Alliance for Healthier Communities to find better ways to measure and understand the health impacts of homelessness i n Ontario. In March 2022, they published an article in The Lancet Public Health showing that the rate of COVID-19 vaccination is disappointingly low among people with recent experiences of homelessness. We sat down with two of the authors, Salimah Shariff and Richard Booth, to talk about the research project that led to this study, what they learned from it, and the implications of their findings.

This research program began in 2018 with a study that aimed to quantify homelessness in Ontario using health system administrative data. It achieved about 35% sensitivity – meaning about 35% of people experiencing homelessness could be identified. The research team speculates that sensitivity may have improved to about 50% after CIHI introduced a policy requiring housing status to be recorded at hospital admission and discharge, and practice data from community health centres was linked. Then the COVID-19 pandemic arrived, and the researchers turned their focus to how COVID-19 was impacting people experiencing homelessness. 

Perhaps unsurprisingly, they found that this population had disproportionate amounts of infection, hospitalization, ICU admission, and severe illness. These findings received nationwide media attention and contributed to policy change that would make people experiencing homelessness a priority population for vaccination. The next step was to determine whether this policy change was having the desired effect. The research team compared vaccination rates among 23,000 people with recent experiences of homelessness with the rate in the overall population. They found that despite being named a priority population, those experiencing homelessness had a 25% lower rate of vaccination for a first dose and 34% lower rate for a second dose by the end of September, 2021. As Booth notes, “We weren’t necessarily surprised that the rates were lower. The surprise was the magnitude of difference.”

Not all the news was bad, however. People experiencing homelessness had higher COVID-19 vaccination rates if they had accessed care from a community health centre. Until qualitative research is complete, the research team can’t confidently pinpoint why, but they offered some hypotheses based on observation and inference. They note that many people who are structurally vulnerable feel skeptical of authority and are uncomfortable accessing care or information from public health units or government websites. Others may be eager to get vaccinated but don’t have access to the internet to find out where vaccines are available or how to access them. Primary healthcare organizations overcome skepticism through relationship-building and trust. They provide multiple, low-barrier ways to access care, including direct outreach, harm reduction, and social programs. Many also help overcome digital barriers by providing internet-enabled devices and data to people in need of them.

Preventing this kind of inequity in future pandemics will require a whole-of-society response that addresses the root causes of homelessness. Until this is fixed, we need an equitable system of care and supports to address the barriers that homelessness imposes. Earlier and more robust integration of vaccination efforts into primary care settings could be an important part of that.
Watch a video from Western University
of Dr. Shariff and Dr. Booth discussing this study.
What's happening in EPIC research?
These studies will lead to better health care, outcomes, and equity.
Evaluating the EQ-5D tool for measuring client-reported health outcomes.

Health is not just a physical state that can be observed using instruments and tests. It is also something you feel and experience. But how do you measure feelings and experiences? Understanding the experiential aspects of clients’ health is essential if we want to get a fulsome picture of how they are doing and whether our interventions are effective. It is also essential if we want to empower them to be partners in co-creating their health care.

To facilitate this in our sector, the Alliance has adopted a Patient Reported Outcome Measures (PROMs) tool known as EQ-5D. EQ-5D is a short questionnaire written in plain language. It asks clients to rate their health in five domains: Mobility, capacity for self-care, capacity for usual activities, pain & discomfort, and anxiety & depression, by answering five multiple-choice questions, and then to give a score for their overall health. It is already in use around the world and is available in 200 languages.

Over the next 6-12 months, we will be piloting EQ-5D at six to ten of our member organizations, with a goal of learning how best to implement it in primary health care settings. We will use what we learn from this study to develop an implementation guide to support the scale and spread of the tool in our sector. The EQ-5D Implementation Pilot will seek to answer the following questions:

  • What are the barriers and enablers to effectively using the EQ-5D tool?

  • How can this tool be incorporated into an organization’s workflow?

  • Do clients – especially those who live with barriers to wellbeing – find the tool useable and empowering?

Recruitment for the PROMs hast begun! Participating organizations will receive training over the summer, and they will use the tool with 20 to 25 clients. A mid-term report is expected in January 2023, and the final report and recommendations are expected in May 2023. For more information, check out the recruitment flyer. If you have questions or wish to participate, email EPIC@AllianceON.org.


A better way to measure health complexity at the population level.

For a long time, the Standardized Adjusted Clinical Group Morbidity Index (SAMI) has been used as a measure of health complexity for individuals and populations in Ontario. Diagnoses by physicians and nurse practitioners as well as other health system administrative data are used to generate a number which predicts the likelihood of health system use by individuals within a population group, according to the number and severity of conditions they have. The SAMI is used to determine panel size and to support health care planning. It is also used to advocate for our model of comprehensive primary health care, as the SAMI data regularly show that clients of Alliance member organizations have health care needs that are about 70% more complex than other primary care clients in Ontario.

Despite its usefulness, the SAMI does have its limitations. It is a proprietary system, making it expensive for individual organizations to use as a QI or care planning tool. Its proprietary nature also means we can’t look “under the hood” to see how different diagnoses are weighted in determining complexity. It measures only clinical complexity, ignoring the social and structural determinants of health, which are important predictors of health system usage.

To address the SAMI’s limitations, the Alliance has been collaborating with the Canadian Institute for Healthcare Information (CIHI) to develop a new measure of health complexity. Known as the Population Grouping Methodology, or “Pop Grouper,” this new tool will include more sociodemographic data, so the non-clinical determinants of health can be considered. It will also include more robust practice data from Alliance members, thanks to the data-sharing agreement our sector has with CIHI. Such data has until now been minimally included in SAMI calculations.

Proof-of-concept testing has already demonstrated that the complexity of CHC clients, relative to the overall population, is much higher than the SAMI reveals. This is something our sector has known intuitively for a long time; being able to quantify this difference with standardized data will help us demonstrate how essential our sector really is to the creating an equitable and sustainable health system.

For more information about the ongoing development of the Pop Grouper and the importance of having quality data to inform it, contact EPIC@AllianceON.org. 

OHRS Benchmarking Report

The Ontario Healthcare Reporting Standards (OHRS) are data standards used by health care organizations in this province for mandatory financial and statistical reporting. Each summer, organizations receive a report containing all their OHRS data for the previous fiscal year. This data is meant to inform internal and external audits, evaluation of programs and services, allocation of funds, and service-delivery planning. Unfortunately, the way it is presented makes it difficult for organizations to use it effectively. The current format of the report is a collection of 70+ Excel spreadsheets, organized at the legacy LHIN level.

Recognizing that this format presents a barrier to understanding and using OHRS data, Four Villages CHC and Access Alliance Multicultural Health and Community Services embarked on a project in 2021 with Tracy Lindsay Consulting to redesign it. The Alliance is building on this work to create a sector-wide report that includes data from all member CHCs. This will make it easier for organizations to get value from their data without having to seek help.

The new report will be released three times each year and include the following features:

  • A streamlined spreadsheet of key indicators, organized by functional centre.

  • A searchable appendix of all data for those who require additional detail.

  • A technical appendix with key definitions and descriptions of indicators and functional centres.

  • An interactive, visual dashboard that will allow organizations to compare their performance with their peers.

Watch for the new and improved OHRS report this fall. A draft template has been approved by the EPIC Committee, and we expect 2021 OHRS to arrive this summer. Once received, the data will be put into the template, and the resulting report will be shared directly with Executive Leaders and through the Alliance portal. We will work with members to continuously evaluate and monitor the report in order to ensure it meets their needs.
Learning Events & Programs
May

May 24, 12:00-1:00 pm – Lunch 'n' Learn Webinar: Pathways to Climate Resilience in Primary Health Care. At noon on May 24, 2022, join CASCADES, the Indigenous Primary Health Care Council, and the Alliance for a virtual fireside chat about the role, responsibility, and capacity of primary health care to identify and address climate change vulnerability and lead adaptation activities. Register here.

June

June 1-2 – e-Health 2022. This year, e-Health is fully virtual. Early bird registration ends March 30. Program details here. Register here. Individual tickets $104-320; bundles available for groups.

June 8-9 – Action Now! Equitable Futures Together. The annual Alliance conference will be held in person this year at the Delta Hotel and Conference Centre, Toronto Airport. Register online by May 27. Special rates are available for Alliance members and students. Book your hotel here for a special conference rate! Note: If you plan to arrive before June 7 or depart after June 10, please email the hotel reservation desk at reservations@deltatorontoairport.com with your arrival and departure dates and quote the code AHC. Discounted rates are subject to room-type availability.

June 17, 12:30-1:30 pm – Lunch 'n' Learn: Gender-Affirming Cancer Screening Guidelines for Transgender and Non-Binary Clients. Panelists from Ontario Health and two Alliance member organizations will present an overview of new guidelines for breast and cervical screening, share their perspectives on advancing health equity for gender diverse populations, and describe how the Alliance is contributing to improving data standards so eligible clients can be identified regardless of their gender or sex assigned at birth. Co-presented with Ontario Health, IPHCC, AFHTO, and the NPLCA.

June 24, 12:00-1:00 pm – Lunch 'n' Learn: Introduction to the new Data Quality Assessment Dashboard from CIHI and the Alliance The Alliance and our partners at the Canadian Institute for Health Information (CIHI) have developed an interactive Data Quality Assessment Tool for CHCs who have agreed to share their EMR data with CIHI. With this tool, you will be able to review the completeness and accuracy of you organization’s clinical and sociodemographic data for primary health care clients. Guests from CIHI will provide an overview of the project and a high-level demonstration of the tool, followed by time for audience questions and discussion.

Ongoing

Governing for Health Equity Training. This five-part, self-paced online course was created by the Alliance to help boards go beyond diversity and inclusion, and build organizations that are better equipped to advance health equity at every level in the organization, the community, and the health system. Discounts for Alliance members and health equity builders. Register here.

BETTER Prevention Practitioner Training Institute: Prevention Practitioners are interprofessional primary care team members who support clients in taking actions to reduce their risk of cancer and chronic disease. Training for BETTER Prevention Practitioners is available to Alliance members on a cost-recovery basis. See the prospectus and website for more details, or email Carolina Fernandes to
learn more and sign up your team.
Research & Sharing Opportunities
Calls for Abstracts

Open until May 26: Call for abstracts for the Association of Family Health Teams (AFHTO) October 2022 conference, Reconnect and Reimagine: Moving Forward Together. Review submission guidelines here and submit your abstract here. Conference presenters receive a discount off their conference registration fee.

Policy Consultations

May 24, 1:00-4:00 pm - Online consultation sessions on criminal record reform, open to people with lived/living experience of incarceration, criminalization, or record suspension. Public Safety Canada is inviting people to participate in a virtual engagement session on May 24, 2022. Register here by May 22 to participate. Participants are encouraged to familiarize themselves with this discussion paper and fact sheet. Unable to join live? Find other ways to share your input here or by email. Learn more from the Fresh Start Coalition about why criminal record reform is needed.

Clinical Trials & Studies

Social workers in primary health care: What has your daily practice looked like during the COVID-19 pandemic? Dr. Rachelle Ashcroft, a researcher at the University of Toronto, is leading a mixed-methods study called The Structure of Social Work Practice in Ontario Primary Care Teams. Participants will be asked to complete a survey asking about the role of social work, the current and optimal state of practice, and social work leadership. At the end, participants can express their interest in taking part of a focus group. For more information, contact Rachelle Ashcroft at rachelle.ashcroft@utoronto.ca.

Does your organization provide health care or other supports to refugees and asylum seekers? Researchers at the University of Calgary are looking for people working in clinical, public health, or settlement organizations to answer some questions via an online survey. They want to understand who provides care to refugees and asylum seekers in Canada, how this care is coordinated and delivered, how it differs among jurisdictions, and how COVID-19 has impacted it. Participate by completing this short survey. In lieu of an honorarium, the research team will donate $10 to support refugee student scholarships.

Are you a service provider working with youth aged 16-24? A research team from the University of Toronto would like to hear your perspective on cannabis use in youth and young adults. Participate by responding to this survey, or get more information here. Questions? Email Dr. Toula Kourgiantakis (toula.kourgiantakis@utoronto.ca) or Dr. Sandra McNeil-Marshall (sandy.mcneil.marshall@mail.utoronto.ca).

Are you a harm reduction service provider and/or an Indigenous person who uses harm reduction services? Communities, Alliances, & Networks (CAAN) and the Dr. Peter Centre are working in partnership to learn how the COVID-19 pandemic has affected harm reduction programs and what new needs have emerged, as well as to identify culturally responsive wise practices. The research will be conducted via online regional sharing circles with harm reduction workers and Indigenous clients. An honorarium will be provided and people can decide in advance on their level of participation. Participants from Ontario are invited to join the sharing circle on June 8 at 1:00 pm. To register or get further information, contact Caterina Kendrick at caterinak@caan.ca or Savannah Swann at sswann@drpeter.org. 

Urban health care organizations: How have you incorporated health equity into virtual care for structurally marginalized communities? A team of researchers from Women's College Hospital is conducting case studies of health equity and virtual primary care across Canada. If you'd like more information or are interested in participating, contact the research coordinator at simone.shahid@wchospital.ca

Share your experiences working with uninsured migrants. Researchers want to hear from health care providers who have experience providing services to uninsured migrants. What they learn will inform policy recommendations and will be shared through community events. Confidential interviews will be conducted over Zoom. Email Melissa Anderson at andersm@yorku.ca to participate or learn more.

Collaborative Learning

SPIDER Learning Collaborative: De-prescribing dangerous medications. Can data-driven QI activities help de-prescribe potentially harmful medications, for medically complex senior clients? Help answer this question and improve health outcomes for your clients by participating in a 12-month learning collaborative. EMR queries will be provided to help participating Alliance members identify clients who would benefit. Contact Jennifer Rayner for more information.
Recently Published Research
Articles

The Alliance for Healthier Communities as a Learning Health System for primary care: A qualitative analysis in Ontario, Canada. This article in the Journal of Evaluation in Clinical Practice describes what we learned from a series of interviews with Alliance stakeholders in 2019 and 2020, when our learning health system was emerging. 29 staff from six CHCs and one from the Alliance described what motivated them to be part of a learning health system, and what they saw as barriers and enablers. Other primary care organizations may benefit from these insights in their own development as learning health systems.

A Practice-based Methodology on Conducting a Collaborative Scoping Review with PRISMA-ScR Model for the Separated Refugee Youth Project. This article, published in the Journal of Scientific Research and Reports, describes how one research team incorporated a scoping literature review into a community-based research project about the impacts of family separation on refugee youth. By incorporating several other tools into an existing review methodology, the team were able to ensure that the whole review process was collaboratively designed and executed, with high-quality results.

Service utilization patterns and characteristics among clients of integrated supervised consumption sites in Toronto, Canada. This article in Harm Reduction Journal describes and compares access to and uptake of co-located and external services among clients of supervised consumption services (SCS) embedded in harm reduction sites and community health centres. The populations were found to be demographically similar with different patterns of drug and SCS use.

Reports

Assessment of the Implementation of Safer Supply Pilot Projects. This independent report by Dale McMurchy consulting is a preliminary assessment of safer supply pilot projects in British Columbia, Ontario, and New Brunswick. The programs and the assessment were funded by Health Canada, through the Substance Use and Addictions Program (SUAP). Overall, the report finds that the programs have been extremely valuable to clients, and that there needs to be funding to expand access to them. It also describes five key learnings for developing and implementing such programs effectively.

Addressing Cervical Cancer Screening Inequity among Newcomer Women via HPV Self-Sampling. This research project was developed to generate evidence about community-based, culturally safe ways to promote HPV screening by self-sampling amongst under- and never-screened women within immigrant communities. The report is available in English and French, and it is accompanied by a "Myths vs. Facts" tool, available in nine languages.

Virtual Care in Canada: Strengthening Data and Information. This report from the Canadian Institute for Health Information (CIHI) explores the current landscape of Canadian virtual care data and information. It includes a snapshot of available virtual care data from CIHI, the provinces and territories, and pan-Canadian health care organizations. It also recommends new areas of pan-Canadian focus for measuring the quality and accessibility of virtual care. To learn even more, visit CIHIs Virtual care in Canada web page or email your questions to virtualcare@cihi.ca. 

Environmental Scan of Interpretation Services in Kitchener, Waterloo, Wellesley, Wilmot, Woolwich. This environmental scan was developed to help advance access to interpretation services in the area around Kitchener-Waterloo, but the resources included reach well beyond that area. We're sharing it here because we think it may be useful to your organization and community partners.

Addressing Cervical Cancer Screening Inequity among Newcomer Women via HPV Self-Sampling. Access Alliance conducted this research to build evidence on community-based and culturally sensitive ways to promote HPV self-sampling for cervical cancer screening among women who were never-screened or under-screened. They found that culturally appropriate self-sampling kits, adequate education and training, and availability of safe and accessible healthcare were key enablers for increasing the rate of cervical cancer screening in this population. See links at bottom of the article to access the report in English and French as well as client-facing fact sheets in nine languages.
New Tools and Resources
Funding Available

Is your organization is new to research? Up to $10K is available from the Canadian Institutes of Health Research to help plan, implement, evaluate, scale, or spread programs that support LGBTQIA/2S health and wellbeing. To be eligible, your organization must have no prior research experience or be the current recipient of a grant from the same program. Projects must have an intersectional lens. More information here.

Guidance & Tools to Support Quality Improvement

Toolkit for Advancing Collection and Use of Sociodemographic Data in Primary Healthcare. To support our members in their collective commitment to reach 74% completeness of sociodemographic data by 2024, the Alliance conducted a study to examine how sociodemographic data is collected and used in CHCs. The output of this study is a Sociodemographic Data Toolkit which includes a report summarizing the study findings (FR) and a list of helpful resources and tools for organizations to adapt or adopt (FR).

Recorded Webinar: Understanding the 2021 Practice Profile. On April 12, 2022, the Alliance hosted a webinar to help orient members to the newly updated CHC practice profile. This resource is produced annually by the Alliance for Healthier Communities and the Institute for Clinical Evaluative Sciences (ICES). It combines Community Health Centre (CHC) Electronic Medical Record (EMR) data with provincial billing and administrative data to provide information on the clients served by Ontario’s CHCs. It has now been revamped and updated for 2021. The video recording, slide deck, links to the practice profile and its appendices are available here along with other resources to help you understand and use the data.

Toolkit - Access to COVID-19 Antiviral Treatment (Paxlovid). This toolkit consists of guidance for healthcare providers as well as an informative patient handout.

The QIP Navigator is open until June 30. This online tool allows health care organizations in Ontario to submit their annual organizational Quality Improvement Plans (QIPs) to Ontario Health. Questions? Contact QIP@OntarioHealth.ca.

  • Register here for drop-in help sessions tailored to primary care. Find registration links for other sectors here.

  • Alliance Members: Consider using measures from the common QIP indicators developed by and for the our sector in 2018.

New knowledge hub from Access Alliance and the Canadian Association of Community Health Centres (CACHC): CACHC and Access Alliance have partnered to produce this centralized hub of multilingual resources created by and for community health centres. By adopting or adapting tools developed by your peers, you can save yourself the work of building them from scratch.

Parlons-en! In 2021, the Ontario Harm Reduction Network released Connecting: A Guide to Using Harm Reduction Supplies as Engagement Tools. A French-language translation, Le guide Parlons-en! Le matériel de réduction des méfaits comme outil d’interaction has now been released. This guide provides clear and stigma-free information that can help frontline harm reduction workers connect meaningfully with people who use drugs.

Bite-Sized Info Sheets about Comprehensive Primary Health Care

The Alliance has developed four new 1- and 2-page reports about comprehensive primary health care. These were created to help support you in advocating for the sector when talking to policymakers, system partners, or other leaders and decision-makers. They define primary health care, demonstrate what we mean when we say it's the foundation of the health system, and provide evidence to support our claims that this model works.

  • What is primary health care?

  • Primary Health Care: The Foundation of our Health System

  • Data Snapshot: What do Community Health Centres Do?

  • The Model of Health and Wellbeing works! Here's how we know. (The references for this sheet can be found here.)

Some may want to print these up and share them as hardcopies, so we've included a QR code on each one. This will take the reader back to the electronic version, so they can follow all the hyperlinks.

Watch for French-language versions, coming soon!
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