PAC Matters: Connecting the Community
Dear PAC Members, Representatives and Advisors:

Welcome to the IPRO ESRD Network Program's Patient Advisory Committee (PAC) new patient newsletter. As a member of the ESRD Network PAC, you are an invaluable connection between patients, your dialysis facility staff, ESRD Networks, and CMS.

Please note that the Network is always looking for patients who would like to share their stories for upcoming newsletter articles.

Thank you for volunteering your time, passion, expertise and energy to help provide an important connection between ESRD patients, family members/carepartners, dialysis facilities, and the ESRD Network.

This is an amazing opportunity to help the ESRD community and we are looking forward to working with you this year!
Upcoming Webinars
Dialysis Patient Citizen
Engaging with Elected Officials on
Social Media During a Pandemic

Learn tips about what you can do to elevate your voice online. Please RSVP to let DPC know you can attend the call.

Date: Thursday, September 3, 2020 Time: 2:00 PM ET

Follow these instructions at the time of the call.
Call: 1-877-399-5186 Enter Meeting Code: 269 743 2061
PAC Virtual Patient Support Group
September 3, 2020 at 4:45 pm ET
Meeting Link:
Meeting Number: 616 535 334
Password: PAC2020
Or Call: 1-855-797-9485
Access Code: 616 535 334
Network Program PAC Meeting
Join the IPRO ESRD Network Program for a
bi-monthly meeting of the Patient Advisory Committee (PAC) across the Network service areas to discuss patient/family member/carepartner community education, resources and activities.

Event Date: Wednesday, October 28, 2020
Event Time: 5:00-6:30pm ET
Meeting Link:
Event Password: PAC
Call In: 1-855-797-9485 Access Code: 171 815 5402
PAC/Peer Mentorship Resources
Network Educational Resources
Mental Health Resources
Combating Social Isolation, Stress, Anxiety, Telehealth and .....More!
Mindfulness is a type of meditation in which you focus on being intensely aware of what you're sensing and feeling in the moment, without interpretation or judgment. Practicing mindfulness involves breathing methods, guided imagery, and other practices to relax the body and mind and help reduce stress.

Mindfulness is the basic human ability to be fully present, aware of where we are and what we’re doing, and not overly reactive or overwhelmed by what’s going on around us. Mindfulness is a quality that every human being already possesses, it’s not something you have to conjure up, you just have to learn how to access it.

The Types of Mindfulness Practice
While mindfulness is innate, it can be cultivated through proven techniques. Here are some examples:
  • Seatedwalking, standing, and moving meditation (it’s also possible lying down but often leads to sleep);
  • Short pauses we insert into everyday life;
  • Merging meditation practice with other activities, such as yoga or sports.

Mindfulness Resources
Renal Support Network (RSN) Virtual Podcasts
RSN’s KidneyTalk is an informative, inspirational, and entertaining online, half-hour radio talk show that launched in 2006 with host RSN Founder & PresidenLori Hartwell who has been a renal disease survivor since 1968.

KidneyTalk provides the audience with practical advice on how to live a full and productive life despite CKD. The show features healthcare professionals and people living successfully with kidney disease who share personal experiences and wisdom. RSN’s online kidney disease support group and patient education meetings are offered at no charge to people who have kidney disease and their families. Among the many benefits to attending these meetings are learning tips to navigating kidney disease and living a fulfilling, joyful life from people who have been there and from concerned healthcare professionals.
National Immunization Month
The National Immunization Awareness Month is an annual observance highlights the importance of getting recommended vaccines throughout your life. You have the power to protect yourself and your family against serious diseases [like whooping cough, cancers caused by HPV, and pneumonia] through on-time vaccination.

During NIAM, the IPRO ESRD Network Program encourages you talk to your doctor, nurse, or other healthcare professional to ensure you, your child, your family are up to date on recommended vaccines. We also encourage you to visit CDC’s Adult Vaccination, which provides information on the recommended vaccines.

Additional Immunization Resources:
  • National Kidney Foundation: Vaccine and Dialysis: The National Kidney Foundation (NKF) offers guidelines and commentaries that help your healthcare provider make decisions about your medical treatment? The information in this booklet is based on those recommended guidelines.
Understanding Coronavirus 2019 (COVID-19)