Education Webinars, Peer Support, NET Cancer Day & More!
Today is the Last Day for SCAN
Calling All Healthcare Providers, Patients & Caregivers! Today is the last day you can participate in SCAN - Survey of Challenges in Access to Diagnostics and Treatment for NET Patients.

Share your experience and participate in this global assessment of NET care by INCA & its 26 member organizations across 6 continents, available in 14 languages.  #wescan  
Online Peer Support Meeting, Nov 5

Please join us as we share and connect about our pheo para journey. Led by patients and caregivers, just like you.

Everyone will have an opportunity to introduce themselves and share, if they choose.

What would you like to talk about? Please share with us ahead of time by sending an email to [email protected] .
NET Cancer Day, Nov 10

November 10 is World NET Cancer Day, an annual event, created to increase awareness of Neuroendocrine (NET) cancers and to provide a voice to the NET community for improved diagnostics, treatments, information, care and research.

The focus of this year’s campaign is to highlight the challenges patients and clinicians face around ACCESS – access to information, access to care & treatment, access to research and access to support. Learn about how you can participate .
Biochemical Testing for Pheo Para Diagnosis Webinar, Nov 14
On November 14 at 9am PT/Noon ET, Pheo Para Alliance will host a live webinar with Jacques Lenders, MD PhD FRCP and Professor Graeme Eisenhofer, PhD who will discuss biochemical testing for pheo para diagnosis.

These two world-renowned PPGL experts will explain catecholamines and metanephrines, the testing process, how to prepare for testing, dietary restrictions and interpretation of results. Patients and their families will also have an opportunity to ask questions.

This webinar series is made possible through an educational grant by Progenics.
Betsy's Double Down Challenge!
Betsy's Double Down Challenge raised $11,500! Here is Betsy wearing cowboy boots to celebrate! Doesn't she look purdy?!

Special thanks to everyone who donated, and a huge thanks to Betsy Herold for making this match possible and being such a willing cowgirl.
Save the Date!
Stronger United Gala
May 9, 2020
Hyatt Regency, Bethesda, MD
Amazon Smile
The holidays will soon be upon us. Sign up Pheo Para Alliance as your charity of choice through With every purchase, we receive a portion of the sale at no additional cost to you.
To sign up:
Log into your Amazon account at Go to Your Account and then Your Amazon Smile. Choose us as your designated charity. (App purchases are not eligible, you must use your web browser at
Contribute to Research
Join to help accelerate pheochromocytoma research simply by directing your excess tumor tissue to labs working on your disease.

Sound easy? That’s because it is.
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