March, 2019
MPNRF Under the Microscope
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The 10th International Patient Symposium on Myeloproliferative Neoplasms, presented by the Cancer Research & Treatment Fund (
CR&T
), will be held on Wednesday, October 23, 2019 at Weill Cornell Medicine in New York City. Patients and their families who attend this full-day event will learn about the latest advances in research and treatment, and participate in disease-specific Q&A sessions. This is a unique opportunity to engage with distinguished MPN researchers and physicians from the world’s leading cancer centers.
Spaces are limited so don't wait and register, TODAY! To register online, click the button below, or call CR&T at 212-288-6604.
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June 20, 2019
Tampa, Florida
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This event, held by the Florida Society of Clinical Oncology, is a 4-hour educational program and dinner for MPN Patients and their caregivers. The goal is to learn and exchange information about MPN with Oncology Professionals, Patients, Caregivers, and Survivors. Click the link below to learn more!
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At MPNRF we encourage you to become educated about your disease and familiarize yourself with the
NCCN Guidelines,
created by National Comprehensive Cancer Network,
so that you will be in a position to advo
cate for yourself and the treatments you require!
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Are you using AmazonSmile?
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Do your shopping at
smile.amazon.com and a percentage of what you spend will be donated to charity. Make sure to select the MPN Research Foundation as your charity of choice!
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Click here for instructions on how to get set up. You can also download a chrome extension called
Smilematic so that every time you go to Amazon on your browser it will redirect you to AmazonSmile. This way you don’t have to remember a different web address!
“I do a lot of my shopping on AmazonSmile, and it’s great to know that a percentage of every dollar I spend goes to the MPN Research Foundation. Just last quarter the Foundation received a check for $673.24 from AmazonSmile. It can really add up! Imagine what we could give to MPN research if more people were using AmazonSmile. It is so easy and no cost. You just sign up, enter the site though smile.amazon.com instead of amazon.com, and then shop! I hope everyone signs up and picks the MPN Research Foundation as their charity.” - David
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The MPN Family Study
We know that myeloproliferative neoplasms may occasionally run in families, but what we don’t know is why. The Fleischman Lab, headed by Dr. Angela Fleischman, MD. PhD. in Irvine, CA is seeking to answer that question. Through the MPN Family Study, Dr. Fleischman is working to identify why some families are more likely to get MPN and potentially use that information to develop ways to prevent it.
How does it work, you ask? The study is seeking families that have at least two people with an MPN and/or another blood cancer. You begin with a short online survey of your personal and family medical history, followed by a blood draw at your local lab. It is important that the blood of both the affected and unaffected family members are examined so it can be tested for a variety of mutations.
So, if you belong to a family that meets the criteria above, we encourage you to participate! MPN families are the key to uncovering what predisposes people to developing MPN and with your help we can unlock these important answers.
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Drug
: Fedratinib
Company:
Celgene
Study name: A Phase 3b, Multi-center, Single-arm, Open-label Safety AND Efficacy Study of Fedratinib.
Enrolling
: A DIPSS (Dynamic International Prognostic Scoring System) score of Intermediate or High- Risk Primary Myelofibrosis (PMF), post-PV MF, or post-ET MF, and was Previously Treated with Ruxolitinib.
To learn more click
here
.
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Drug
: Luspatercept
Company:
Acceleron
Study name: This is a Phase 2,
multi-center, open-label study to evaluate the efficacy and safety of luspatercept in myelofibrosis patients.
Enrolling
: Subjects with MPN-associated myelofibrosis including Post-PV MF, and Post-ET MF, and anemia with and without red blood cell-transfusion dependence.
To learn more click
here
.
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There are several patient and caregiver events coming up in the month of April! Head over to our
MPN Community Calendar
on MPNRF's website and check out the many educational meetings and webinars taking place!
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