DD Councils consistently ask to learn about what other DD Councils are accomplishing in their States and Territories. Field Notes provides that every month! Along with other important information, don't miss the Council Highlight below from New York.

Questions/comments or to submit content for consideration, contact
Angela Castillo-Epps or call 202-506-5813, ext. 100.
Federal Reports

  • FFY 2017 PPR – No official due date has been announced by AIDD. However, we anticipate the FFY 2017 PPR will be submitted before the FFY 2018 PPR and Councils will be provided with enough notice in order to complete this task.
  • FFY 2018 PPR – Councils should continue to save information in a word document and await further instructions from AIDD. This report would typically be due on January 1, 2019, however Councils will receive additional instructions should there be modifications to this timeline.
  • FFY 2019 State Plan Update – The due date for the FY 2019 State Plan Update and FFY 2021 Annual Work Plan is January 1, 2019.
Announcement – As quickly as we hear about availability of the reporting system, ITACC staff will schedule PPR overview webinars for the DD Council Network. However, if you need immediate assistance please contact any ITACC staff.

Collecting and Reporting Demographic Data for the Program Performance Report
As you know, the revised Program Performance Report includes the reporting of demographic data for Individual and Family Advocacy Performance Measure activities. 

The demographic data includes race, ethnicity, gender, and urban or rural geographic area. The demographic data is reported by goal. If your Council and/or sub-recipients have not collected the demographic data as part of a project performance measure or other individual satisfaction surveys, please add these elements to any FY 2019 project/activity surveys.  

All Councils should report data for the number of people with developmental disabilities and the number of family members of people with developmental disabilities who participated in Council supported activities. The numbers of each category will be entered by objective (and added together, become the total number for the goal). 

If you need support with this element of the report, please contact any ITACC staff.
If you would like to see samples of data collection instruments from other Councils, please visit and scroll down to the heading “Additional PPR Resources” – the next to last bullet has a collection of Consumer Satisfaction Survey Samples from a variety of Councils. WEBSITE UPDATES
  • Technical Assistance Institute, July 8-9, 2019.
  • NACDD Annual Conference, July 10-11, 2019. (New Orleans, LA)

The concept of cultural brokering can be applied to DD Council work as it relates to engaging diverse communities, reducing disparities and cultural competencies. For more information on this concept and how it can be applied, see the resources listed below.

1) 2018 Technical Assistance Institute a concurrent session titled, Cultural Brokering: Engagement to Diverse Communities provided insights on working with tribal and Spanish-speaking communities. PDF Presentation

2) Georgetown University National Center for Cultural Competence, Learning and Reflection Forum - Cultural Brokering: An Effective Approach for Engaging Diverse Communities in Intellectual and Developmental Disabilities (IDD) Services and Supports. PDF Presentation

3) In addition, the AUCD Diversity and Inclusion Toolkit website offers information on finding, recognizing and collaborating with cultural brokers and much more. For just one strategy on cultural brokering, see below and visit the website for more information. AUCD Toolkit Website

Strategy: Apply cultural brokering model in health, social, recreational, education, and other services and settings. Identify cultural brokers in order to bridge access to underrepresented cultural groups.

Quote:  “When I was at The Boggs Center, in order to lay the groundwork for three separate conferences in New Jersey related to different cultural groups, we researched at the beginning and found core leadership from those communities, and invited them to help teach us. Not just review something already written, but open-ended conversations about how best to engage and support people in their communities. That led to their asking for education about disability and a real sense of partnership. We met on their turf.”  
–Bill Gaventa, M.Div., Director, Summer Institute on Theology and Disability and Collaborative on Faith and Disability
Utilizing the ITACC Advocacy Resource Tool
Understanding Advocacy through the DD Council Lens

NACDD/ITACC, in collaboration with AIDD, and NACDD’s Self-Advocacy Committee (SAC) developed a resource designed to enhance the understanding of advocacy from the unique perspective of DD Councils.

The 2018 ITACC annual satisfaction survey gathered information on the Understanding Advocacy through the DD Council Lens resource and how DD Councils are using it in their work.

Of those Councils that responded, all clicked on the following ways they are using the resource:
  • Orientation of new Council members
  • As a resource with Council members while developing, reviewing, or implementing State plan activities/projects
  • Collaboration with state self-advocacy or local self-advocacy groups
  • Council Staff development

In addition, DD Councils have used the resource to educate members and staff while developing five-year state plans and annual work plan activities. Other DD Councils use the resource to provide state wide and local advocacy organizations with clear and easy to understand examples of DD Council supported activities. If you have yet to access the resource, we hope the many ideas above will inspire you to download it today.
DD Act Education & Resources
Cooperative Effort Between States and State Councils on Developmental Disabilities 

Sec. 122(d) COOPERATIVE EFFORTS BETWEEN STATES.—If a State plan approved in accordance with section 124 provides for cooperative or joint effort between or among States or agencies, public or private, in more than 1 State, portions of funds allotted to 1 or more States described in this subsection may be combined in accordance with the agreements between the States or agencies involved. 

Click below to better understand this section. The link includes program instructions/guidance created by AIDD for Councils that are in current or future cooperative efforts/collaborations with one another across State and Territory borders. The guidance can also be found on the website under the Council Staff page .
DATA "Nugget" - Employment & the ISP
Including employment goals in the Individual Service Plan (ISP)

There is a discrepancy in the number of people with I/DD who report they want employment in the community and how many of them have an employment goal in their ISP. For statistics you can use, a comprehensive list of questions and "want to learn more" links, click on the button below. (Employment and the ISP)
___ ___ ___ ___

Just a couple of ways DD Councils may want to consider using this data brief…

> Advocate for case manager policies and practices that support employment goals in the ISP.
> Training and education for parents so they can support their family member in the employment process.
> Advocate for the ABLE Act in your state or territory.

National Core Indicators (NCI) is a collaborative effort between the National Association of State Directors of Developmental Disabilities ( NASDDDS ) and the Human Services Research Institute ( HSRI ).  
PrideAbility is a New York LGBTQ Project, sponsored by the New York State Developmental Disabilities Planning Council (DDPC), with the goal of expanding the Lesbian, Gay, Bisexual, Transgender, Queer/Questioning (LGBTQ) Advocacy Coalition for adults living with intellectual and developmental disabilities (I/DD).

“PrideAbility workshops are providing informational and educational opportunities across the state to collaborate in filling the gap in service delivery for LGBTQ individuals with I/DD. To learn more, follow us on the PrideAbility Facebook page and join the LGBTQ Advocacy Movement!”
- Quote from Claire Miller (pictured above), Advocacy Coordinator for PrideAbility. Click on the Facebook icon below for more information.
To reach NACDD/ITACC staff, please feel free to contact:

Sheryl Matney
Director of Technical Assistance 
(202) 506-5813 ext. 148,

Angela Castillo-Epps
Technical Assistance Specialist 
(202) 506-5813 ext. 100,