In this edition...Federal report reminders, NEW State Plan Development section, Four Factor Analysis, Dual Diagnosis Data Brief, a National Collaboration Highlight from Florida and more!

Questions/comments or to submit content for consideration, contact
Angela Castillo-Epps   or call 202-506-5813, ext. 100.
 Federal Reports
> The FFY 2019 Program Performance Report (PPR) is due January 1, 2020.

> The FFY 2020 State Plan update and FFY 2020 and FFY 2021 Annual Work Plans are due January 1, 2020.

> The ACL Reporting System staff will present a reporting system walk through for the PPR. If you are new to using the system or want a refresher, join us on November 20, 2019 at 2:00 pm Eastern. 

The link to the webinar is and the audio call in will be 1-800-832-0736; room 8587424#
>SF-425 Federal Financial Reports are due by December 31, 2019. Councils should submit a final report for the FY 2017 grant, a second annual report for the FY 2018 grant, and the first annual report for the FY 2019 grant. Website Updates
Federal Reporting & Resources Page
Program Performance Reports

2019 PPR Guidance - This updated document written by ITACC summarizes the Annual PPR requirements for a Council on Developmental Disabilities. Included in the document are: character limitations, descriptions of elements to include in each section, instructions, guidance and examples.

PPR Webinar PowerPoint (November 6, 2019)

State Plan Amendment/Update Page
ITACC Resour ce
Information for Completing a DD Council State Plan Update or Amendment (revised 2019) - This updated document written by ITACC provides information to assist Councils in completing a State Plan Amendment and Update.

Field Notes & Other Resources Page
TAI & Other Resources
Topical Report: ABLE and Employment - This report highlights the work and accomplishments of DD Councils with regard to the Achieving a Better Life Experience Act (ABLE Act) and employment, based primarily on their 2018 Program Progress Reports.
2022-2026 State Plan Development
Tips and Tools for the next 5-Year State Plan

Many Councils have started or are about to start developing their 2022-2026 state plan. ITACC has added this column to share information to support your development process.

The plan is due on August 15, 2021 in the ACL reporting system for all DD Councils. To help organize the process, there are two versions of TA suggested planning timelines linked below.


When developing your own Council's timeline, use the due date as a starting point to determine how early the planning process needs to begin.

When implementing your timeline activities, consider administrative costs and available resources needed to increase DD Council meetings to accommodate the process.

Resources and materials are being updated now and State Plan Development webinars will be scheduled throughout the year. Check Field Notes each month for more tools and tips!
Four Factor Analysis

Building upon last month's article on language access, note the information below on four factor analysis. This analysis tool is the framework used to develop a language access plan. (LAP)

LAP's can be developed to support Title VI - Civil Rights Act of 1964 that ensures that people with limited English proficiency (LEP) have meaningful access to Federally Assisted programs.

DD Councils can use the four factor analysis to analyze their own processes including but not limited to sub-grantee project work, dissemination of communications and vital documents and strategies for community engagement.

Brief Outline of the Four Factors
Factor 1 - Number & Proportion of LEP in Service Area
Factor 2 - Frequency with LEP persons (review of programs, activities and services)
Factor 3 - Importance of program services/activities to the LEP persons
Factor 4 - Resources available and costs (determine additional needs, analyze budget, develop cost-effective strategies)

For the complete Four Factor Analysis "Quick Guide" click below. The guide includes detailed descriptions of all four steps, links for the American Fact Finder, LEP mapping tools, step by step guide for Federally Assisted Programs and more...
DD Act Education
Assistive Technology (AT)

What does the DD Act say?
... an analysis of the extent to which community services and opportunities related to the areas of emphasis directly benefit individuals with developmental disabilities, especially with regard to their ability to access and use services provided in their communities, to participate in opportunities, activities, and events offered in their communities, and to contribute to community life, identifying particularly ---

(iv) the availability of assistive technology, assistive technology services, or rehabilitation technology, or information about assistive technology, assistive technology services, or rehabilitation technology to individuals with developmental disabilities; - Section 124 (3) (C) (iv) - If applicable, this section of the DD Act also requires information on waiting lists for AT services.

For more information on the AT Act, State AT programs and access to the AT Program Directory, use the button below to download the NEW guide by the National Institute on Disability, Independent Living and Rehabilitation (NIDILRR) -- funded  AbleData project.

The guide explains what State AT Programs are, what kinds of programs they provide, who they serve and more.

Note: Information from this report could be used to inform the CRA section of the DD Council State Plan, as a resource for AT funded initiatives and to educate individuals, family members and communities.

For even more AT information, visit the AT3 Center website. It is a sponsored project of the Association of Assistive Technology Act Programs, operated under a grant from the Administration for Community Living in the U.S. Department of Health and Human Services.
Data "Nugget" Dual Diagnosis
What Do NCI Data Reveal About People Who Are Dual Diagnosed with ID and Mental Illness?
This month's data "nugget" is a FULL data brief dedicated to dual diagnosis.
National Core Indicators   is a collaborative effort between the National Association of State Directors of Developmental Disabilities and the Human Services Research Institute.

The understanding that people can be dually diagnosed with intellectual disability (ID)
and mental illness is relatively recent. Up until the last 30 to 40 years, it was assumed
that people with ID could not also have a mental illness, and behavioral challenges
were seen as a consequence of cognitive limitations rather than possible symptoms of
underlying psychiatric conditions.

This view shifted as people with ID increasingly resided in and received supports in the community, as they exercised their rights in communicating and representing themselves, and as realization grew about the widespread and long-term impacts of trauma and abuse on health, mood, and behavior.

The understanding of how to provide services and supports to people who are dual
diagnosed continues to deepen and expand. This data brief examines National
Core Indicators™ (NCI™) data from 2017-2018 to explore the characteristics and
outcomes of people with dual diagnoses, with the hope that it will add to a growing body of knowledge.

Useful information for DD Councils...
> To support this population, it takes considerable effort among the state, private provider, service coordinators and health providers in the ID service system and the mental health system. Coalition building and/or inter agency collaboration strategies may be used to bring systems together to prevent misdiagnosis, the prescribing of inaccurate medications, and unnecessary emergency room visits

> NYSTART ( Systemic, Therapeutic, Assessment, Resources and Treatment) provides supports and services to people with a dual diagnosis in New York. The NYSTART model provides prevention and intervention services to individuals with developmental disabilities and complex behavioral health needs through crisis response, training, consultation, and therapeutic supports. For more information, download the brief below and view page seven.

> Delaware has implemented the ACIST (Assertive Community Integration and Support Team) model. ACIST is an intensive support program that offers behavioral health, case management and psychiatric supports with a community-based holistic approach. For more information, download the brief below and view the bottom of page seven.
To access the full data brief, download the file below as it is filled with important statistics and multiple ways to use this important research.      
National Level Collaborations to Address Waiver Crisis in Florida

The Florida DD Council was seeking a way to address the Medicaid waiver redesign crisis in their state. The Council started with data collection. Through a collaborative effort between the DD Council and the state agency for Developmental Disabilities, a comprehensive survey was developed to show how the crisis was impacting people with DD and their families.
Taking the data to the next level, the Council worked with the State of the States in Intellectual and Developmental Disabilities to have their survey results incorporated into a national data brief. In addition, a Fact Sheet was developed that highlights the shortfalls within the state of Florida with regard to fiscal effort for spending on services for people with I/DD. 
Council members, advocates and the Executive Director were named as authors on the Fact Sheet, which raised the credibility of the Council to be the "go to" entity for important issues for people with I/DD and their families.

The State of the States Fact Sheet is now being used to educate and inform legislators and to support the iBudget waiver campaign. The iBudget Waiver is a health insurance program that serves nearly 35,000 individuals living with I/DD. It is funded by federal and state dollars through Medicaid – the only public health insurance program available to people with disabilities.
For more information on the campaign, visit .
To grasp the seriousness of the waiver crisis, the Florida Developmental Disabilities Council worked in collaboration with the United States Department of Health and Human Services and the Administration on Disabilities to create a compelling iBudget waiver campaign video. Click below for the Florida Fact Sheet and iBudget video.
DD Councils, this Council Highlight is your opportunity to share strategies, policy and initiative successes, resources and more. Contact Angela Castillo-Epps at
202-506-5813 by the 30th of each month to submit content for consideration.
To reach NACDD/ITACC staff, please feel free to contact:

Sheryl Matney Director of Technical Assistance
202-506-5813 ext. 148,

Angela Castillo-Epps Technical Assistance Specialist 
202-506-5813 ext. 100,