National Core Indicators (NCI) Data Nugget
Adult Family Survey
What can states learn from state and national NCI results about the ages of family caregivers and the implications for future service demands?
The 2016-2017 National Core Indicators™ Adult Family Survey Data indicate that
60% of caregivers responding were between the ages of 55 and 74, and 11% were 75 years and over. In one state, 22% of the respondents were caregivers over 75.
Why does it matter?
Many people with disabilities live with aging caregivers. Demand for state-funded supports and services is expected to swell as caregivers experience age-related support needs. In the 2017 FINDS survey conducted by The Arc, 1 in 4 caregivers reported that their family member was waiting for a least one service and 20% said that their family member had been waiting for more than 10 years. The 2016 Residential Information Systems Project (RISP) data show that the number of people receiving services would have to grow by 23% nationally to serve all the people on waiting lists.1 Many families with aging parent-caregivers cannot afford to wait. When a crisis occurs, the response is often temporary respite or uncoordinated services if support outside the home is not available.
How can DD Councils use this information to inform its work?
11 states report having no waiting list (California, Delaware, District of Columbia, Hawaii, Idaho, Iowa, Michigan, New York, North Dakota, Oregon, and South Dakota)
>Use the data to educate policymakers about the current status of people with I/DD are waiting for LTSS.
Engage self-advocates and families to share their stories related to this crisis, including the impact of waiting for needed services for multiple years.
Encourage the coordination of local community resources to share with families in need.
National Core Indicators
is a collaborative effort between the National Association of State Directors of Developmental Disabilities (
) and the Human Services Research Institute (
Want to learn more? click on the Adult Family Survey below.