FIELD NOTES
SEPTEMBER 2018
ISSUE 47

More great information! See below for links to a policy brief on Disparities, Council Highlight, new data on aging caregivers and more...

Questions/comments or to submit content for consideration, contact
Angela Castillo-Epps or call 202-506-5813, ext. 100.
COMPLIANCE CORNER
Program Performance Report Update

The PPR for 2017 due date has not been announced at this time. 

The PPR for 2018 is currently scheduled for submission by January 1, 2019. We encourage all Councils to begin development of the report using the PPR Template (a word document) available on the itacchelp.org website under the tab "Federal Reports and Resources" > "Program Performance Reports"

PPR Webinars are being developed and dates will be announced in early Fall. The webinars will focus on content with a special emphasis on newly added areas of the report. If you have questions or need information immediately, please contact an ITACC staff member.

State Plan Update

100% of Councils submitted their FY 18 State Plan Update and Annual Work plans for FY 19 and FY 20. Excellent work meeting the report submission timeline!

FY 2016 Grant Award - FINAL REMINDER

FY 2016 Grant Award funds are currently in the liquidation period. The liquidation of funds must be completed by September 30, 2018 – this includes all draw downs from the payment management system and payment of obligations. 

If the Council cannot complete the liquidation of FY 16 funds before 9/30/2018 and needs to request a waiver to extend the liquidation period, Council staff should email Sara Newell-Perez with justification and request for extension.

Note: FY 2016 Grant award funds expire on 10/1/2018. The grant will be coded as expired and the Council or DSA will not be able to access without an approved waiver in place.
Important note:  All requests for waivers to extend the liquidation period must be submitted prior to September 30, 2018. Please allow enough time for the request and justification to be reviewed and approved by AIDD/AOD/ACL.
ITACChelp.org WEBSITE UPDATES
update
Five Year State Plan Page

This document features a summary of all DD Council Goals/Objectives by Council as well provides background and summary information on topical areas of focus and targeted disparity sub-population and area of disparity.

This document reflects the targeted disparity statements Councils included in their 5-Year State plans with a summary of sub-populations and areas of disparity. (updated 2018)


DICLC - Archived Webinars Page

Financial Information Page
The Budget Process (updated)
DIVERSITY, INCLUSION AND CULTURAL AND LINGUISTIC COMPETENCE (DICLC)
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POLICY BRIEF: Addressing the Complex and Pernicious Problem of Disparities in Behavioral Health Care

“Health disparity is a particular type of health difference that is closely linked with social, economic, and/or environmental disadvantage. Health disparities adversely affect groups of people who have systematically experienced greater obstacles to health based on their racial or ethnic group, religion, socioeconomic status, gender, age, mental health, cognitive, sensory, physical disability, sexual orientation or gender identity, geographic location or other characteristics historically linked to discrimination or exclusion” (U.S. Department of Health and Human Services, 2008, p. 46).

The Georgetown University Center for Child and Human Development posted a brief that outlines --
  • Disparities in Mental Health Services (pages 5-7)
  • Causal Factors for Disparities (pages 8-10)
  • Leadership for Organizational and Systemic Change - adaptive vs. technical work and challenges (pages 14-15) and much more.

Though Councils do not provide direct services, this information provides frameworks on the issue, a comprehensive list of service system disparities and information on advocating for policies and practices to reduce disparities.
DD Act Education & Resources
Memorandum of Understanding (MOU) with the Designated State Agency (DSA)
The Developmental Disabilities Assistance and Bill of Rights Act of 2000 (PL 106‐402) provides language that supports a DD Council to request a MOU with the DSA to clarify and describe the roles and responsibilities of the DSA. 

DD Act Language: Section 125 (d)(3)(G) MEMORANDUM OF UNDERSTANDING.
On the request of the Council, the designated State agency shall enter into a memorandum of understanding with the Council delineating the roles and responsibilities of the designated State agency. 

To support DD Councils, a resource was developed that reviews the purpose of an MOU and identifies common elements included in an agreement.
DATA "Nugget" - Aging Caregivers
National Core Indicators (NCI) Data Nugget
Adult Family Survey

What can states learn from state and national NCI results about the ages of family caregivers and the implications for future service demands?

The 2016-2017 National Core Indicators™ Adult Family Survey Data indicate that 60% of caregivers responding were between the ages of 55 and 74, and 11% were 75 years and over. In one state, 22% of the respondents were caregivers over 75.

Why does it matter?
Many people with disabilities live with aging caregivers. Demand for state-funded supports and services is expected to swell as caregivers experience age-related support needs. In the 2017 FINDS survey conducted by The Arc, 1 in 4 caregivers reported that their family member was waiting for a least one service and 20% said that their family member had been waiting for more than 10 years. The 2016 Residential Information Systems Project (RISP) data show that the number of people receiving services would have to grow by 23% nationally to serve all the people on waiting lists.1 Many families with aging parent-caregivers cannot afford to wait. When a crisis occurs, the response is often temporary respite or uncoordinated services if support outside the home is not available.

How can DD Councils use this information to inform its work?

> Visit the FISP Supporting Individuals and Families Information Systems Project and obtain your state's data on how many people with I/DD are waiting for long-term supports and services. (LTSS)
( 11 states report having no waiting list (California, Delaware, District of Columbia, Hawaii, Idaho, Iowa, Michigan, New York, North Dakota, Oregon, and South Dakota)

>Use the data to educate policymakers about the current status of people with I/DD are waiting for LTSS.

> Engage self-advocates and families to share their stories related to this crisis, including the impact of waiting for needed services for multiple years.

> Encourage the coordination of local community resources to share with families in need.

National Core Indicators (NCI) is a collaborative effort between the National Association of State Directors of Developmental Disabilities ( NASDDDS ) and the Human Services Research Institute ( HSRI ).  

Want to learn more? click on the Adult Family Survey below.
COUNCIL HIGHLIGHT ~ CNMI
DD Network Collaboration leads to Needed Resource
Through a successful collaborative process, the CNMI Council on Developmental Disabilities, Protection and Advocacy System and UCEDD worked with many other agencies to produce the Disability Resource Directory. The Directory was shared with the CNMI community to share what services are available on the Island. 

To reach NACDD/ITACC staff, please feel free to contact:

Sheryl Matney
Director of Technical Assistance 
(202) 506-5813 ext. 148, smatney@nacdd.org

Angela Castillo-Epps
Technical Assistance Specialist 
(202) 506-5813 ext. 100, acastillo-epps@nacdd.org