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JULY 2018
FDA Meeting On Patient Focused Drug Development for Chronic Pain
FPN FDA Chronic Pain
On July 9, FPN Board President Lou Mazawey attended a meeting hosted by the Food and Drug Administration (FDA) on patient focused drug development for chronic pain. As a long-time chronic pain patient with peripheral neuropathy, Mr. Mazawey was granted an opportunity to speak on a panel to express the needs of PN patients who are suffering, like himself.  The meeting was attended by over 1000 patients either in person or virtually who presented their views by means of discussion and an interactive survey. 

The Foundation for Peripheral Neuropathy also surveyed its Premium Members on their experiences with chronic pain and its treatments. The results of this survey will be submitted to the FDA to provide further input from patients on their needs in dealing with chronic pain.
Learn more about the meeting and our survey. 

If you are interested in submitting your comments to the FDA, you may submit your comments through their public docket open until September 10, 2018. 
Patient Profile: Robert and Lynn Mobley
FPN Patient Profile_ Robert and Lynn Mobley
"My athletic husband stumbled. He was tired. He had a disease we'd never heard of."
Read more about Robert and Lynn Mobley's journey with peripheral neuropathy and how FPN and the DC Metro Area Support Group has helped them in their story, recently published in The Washington Post.
New Treatments on Horizon for Chronic Pain
New Treatments on Horizon for Chronic Pain
Patients and doctors have long complained that there are few new treatments for chronic pain. And those that do come along are often reformulations of old medications or have unwelcome side effects. Two developments suggest that trend may be changing.
A new drug application has been submitted to the Food and Drug Administration for an "opioid of the future" that is less addictive, and research has uncovered a new way to treat neuropathic pain long term with a single injection. 
Read more 
Non-Opioid Drug Relieves Pain in Mice, Targets Immune Cells
Non-Opiod Drug Relieves Pain
Faced with the epidemic of opioid addiction, researchers have been charged with finding other strategies to treat pain. Their efforts largely have focused on nerve cells that transmit pain signals to the spinal cord and brain. But new research, led by scientists at Washington University School of Medicine in St. Louis, shows that targeting receptors on immune cells may be more effective, particularly for chronic pain.
Activating Two Receptors Along Chemical Pathways May Provide Pain Relief at a Lower Opioid Dose
Activating Two Receptors
A team of researchers at Johns Hopkins have found that activating nerve cell receptors along two chemical pathways - one that has previously been linked to how the brain senses "itch" - may improve pain relief when combined with conventional ways to blunt pain using opioid drugs, such as morphine.
Are you or is someone you know affected by Hereditary ATTR Amyloidosis? To find out more about this disease, which sometimes has peripheral neuropathy as an early symptom, click here.  
If you  have been diagnosed with Small Fiber Neuropathy and live in Europe, please email the Center for Information and Study for Clinical Research Participation at NGetz@ciscrp.org  to learn how you can participate in one of their upcoming meetings. Your story could be used to create a new clinical trial that address the needs of Small Fiber Neuropathy patients like you.  
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Annual donations of at least $30 qualify you for Premium Membership.
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Disclaimer: The information contained in this e-news is not intended to substitute for informed medical advice. You should not use this information to diagnose or treat a health problem or disease without consulting a qualified health care provider. You are strongly encouraged to consult a neurologist with any questions or comments you may have regarding your condition. The best care can only be given by a qualified provider who knows you personally.
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