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SEPTEMBER 2017
Neuropathic Pain: Navigating the Challenges of an Elusive Disease
This article provides a valuable overview of the treatment options available for peripheral neuropathy patients and a look ahead at how "personalized medicine" might help provide a better course of treatment for PN patients.  
 
Peripheral Neuropathy Research Registry: Why You Should Enroll Today!
Who:
If you have Diabetic, Chemotherapy-Induced, HIV/AIDS or Idiopathic neuropathies, you are encouraged to enroll in the Peripheral Neuropathy Research Registry (PNRR) to help us gather data and advance research for PN.
What:
The Research Registry is a collection of data samples that will facilitate both basic and clinical research studies that are expected to improve understanding of the etiology and pathogenesis of PN.   
Where:
There are five consortium sites for the PNRR where you can enroll, located throughout the United States in Baltimore, Chicago, Kansas, New York and Salt Lake City. To make an appointment to enroll in the registry today, please contact your preferred site.
When:
Enroll today. Data collection is simple, including a patient history, physical exam and blood draw, and your participation will help us get closer to our goal of 2,000 patients enrolled.
Why:
Once complete, we hope that our Peripheral Neuropathy Research Registry (PNRR) will improve the ability to diagnose, treat and prevent peripheral neuropathy. Your participation in this Registry will be the greatest offering you can provide to yourself, your family, and other patients who are hopeful for a cure for peripheral neuropathy.
 
Learn More   
PATIENT CONFERENCE - OCTOBER 21, 2017 
We are nearing capacity for the Foundation for Peripheral Neuropathy's Patient Conference in Chicago, Illinois, on Saturday October 21, 2017 from 8:30 a.m. to 12:15 p.m. CT. Visit our website for more information, including hotel information, and if you haven't already, register now . 
How Can Patients Cope with Chemotherapy-Induced Peripheral Neuropathy?
Many patients, who receive chemotherapy to treat their cancer, develop chemotherapy-induced peripheral neuropathy (CIPN). Peripheral neuropathy can be a treatment limiting side-effect. This article answers some common questions patients with cancers have about CIPN.
Cell Signaling Molecules May Be Key to Repairing Diabetic Nerve Injury
 
Molecules that help cells communicate with each other--called cytokines--might be the key to repairing diabetic nerve damage, according to a new study published in Experimental Neurology.  
 
Read More   
Maintaining Balance
Falls are the most common cause of injury in elderly adults (age 65 and older). As many as one third of elderly adults fall each year, and the risk of falling triples if you have a neurologic disorder like peripheral neuropathy. Twenty to thirty percent of older people who fall suffer moderate to severe injuries, such as hip fractures and head traumas. These injuries can be life altering and evenly deadly. According to the Centers for Disease Control and Prevention, falls kill more than 18,000 older adults each year.  Learn more about why we fall and how to better stay on our feet.  
 
 
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Support Group Events:
 
Calgary (Alberta) 
Wednesday, September 20th from 12:45 p.m. - 3:00 p.m. 
"Managing Chronic Health Challanges" with Donna Piercy, MC, R Psych a Chronic Pain Specialist 
 
Location: Northmount Baptist Church Hall, 451 Northmount Dr NW
 
For more information please call (403) 668-9777 or visit www.calgaryneuropathy.com 
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Georgetown, TX 
Monday, October 9th from 1:00 p.m. - 2:30 p.m. 
"Diagnosis and Treatments" Video with Sara Austin, MD and Discussion

Location: Lake Aire Shopping Center, Community Room A, 2423 Williams Dr., Suite 101, Georgetown, TX 78628
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Austin - West, TX 
Saturday, October 14th from 10:30 a.m. - 12:00 p.m.
"Diagnosis and Treatments" Video with Sara Austin, MD and Discussion
 
Location: Westlake Hills Presbyterian Church, Parlor, 7127 Bee Cave Rd., Austin, TX 78746

For questions about any of the above meetings, contact the Neuropathy Alliance of Texas at (512) 553-9130 or info@neuropathyalliancetx.org or visit neuropathyalliancetx.org
Looking for more access?  More information? PREMIUM Members of the Foundation for Peripheral Neuropathy get the latest peripheral neuropathy information and exclusive access to valuable resources while supporting the cause.  If you have not yet joined, it's easy to do so!
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Disclaimer: The information contained in this e-news is not intended to substitute for informed medical advice. You should not use this information to diagnose or treat a health problem or disease without consulting a qualified health care provider. You are strongly encouraged to consult a neurologist with any questions or comments you may have regarding your condition. The best care can only be given by a qualified provider who knows you personally.
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