Facts N' Factors Newsletter | November 2016

Season of Giving

As we approach this season of giving we ask you to consider all the ways there are to give back to VHF and the bleeding disorders community.VHF strives to provide high quality programs and services such as a family assistance program, educational scholarships, an annual meeting, summer camp, and more. In order to keep this all going we rely upon the generosity of our donors, volunteers, members, and partners - thank you for all you do! 
There are many ways you can give, for example: 

  • Consider making a donation to VHF on November 29th also known as #GivingTuesday, a global day dedicated to giving. Since its founding in 2012, #GivingTuesday has inspired giving around the world, resulting in greater donations, volunteer hours, and activities that bring about real change in communities. Go HERE to learn more.
  • You can make a tax deductible donation to VHF anytime by going to our website www.vahemophilia.org and clicking on the red "Donate Now" button OR you can mail your donation to VHF at 410 N. Ridge Rd., Suite 215, Richmond, VA 23229 (make checks payable to Virginia Hemophilia Foundation).
  • Amazon Smile is a simple and automatic way for you to support VHF every time you shop, at no cost to you. When you shop at smile.amazon.com, you'll find the exact same experience as Amazon.com, with the added bonus that Amazon will donate a portion of the purchase to us. Share this link http://smile.amazon.com/ch/54-1183181 and ask your donors, volunteers, employees, and friends to bookmark this link so all their eligible shopping will benefit United Virginia Chapter of the National Hemophilia Foundation.
Winter Gatherings - Charlottesville, Norfolk, and Richmond

We invite you to join us at one of our annual winter gatherings. There will be food, fun, education, and holiday treats for all so please come whether you are young or just young at heart...

Saturday, December 10th

9:00 am
Ramsey United Methodist Church
5900 Hull Street Rd.,  Richmond, VA  23224

10:00 am
Brickhouse Lobby at CHKD 
601 Children's Lane, Norfolk, VA 23507

10:30 am
Pottery Paintin' Place at Lazy Daisy Ceramics
1709 Monticello Rd., Charlottesville, VA 22902

Get Involved
Upcoming Events November - December 2016

November 10 - Educational Dinner   RSVP  (Harrisonburg)
November 12 -  Educational Lunch and Community Event   RSVP  (Williamsburg)

December 1 -  Educational Dinner and Community Event  RSVP  (Virginia Beach)
December 10 - Winter Gatherings ( Charlottesville, Norfolk, Richmond)
December 15 -  Scholarship due for NHF Washington Days

Event Wrap-up

Educational Dinner - Hampton
Amy Walker | VHF Member and Volunteer

The October 6th educational dinner in Virginia Beach was a big hit! We were treated to an amazing  dinner and dessert at Steinhilber's Restaurant while our guest speakers  talked about sharing a life with hemophilia and the unexpected challenges but gifts of a  bleeding disorder. They shared their personal story and it was inspiring to see how they have  worked together as a couple to make dealing with a bleeding disorder better.  Our main speaker was a Hemophilia Treatment Center (HTC) social worker who spoke regarding communication with your  child's school. She gave us many good points including tips for educational plans and how to  respectfully advocate for your child. Many of the parents in attendance had good and bad  personal experiences to share and that gave new parents great assistance in talking with their  child's school. Many thanks to our sponsor, Novo Nordisk for our  outstanding evening.

Adult Retreat - Staunton

This year's Adult Retreat took place in Staunton, VA the weekend of October 8-9, 2016. Saturday morning's Inalex workshop, "Being Relationally Fit" was lead by Lisa Merlo-Booth, M.A. and covered  how to set the foundation for healthy relationships by mastering the skills of healthy boundaries and self-esteem. That evening, everyone enjoyed an exciting production of "Twelfth Night" at the American Shakespeare Center. On Sunday morning, attendees explored ways to strengthen intimacy with the NHF Education for Empowerment workshop "Getting Unstuck: Overcoming Roadblocks to Intimacy and Relationships". 

Attendees had this to say:
" Attending the adult retreat was spectacular. The information obtained from Inalex was incredibly invaluable for my husband and I. Not only was the conference engaging and useful, it was fun. I cannot wait to meet with my VHF family again, soon. Thank you for this unique opportunity." Tracy Johnson Jones

"It was very nice and educational. It helped me with new ways to communicate and showed you to how to look at things differently and respond in a new way. The evening was awesome, the food was delicious - all was very nice. Our Sunday the session was entertaining and helpful as we looked at intimacy issues and how to improve it. The whole weekend opened up communication and intimacy. We learned how to resolve differences and clear the way for understanding. Most importantly we met new friends!" Jerry West

We would like to extend a thank you to our sponsors DrugCo Health, Hemophilia Federation of America, Matrix Health Group, National Hemophilia Foundation, Novo Nordisk, and Shire. Don't forget to save the date for our next Adult Retreat which will be the weekend of March 25 - 26, 2017 in Richmond, VA.

Celebrate Fall Community Event - Shenandoah Caverns

What a treat it was to spend a beautiful fall day in the Shenandoah Valley! Over 50 members came together among retired parade floats in the American Celebration Building at Shenandoah Caverns. There was good food, great company, fall crafts, and a costume contest. After lunch,  Margy Sennett, CPNP, Nurse Coordinator at UVA-HTC, presented new product developments in the bleeding disorders community and in order to explain the coagulation cycle she had volunteers come up and act out the cycle. Everyone was in agreement that having a live performance of the cycle with demonstrations on how these new products work was incredibly informative and such a simple way to learn about something so complex. To round out the day there was a guided tour of the breathtaking Shenandoah Caverns and then time after for members to relax and catch up over snacks and drinks. Thank you to our sponsors CSL Behring and Diplomat. 

Don't miss out on our next educational lunch and community event on Saturday, November 12th at the Ripley's Believe it or Not Museum in Williamsburg, go HERE to learn more.

Trick or Trot 5K and Fun Walk at Robious Landing Park

VHF's 2nd Annual Trick or Trot on October 29th was a great success. It was a beautiful and sunny Saturday at Robious Landing Park in Midlothian, where over 120 runners, walkers, sponsors, and volunteers helped to raise over $37,000 for the Virginia Hemophilia Foundation (this is almost 30 people and $8,000 more than last year!).

Thanks to our hardworking committee and volunteers for putting out signs, straw bales, pumpkins, and scarecrows to greet attendees as they arrived. Highlights of the event included a family fun walk in addition to the 5K, a costume contest, DJ, face painting, Rosie the Clown, and LOTS of seasonal treats from our race sponsors. It was so fun to see the kids participate in the Monster Dash. They all received candy bags and the top 3 finishers received ribbons. Race and walk participants also received candy bags and the winners of the 5K received wonderful wood carved awards created by Kevin O'Connor. New this year were fundraising awards, the top individual/team fundraising award went to Michael Welshonce/Team Baby Clay with almost $900 in donations, 2nd place was Team Elsa, and 3rd place was Team Spazovengers. The most spirited team award went to Sara Cheeks/Team Star Wars who won the competition by bringing 10 runners/walkers to the event. Thanks to all our sponsors, committee members, and volunteers for making this a SPOOKtacular event. 

Make sure to  join us at our next fundraiser, Bowling for Bleeding Disorders, on Saturday March 4th in Richmond and Chesapeake!

Go HERE to see more photos from this event (thank you to Frank Dowling for volunteering his talent and taking these great photos!)

Go HERE to see a listing of our generous sponsors.

Community Resources

VHF Medical Resource Committee

The VHF Medical Resource Committee is made up of HTC staff and VHF Board Members. This committee has been hard at work over the past few months developing and revising resources that you can use with healthcare providers, dentists, and school staff. Visit the  resource page on our website and scroll down to find one-page handouts that you can easily download and print. Make sure to check our resource page often, as we plan to add additional forms that you can use with emergency care providers as well as resources for vWD and more. If you have any suggestions or thoughts on resources that you would like to see please contact VHF at kelly@vahemophilia.org

Sign up HERE to watch
and become better informed, educated and ready to meet the challenges of living with hemophilia.

The National Hemophilia Foundation (NHF) is pleased debut a series of educational webinars for individuals, families and caregivers affected by hemophilia A and B.
The Hemophilia Webinar Series will feature expert healthcare providers who will be discussing many of the significant challenges facing this community. 

Hemophilia Federation  of America (HFA) hosts webinars and Google Hangouts on a variety of topics throughout the year. Go HERE to  register for their mailing list  to stay informed on  upcoming opportunities  for you to learn in the comfort of your own home!  Go HERE to see all of their previously recorded webinars.

Von Willebrand Disease: the Under-the-Radar Bleeding Disorder Constant nosebleeds, persistent bruising and super-heavy periods are signs you shouldn't dismiss.

Lisa Esposito | Staff Writer U.S. News and World Report |  Oct. 7, 2016

You've probably heard of hemophilia - with its history among European royalty - but maybe not about von Willebrand disease, the much more common bleeding disorder affecting up to 1 percent of the U.S. population. In von Willebrand disease, named after the Finnish scientist who discovered it, the blood is missing a key protein that helps it clot. Many people don't realize they have the  genetic condition  until a severe bleeding episode leads them to a  hematologist , a doctor who specializes in blood disorders.

Upcoming Events

Upcoming Events 2017

  • TBD - Educational Dinner (Richmond)
  • 25th - Community Event/Educational Lunch (Norfolk)
  • 4th - Bowling for Bleeding Disorders (Richmond/Chesapeake)
  • 8th - 10th - NHF Washington Days
  • TBD - Women's Event (Virginia Beach)
  • TBD - Community Event/Educational Lunch (Central Region)
  • TBD - Educational Dinner (Western Region)
  • 25th - 26th - Adult Retreat (Richmond)

www.drugcopharmacy.com  757-705-1332