February 2016 NEWSLETTER
Serving Northern California from Fresno to Monterey to the Oregon border
In This Issue
Website Quick Links

Paul E. Smith Scholarship

and 
Frankie Lee Forbes Scholarship

More info here
 NEW Support Groups

 Telephone Support Group
Parents & Caregivers of children with epilepsy
1st Meeting: March 1, 2016

Arcata Support Group
 Open to all
1st Meeting: March 1, 2016

More info.
Thank You
2016 Stroll Sponsors

Marathon

Stroller


MyEpilepsyTeam is a social network and online support group for people who are living with epilepsy.
Very Special Thanks
2015 Gala Sponsors

Title


Platinum
Green Charitable Foundation
Remick Family Foundation

Gold

Silver
Anonymous
Jim Anderson
Edward Chang M.D.
Falasco
- Keeney  Family
Youker Consulting Group
Epilepsy Center of Excellence

Benefactor
Bronte Epilepsy Research Foundation
Sande Schlumberger & Roxane Schlumberger-Hume
Barbara Suskind &
Lowell Richards
Richard Thalheimer
Brad and Rebekah Triebsch

In-Kind
Jones Family Vineyards

#DareTo Educate
Free Training Available

In the event of a seizure, 
will your friends, family or colleagues know what to do?
  • 60 min presentation on basic Seizure First Aid
  • Audiences include: School Personnel, Law Enforcement, First Responders, Service Providers, Corporations, Students, Families
415.677.4011
Strollin' Back in Time
#FlashBackFriday

Returning to the Foundation after 15 years is an amazing life experience. Being able to witness incredible growth, change and advances for those living with epilepsy is truly inspiring and motivating! What also provides that same sense of inspiration is in what has remained the same...like - The Stroll! Above is a picture that I used to promote the Stroll in 1997! I remember it so vividly in the creation, organization and implementation of this great event because it was so unique and different at that time. Nowadays, almost all non-profit organizations hold a "walk" of some sort as we collectively recognize the deeply positive, therapeutic, educational, and meaningful impact this program has both for our immediate community as well as for our community as a whole. But for the Foundation, this isn't just another "walk."

Our Stroll is a long-standing tradition and strong pillar of the work we do to provide direct support to our community and bring awareness to our society. Fighting the stigma, building bridges, creating access - all of this takes great commitment and care - one step at a time. That we have been doing so successfully for so very long is a testament to each other - how we deeply care and are committed to improving not only the lives of those living with epilepsy but our neighbors and fellow citizens. I am beyond honored to be participating once again, 20+ years later and being witness to the continued strength and impact the Foundation and all of its supporters, members and contributors are making each and every day.  I look forward to seeing everyone in May!
--Jody Iorns
 
Executive Director
Sign Up Today
Basketball! Stroll! Coelho Camp!

 

April 16, 2016, Sacramento, CA

April 17, 2016, Atherton, CA

  • A fun half-day camp to empower kids with epilepsy and to inspire them to reach for the stars. Sibling or friend welcome to join! 

STROLL: 24th Annual!

May 21, 2016

Six Flags Discovery Kingdom, Vallejo 

  • Start a team and ask family, friends, co-workers to join!


COELHO EPILEPSY YOUTH SUMMER CAMP

June 26-July 1, 2016

CYO Camp, Occidental, CA 

  • Reunite and make new friends! Enjoy a sleepover camping experience that develops self-esteem by promoting self-confidence.
     
     
Art For Awareness Contest
Epilepsy Awareness/Purple Day®

EFNC is hosting an Epilepsy Awareness/Purple Day® Awareness Art Contest! We are calling for Art in All Forms (photograph, videos, drawings, sculptures - anything representative of living with epilepsy) to be submitted in support of Epilepsy Awareness. Anyone can submit their artwork via digital form for consideration for one of three prizes in each of three age categories. Artwork will be displayed on our website, as well as social media, and the winners will be announced and published on Epilepsy Awareness/Purple Day® on March 26, 2016. Submission deadline is March 18th. More info here

Purple Day® began in 2008 by then nine-year old Canadian Cassidy Megan. Today, Purple Day® is celebrated in more than 80 countries, with thousands of epilepsy awareness events taking place in schools, hospitals, malls, businesses and local communities. Governors, mayors, state legislatures and city councils have issued Purple Day® Proclamations in support of epilepsy awareness. 

This contest is supported by a grant to increase public awareness of epilepsy from the Anita Kaufmann Foundation. We are excited to use these funds in support of Epilepsy Awareness/Purple Day® activities.  
Veterans and Epilepsy
Basic Training from the VA

In an effort to address the stigma of epilepsy and educate Veterans, their caregivers and the general public about living with epilepsy, the VA Epilepsy Centers of Excellence (ECoE), in partnership with the VHA Employee Education System, have developed a video series titled "Veterans and Epilepsy: Basic Training.
Each video in the series features a Veteran sharing his or her personal experiences and unique challenges balancing the medical, personal and social aspects associated with having recurring seizures. The goal of the video series is to promote public awareness of the impact of epilepsy in the lives of Veterans and to convey that these patients are able to live full, productive, and successful lives. 

Click to Watch
The first video of the series, now available on YouTube, focuses on the diagnosis of epilepsy. Subsequent videos will be released every few months over the next year and include topics such as epilepsy medications, social issues faced by individuals living with epilepsy, seizure first aid, and traumatic brain injury. Stay tuned for the next video!
 
" I think receiving a diagnosis of epilepsy is a very emotionally turbulent experience for most of my patients."
Manu Hegde, MD, PhD, epilepsy specialist, neurologist, San Francisco VA Medical Center
Keeping Our Students Safe
CSNO Conference

At the invitation of the California School Nurses Organization (CSNO), the Epilepsy Foundation of Northern California, the Epilepsy Foundation of San Diego County and the Epilepsy Foundation of Greater Los Angeles, partnered to organize a half-day Epilepsy Workshop on February 4th in Fresno, CA, prior to the annual conference of the California School Nurses Organization. 

The CSNO offers various sessions  to school nurses: basics of seizure first aid and seizure safety, current treatments and common types of seizures experienced by students, the impact of epilepsy and treatments on learning and behavior, updates on Seizure Rescue Medications in the school, best practices around  developing seizure action plans and the key elements for training teachers and school personnel. 
Nilika Shah Singhal M.D. 

Special thanks to presenters  Susan Pietsch-Escueta, MPH, Executive Director at the Epilepsy Foundation of Greater Los Angeles,  Nilika Shah Singhal M.D., epilepsy specialist and neurologist at UCSF Benioff Children's Hospital San Francisco, and  Mary Zupanc, M.D., pediatric neurologist at Children's Hospital Orange County . We are so appreciative of your education and support!

Interested in a school/school nurses training? Contact Us! katie@epilepsynorcal.org
There's Still Time!
Pipeline Conference, Community Day
 
What is the Pipeline Conference?
It's 
a three-day event held  in San Francisco between  February 25-27 ,  showcasing the most promising epilepsy therapies from healthcare companies dedicated to pioneering and advancing drugs, biologics, technologies, and devices for epilepsy and seizures. 

On Saturday, friends and family are invited to attend Community Day, a unique one-day event dedicated to people living with seizures, their loved ones, and epilepsy advocates.  The theme for Saturday's Family Day is "Information * Empowerment * Hope * Community."  View  Agenda Register here for   FREE.

Registration is required to attend due to the popularity of this conference. And don't forget to stop by  the exhibit room and visit the EFNC booth--f ind out what's happening here in Northern California!

If you're not in the San Francisco area or are unable to attend, a livestream of the conference will be available on www.epilepsy.com!