MISSION: To overcome the challenges of Costello syndrome.

February 14, 2019


  • Share the Love - Share Your Story
  • Costello Ambassador and Sibling Champion Nominations
  • CSFN Chosen as Charity of the Year by Guild Mortgage

Share the Love - Share Your Story
Everyone living with Costello Syndrome has a story to tell… stories of bravery, of coming together, of optimism, of happiness and of overcoming the seemingly impossible. Whether Costello Syndrome affects you directly or you’re a friend, colleague, family member or healthcare professional, we all have our own challenges and ways of dealing with them.

So what about you? What’s your story? We would love to hear about your experience with Costello syndrome, from your very first symptom to how you live your life now. The more you share, the more we have an opportunity to help others whose lives have been touched by Costello syndrome, inspire others with your experiences and help others including our supporters and researchers understand the syndrome.

Sharing our stories will inspire families to overcome what seem to be impossible obstacles and show just how much can be accomplished despite limitations and a world that doesn’t understand them. Let's raise awareness about Costello syndrome and let other families know that while it can feel lonely out there, they are not alone. 

 For more information contact the Costello Syndrome Family Network (CSFN) at info@costellosyndromeusa.org

Costello Syndrome
Ambassador and Sibling Champion Nominations

Share your love and admiration for people with Costello syndrome and siblings who set an example for others. Nominate someone who advocates for Costello syndrome. 

Click through to the form for more detailed information about these awards and who is eligible. Use the form below or share it with a friend or family member to nominate someone today! 

DEADLINE is May 2, 2019

2017 Costello Ambassador
Danielle Slawitschek

Sibling Champion: Cameron Hall
Sibling Champion:
Dylan Keiner.
Are you ready for the 11th Biennial
Costello Syndrome Family Conference?
July 31-August 4, 2019
Guild Mortgage Chooses CSFN as Charity of the Year
A special thanks to Eric Weiss and Chad Overhauser from Guild Mortgage for choosing CSFN as their Charity of the Year for their region! They will be making a $1 donation for every loan funded in 2019 (hoping for 4,000 loans funded) in honor of Westin Thomas! Thank you so much!!
Costello Syndrome Family Network
Fighting Spirit - Winning Smile