APRIL 2018 | ISSUE 42

In this edition, you will find PPR assistance, updates, an introduction to our new "DATA Nugget" section, a Council Highlight from Washington State and a lot more...

Questions/comments or to submit content for consideration, contact
Angela Castillo-Epps or call 202-506-5813, ext. 100. | ACCESSIBLE VERSION
Program Performance Report Update
No firm due date has been announced as of this date. However, as you continue to develop and/or refine the 2017 PPR and find you need assistance, support, or further information from ITACC staff, please see the Council assignment listing below:

ITACC staff Council assignments for PPR one-on-one assistance.
Angela Castillo-Epps ( )

Sheryl Matney ( )

Check out the guidance document and other related resources on the website; Federal Reports and Resources; Program Performance Report page.

A Note from Sara Newell-Perez, AIDD Program Specialist
An important reminder to Council and DSA staff: The next webinar in our fiscal series is coming up! This webinar will be presented by the Office of Grants Management staff and attendance is strongly recommended.

Fiscal Webinar Series  #2    Topic: Expanding your Understanding of the Notice of Award; Key topics include project period (period of performance), obligation/liquidation, and reporting requirements

  • Wednesday, April 11, 2018, 3-4 pm Eastern
  • DD Council budget and DSA Fiscal Staff, Executive Directors should plan to attend
  • Be sure to register: REGISTRATION LINK - 800-832-0736, code 2680372

If you are unable to attend, this webinar will be recorded and archived for later reference.

I also want to take this opportunity to encourage Councils and Designated State Agencies to make every effort to have their fiscal staff attend the Training and Technical Assistance Institute, scheduled for July 9-10, 2018 at the Gaylord National Harbor.

July 10 th  will be an entire day focused on fiscal topics and Federal program and grants staff from the Administration for Community Living will be on hand to present and answer questions. WEBSITE UPDATES
Council Director's Page

Memorandum of Understanding (MOU) with the Designated State Agency This resource reviews the purpose of an MOU as well as identifies common elements included in an agreement.

DSA - subheading
Designated State Agency State Chart 2018 This chart lists each DD Council’s DSA.

Home Page - Announcements 
NACDD's 2018 DD Awareness Month Campaign We Want to Hear from You!
To ensure the growth & success of the DD Awareness Month campaign, please complete this survey by Friday, April 27th.
Learning Opportunities
The DICLC work group, along with guest speaker Tawara Goode, will host another 2-Part Webinar Series in 2018

Webinar #1 May 16, 2018 at 3:00 p.m. Eastern Time
Linguistic Competence: Assessing progress & Basic Next Steps
The webinar was developed to increase the knowledge of linguistically competent policies and practices as they relate to 5-Year State Plan activities. During the webinar, DD Councils will:
  • Review how linguistic competence relates to the work of DD Councils including federal mandates to ensure language access.
  • Share examples of how DD Councils are in the process of or have developed linguistically competent policies and practices.
  • Engage in an open discussion to identify partners, resources and strategies, address barriers and suggest future TA recommendations.

No registration required. WEBINAR LINK - 800-832-0736, code 2680372

SAVE the DATE: Webinar #2 August 6, 2018 at 3:00 p.m. Eastern Time
Defining & Implementing Language Access Plans for DD Councils
More information to come!

For archived DICLC work group webinars from 2017, CLICK HERE
Self-Advocacy Mandate - Q & A
There are three mandates related to self-advocacy in the DD Act. Each mandate must be addressed every year of the 5-Year State Plan. One of the three mandates states, "Support and expand participation of individuals with developmental disabilities in cross disability and culturally diverse leadership coalitions."
DD Act, Section 124 (c)(4)(ii)(III)  
What does the mandate really mean?
To help clarify, see the definitions listed below from the Understanding Advocacy through the DD Council Lens resource. For the full resource, including specific examples of how Councils support this mandate, CLICK HERE .
Identify cross-disability and culturally diverse leadership coalitions and inform people with developmental disabilities of the opportunities to participate. Support for participation may include, but is not limited to, information about transportation resources, mentorship and training, public speaking resources, etc.

Cross-disability coalition = representation of individuals with multiple disabilities, not just developmental disabilities.

Primary focus should not deter self-advocates from participating in other coalitions. Refer to the Administration for Community Living for other programs in your state. Leadership coalitions may include advocacy and/or policy boards, advisory committees, and other governing bodies.

Culturally diverse coalition = participants who represent a variety of ethnicity (culture, race or religion), nationalities (country of origin) or geographic region.

What other things should Councils consider when working on this self-advocacy mandate?
  • The mandate is broad and does not state that the coalition must be disability focused. Other examples could include, local transportation boards, Department of Education advisory committees, the Governor’s office of Economic and Community Development or other non-profit entities.
  • If supported in its state plan activities, the DD Council could be the convener of such a coalition as it has access to a diverse group of individuals and families.
  • In addition to identifying coalitions, the DD Council could also support the mandate by expanding the representation of culturally diverse people with developmental disabilities on established coalitions, boards or committees, which previously lacked such representation.

For additional resources on advocacy, self-advocacy and leadership, visit the NACDD website and
NJCDD Seeks Executive Director
The New Jersey Council on Developmental Disabilities is seeking an Executive Director with strong management skills to provide vision and leadership in advocacy, planning and systems change on behalf of people with developmental disabilities.  Learn more, click on #056-18
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TCDD Seeks Public Policy Director

The Texas Council for Developmental Disabilities (TCDD) is hiring a Public Policy Director. This position is based in Austin, Texas. Learn more
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REMINDER: Registration for the 2018 NACDD Annual Conference week is now open!

You can click here: or here: to register for all events, including the Technical Assistance Institute (TAI) and Chairperson Leadership Training. The 2018 NACDD Annual Conference will be July 9-12, 2018, at the Gaylord National Harbor in Oxon Hill, MD (just outside of Washington, DC!). Please note that the 2018 Conference is from Monday to Thursday rather than Tuesday to Friday.
ITACC Technical Assistance Institute
The ITACC Technical Assistance Institute (TAI) and Chairperson Leadership Training will be July 9-10. More information to come.  
Using Data to Tell Your Story
DD Network
I often use the quote, “Data makes you credible, stories make you memorable.” I don’t know who deserves the credit for that quote, but it sure comes in handy in Council work! When we are working toward systems change, we often use stories and anecdotal evidence to make our case as to why a change is needed. But having hard data that is credible makes the case stronger. People often call NACDD looking for the best data sources and we are always committed to getting that information for you. If you are attending our Technical Assistance Institute (TAI) this summer, you will walk away with plenty of data and knowledge on how to find the sources you need to make your case locally that will impact the change you need.

To this end, NACDD is working very closely with the National Core Indicators (NCI) data team to bring you monthly “Data Nuggets” that will appear each month in Field Notes. We hope that you will utilize these nuggets as you educate your Council members, grantees, policymakers, and state/territorial partners. Each month’s data nugget will relate to trending issues that we know you are grappling with at the State level like Home and Community Based Settings, employment, social determinants of health and more. While we know that you have direct access to viewing NCI and other data sets, it is our hope that by sharing it in small chunks with thoughts about how to use the data, it will better support you in achieving your State Plan goals and activities. As always, I will welcome your feedback!

Happy data mining!

See below for this month's DATA "Nugget"
DATA "Nugget" 
National Core Indicators (NCI) is a collaborative effort between the National Association of State Directors of Developmental Disabilities ( NASDDDS ) and the Human Services Research Institute ( HSRI ). The NCI is a voluntary effort by public developmental disabilities agencies to measure and track their own performance.

The data derived from NCI reports, data briefs and surveys can be used to identify trends, compare results across states and educate the public on issues of importance to people with developmental disabilities and their families. To see what NCI data shows about Friendship and Life Outcomes for Adults with Intellectual and Developmental Disabilities and other topics such as employment and service delivery, click below.
DD Council Highlight ~ Washington State Developmental Disabilities Council
The Washington State DD Council created this video tutorial, Preparing for your CARE Assessment, to demystify the process and empower individuals to be active participants in planning services and supports that reflect their individual preferences, strengths, interests and goals. The Council thanks the Developmental Disabilities Administration for collaborating on the content, parent advocates for providing their most often asked questions and confusions about this annual assessment, the Informing Families Advisory Board members and Grier Jewel, the editor and producer.

Informing Families Today and Tomorrow: a resource of the DD Council 

For more information, visit the Informing Families website.
To reach NACDD/ITACC staff, please feel free to contact:

Sheryl Matney
Director of Technical Assistance 
(202) 506-5813 ext. 148,

Angela Castillo-Epps
Technical Assistance Specialist 
(202) 506-5813 ext. 100,