Forms to be Revised

Over the next month the CIBMTR will begin revising the next set of data collection forms, and we would like to ask for your help.  The forms to be revised include:
2016 - Multiple Myeloma/ Plasma Cell Leukemia Pre-HCT Data
2116 - Multiple Myeloma/ Plasma Cell Leukemia Post-HCT Data
2402 - Pre-Transplant Essential Data: Disease Classification (Myeloma/PCD Section ONLY)
The goal of the revision process is to ensure the forms are capturing all currently relevant data, particularly where new definitions or tests have been accepted for use in the field. When reviewing the forms we also keep in mind the length of the form and burden to data professionals. There are 2 ways in which you can contribute:

  1. Submit suggestions for form changes. To do this, please review the forms, and send any suggested improvements to your CIBMTR CRC. This can include clarification around questions, adding new data points, or reformatting the way something is captured.  All suggestions will be reviewed. 
  2. Volunteer for a Form Revision Committee.  Representation from data managers is a valuable part of the revision process. Participation on a committee includes reviewing the forms weekly via conference call, and determining the content changes needed. We expect that each form will require about 3 meetings to complete, but will adjust as needed.  Meetings will begin in January and are scheduled for January 14, January 24, January 31, and February 7. 
Please submit suggestions or questions to Stephanie Meyers and Rachael Latchana at, or volunteer for a committee by December 31, 2018.

Best Regards,
Data Operations