OpenNotes is an international movement advocating for greater transparency in healthcare.

August 2024

The Washington Post: "Online portals deliver scary health news before doctors can weigh in"

"Sometimes we underestimate what patients can handle. For every oncologist we heard from saying this is a problem, cancer is different, we heard from patients with cancer saying I would rather get my results at home where I can think about it, process it, discuss it with my family and be ready to have a conversation with the provider."—Cait DesRoches, DrPH, Associate Professor of Medicine, Harvard Medical School, Director, OpenNotes. Read more (paywall).

OpenNotes Lab: Removing Barriers to Reading Clinical Notes

The OpenNotes Lab Large Language Model Translation Learning Collaborative (LLM TLC) aims to improve clinical note accessibility using AI-powered language translation tools. Learn more.

Illustration of patients care partners and clinicians talking

New OpenNotes Publications

When bad news comes through the portal: Strengthening trust and guiding patients when they receive bad results before their clinicians

Salmi L, Hubbard J, McFarland D. When bad news comes through the portal: Strengthening trust and guiding patients when they receive bad results before their clinicians. Am Soc Clin Oncol Educ Book. 2024;44(3).

American Society of Clinical Oncology (ASCO) Publications

Shared Access to Adults' Patient Portals: A Secret Shopper Exercise

Wachenheim D, Hurwitz I, Dukhanin V, Wolff J, DesRoches CM. Shared access to adults’ patient portals: A secret shopper exercise. Applied Clinical Informatics. Published online July 22, 2024. doi:10.1055/a-2370-2220

Patient portals fail to collect structured information about who else is involved in a person’s care

Salmi L, Peereboom D, Dorr D, Graham L, Wolff J, DesRoches C. J Med Internet Res. 2024;26: e49394.

Journal of Medical Internet Researcher (JMIR)

Identifying research priorities and essential elements of palliative care services for people facing malignant brain tumors

Salmi L, Otis-Green S, Hayden A, Taylor LP, Reblin M, Kwan BM. Neuro-Oncology Practice. Published online June 19, 2024. doi:10.1093/nop/npae052

OpenNotes Lab Names Deputy Director

We're thrilled to announce Amanda Norris, MDiv, MTS, as the new Deputy Director for the OpenNotes Lab. Amanda brings extensive experience in organizational communications and strategic planning. Read more.

Peering through a 55-year Retrospectoscope with Tom Delbanco, MD

What links “the world’s most beautiful” violin, a Salzburg schloss, and a bank president who curses a lot? All are covered in this inspiring talk from OpenNotes co-founder, Tom Delbanco. Watch now.

Advocating for Healthcare Transparency at an International Scale

Liz Salmi discusses the transformative impact of OpenNotes at an international scale in her presentation in Sydney, Australia. Watch now.

Interview: Catherine M. DesRoches, DrPH, and the OpenNotes Revolution

Cait DesRoches discusses bringing patient and family voices into health services research and the next phase of the OpenNotes revolution. Listen to the North of Patient podcast episode now.

Social Media Spotlight

What happens at the AcademyHealth Dissemination & Implementation conference... gets disseminated everywhere! Naturally.

Did you know The Light Collective is one of the first official partners of the OpenNotes Lab? Check out our early partners here.

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