Now on YouTube: Watch Our Recent Scleroderma-ILD Webinar Session 

The full recording of "Staying Ahead of Scleroderma-ILD: Understanding Treatment and Progression” is now live on the SRF YouTube channel—including the Q&A session, where attendees received answers straight from our featured expert, Toby Maher, MD, PhD (Professor of Clinical Medicine at Keck School of Medicine at the University of Southern California). 



At the webinar, Dr. Maher covered how SSc-ILD progression is recognized, the signs patients and clinicians watch for, and how that recognition shapes treatment decisions. 

Next week, we’re excited to gather at Cool Comedy • Hot Cuisine in Los Angeles where all attendees will join us to #SayScleroderma and raise critical funds for research.

This star-studded event is way more than a party. It's a platform that propels scleroderma and the need for a cure into the national spotlight. Hear more about the lineup from CCHC host, Jeff Ross, in his Instagram video.

Can't join us in the room? You can still get in on the action by proxy bidding on this year's live auction packages, and we'll raise your paddle for you!

There are some incredible items to bid on, including this unforgettable experience for the ultimate John Mayer fan.

Click below to view the complete Live Auction preview and submit your proxy bid.

Event Co-Chairs: Susan Feniger, Regina Hall, Caroline Hirsch, John Mayer, Kelly Rizzo

Presenting Sponsors: Max, Samantha, Montana, and Mark Scher; Wright & Evnin Family Foundation

Honoring Sharon Monsky's Enduring Legacy on Her Birthday 

Every October 23, we celebrate the birthday of Sharon Monsky, our late founder who built the Scleroderma Research Foundation around a simple belief: research is the best hope for a cure. 

Sharon knew she likely wouldn't see a cure in her own lifetime, but that didn't stop her from tirelessly pursuing that goal for others in the community.

Next year marks 40 years since Sharon founded the SRF, launching an organization that would eventually become the nation’s leading nonprofit funder of scleroderma research. 

“The leadership and progress over the last 40 years is just astounding to see today,” Mark Scher, who co-founded the SRF with his then-wife, Sharon, and who serves on its Board. “The SRF is truly a first-class organization that is changing the face of disease research, not just for scleroderma but for other related diseases as well.” 

As we head toward our 40-year milestone, we're looking back at where it all began. In 1988, Sharon appeared on CBS News Nightwatch to talk about scleroderma and why research holds the key to a cure. Watch the clip here.

Sharon's vision still drives everything we do here at the SRF, and there's a lasting way to be part of it. Joining the Sharon Monsky Legacy Society through a planned gift helps ensure scleroderma research keeps moving forward, long into the future. 

Have you already included the SRF in your estate plans? Let us know using our notification form—we'd love the chance to thank you.

Upcoming Community Events

Current Research Opportunities for the Scleroderma Community

Research teams across the world are currently looking for participants from the scleroderma community for the studies below. While the SRF is not affiliated with these studies, they may be of interest to people living with scleroderma and caregivers who want to take part in research.

You'll find eligibility details and participation requirements at each link below.

Study Name: Survey on Autoimmune Treatment Access

Sponsoring Institution: Medical University of South Carolina

 PI: Kimberly Hashemi, MD 

For Info Contact: bowerman@musc.edu

Study Name: SkleroCARE – Scleroderma Caregiver Survey

Sponsoring Institution: European Center for the Rehabilitation of Scleroderma 

PI: Zorica Suica, PT, MSc 

For Info Contact: z.suica@reha-rhf.ch

Study Name: A Diet Study for Scleroderma GI Symptoms

Sponsoring Institution: University of Michigan Scleroderma Program 

PI: Dinesh Khanna, MD, MSc 

For Info Contact: ssc-coordinator@umich.edu

Study Name: Autoimmune Diseases and Ketogenic and Very-Low Carbohydrate Diets Survey

Sponsoring Institution: University of Nottingham 

PI: Gordon Moran, MD, PhD

For Info Contact: joseph.whittaker@nottingham.ac.uk

The SRF Cure Crew: Making Scleroderma Part of the Conversation

Building scleroderma awareness doesn't require a grand gesture. Sometimes it starts with a single conversation: a text to a friend, a post shared online, an invitation for the people in your life to learn something new about this rare disease and how it affects those who live with it. 

The SRF Cure Crew turns these moments of connection into a movement. The Cure Crew is the SRF’s grassroots network of volunteers, driven by a shared passion for finding a cure for scleroderma. Their conversations take many forms, from personal fundraisers to public stories, and each one helps grow this dedicated community. 

Your Scleroderma Questions, Answered

Scleroderma Research in the News

Check out the latest research updates from the wider community this month. While we didn't fund these projects, we're encouraged to see a continued focus on understanding scleroderma.

Inhaled therapy for Raynaud’s attacks put on FDA fast track

ILC2 and G-MDSC Interactions May Drive Fibrosis in Systemic Sclerosis

Experimental Study Points to Systemic Sclerosis Treatment

Routine blood test may help flag lung disease risk in diffuse SSc, study says

Study links cancer in scleroderma to timing and autoantibodies