From the Editor

If you are a parent or family member of a person with a disability, you have probably advocated for them, from school concerns to medical needs, to daily living issues, housing needs, employment, or community involvement.


An advocate is someone who speaks or negotiates for a desirable outcome for themselves or others. In this issue, we explore a couple types of advocacy that Starbridge helps to facilitate.  


As I am working on this issue, I am reminded of the level of commitment and expertise our Starbridge advocates offer. Whether advocating for a desired school outcome or advocating for adult skill development, our advocates help educate and guide, in partnership with the person themselves and their families, to achieve life-changing results!



Does your loved one need to make a change to better their life? Read on for examples of how to advocate for them and seek the resources you may need to support them and yourself.



Best to you and yours,


Maria Schaertel

Educational Advocacy

Celina Antonetti is a Starbridge Educational Advocate.


As an Educational Advocate, what are some of the trends you have observed in your work?

“I have seen a trend of school avoidance and many behavior challenges among students. Parents have also reported that the schools are giving them pushback when requesting evaluations, which are necessary to help prove the need for services."



What is your approach to working with schools to ensure that we are supporting a family’s request for services?

Collaboration is key. As an advocate, I communicate respectfully with school personnel and state the family’s request, always keeping in mind the school’s resources and the student’s needs. For example, we examine the IEP (Individualized Education Program) together and may make changes to the document to reflect any changes in service that need to be made. 


What are we doing as an agency to be collaborative in response to families’ non-school issues?

"As an agency, we connect and collaborate with many different agencies. So for example, if I am working with a family, and the student is having some mental health concerns, if it is an emergency concern, I may suggest they head over to an emergency room. If it is a non-emergency, I may help them make a referral through the MyWayfinder website or I may reach out and connect them with one of our mental health resources I think will be of help to them."


Do you guide students in self-advocacy for their education?

"I personally encourage parents in allowing their child to be involved in their CSE meetings so that they can have a voice in their education."

Enterrica Bates is one of the parents that Celina has worked with recently.


“Some of my concerns included getting behavioral supports within school, getting connected to special education, getting connected to the CSE chairperson, switching from an outside district placement to inside district, and getting learning disability supports within a general education classroom."


"Celina helped me by giving me advice and supports, helping me navigate the system, and directing me to the right people so I could get started with getting my son an IEP (Individualized Education Program) and supports within the classroom before our CSE (Committee on Special Education) meeting."


"After working with Celina, I am better able to advocate for my son. I know what to say on a more professional level. I know who to speak to and what to say in regards to my son. Before, I was unknowledgeable of how to advocate for my son's needs. My son was denied services at the CPSE (Committee on Preschool Special Education) meeting even though he was diagnosed and has a few disabilities that would keep him from succeeding in school. But since working with Celina, I had a much more successful CSE meeting.”  



Advocating for Services through Community Habilitation (Com Hab)

Starbridge Com Hab Specialist, Linda Looney, has been working with Jane, who would like to remain anonymous, for almost three years. Linda supports Jane in the areas of health, wellness, and community inclusion.


Jane had been resistant to receiving support with exams and tests such as colonoscopies and mammograms. Linda has worked hard to help Jane understand the importance of these preventive health measures. Jane has Autism, a cognitive disability, and Crohn’s disease (a chronic condition that causes inflammation in the digestive system). Crohn’s disease can be difficult to manage, so it was especially important that Jane got support. 


Linda has partnered with Jane’s mother, Gloria, in advocating for positive change in Jane’s life. “My daughter is living in an apartment on her own. When she moved in, I didn't think she was ready to live on her own. Linda and I work together to support Jane in her desire to be independent. Jane wants nothing more than to prove to the world that she can do it! Linda is fantastic. She puts her heart and soul into her work. Linda has gained Jane’s confidence; in return, Jane was able to open up and be able to attend her medical appointments and undergo routine medical tests.”


To encourage wellness, Linda and Jane walk as much as possible for exercise. And Linda reminds Jane about her dietary limits. “Jane loves going out to eat either breakfast or lunch. I remind her if she can't finish, to get a box to go. Certain foods bother her stomach, so I encourage her not to eat them."


"Jane now loves going out into the community. It has taken quite a while for her to feel comfortable with talking about her struggles with Crohn's."


"I think the team approach with her mom has helped immensely. I have been a social worker for over 40 years and this is just what I do. I'm so happy that I get to work with Jane because she really needs the attention and expertise I can offer."


"Jane lived in group home settings for most of her adult life. Com Hab has 100 percent helped her in many respects; this is such a needed service not just for community inclusion but for assistance with living independently successfully. For the future, since her mom is aging, it will continue to be a needed service.”

A Word of Hope


“Those of us who hope are sojourners from the future in the now, who have come to inspire those in the present of what possibilities await us if we are willing to believe differently today!”


- Adrian I. Hale, Regent, 7th Judicial District NYS Board of Regents and keynote speaker for the upcoming Hope conference. See below for conference details. 

“Hope is a shining light that brings the world out of its darkness. It gives guidance down a tunnel of difficulty and hardship. It allows the people to believe that there is greater ahead. I charge any and everyone reading this newsletter to take the responsibility to keep hope alive. Without it we are left in the dark without direction, zeal, and enthusiasm for our next generation. Let’s all take the charge to keep the shining light of hope alive. Our today and tomorrow depend on it.”


- Isaiah Santiago: Commissioner of Education, Rochester City School District; Regional Director for a national election campaign; and panelist for the upcoming Hope conference. See below for conference details.

At Starbridge, we believe that HOPE changes outcomes. It’s more than just a feeling—it’s the fuel that keeps you moving forward, even when the road gets tough. Hope gives you the motivation and strength to keep going, helping you see new possibilities and stay focused on your goals. Come listen, learn, and explore how HOPE can be the game changer in all our lives at the Bridging the Hope and How Conference!

 

Join us for an interactive day of connection filled with speakers, breakout sessions, and a panel to explore the HOPE and the HOW on November 21, 9am-4pm, Monroe Community College.

 

-Our morning of "Hope" will inspire you by learning the science behind hope and how it drives progress.

 

-Our afternoon of "How" will provide everyday tools to turn that hope into reality for you and the people you support.

 

Don’t miss this opportunity to create positive change and new possibilities.

Widening the Circle

Monica Daniel Gil is owner and Director of Amazonia Day Camp, the first bilingual summer day camp, located in Rochester, NY, serving children 4 to 10 years old. 


Share with us your journey to Rochester and the evolution of Amazonia Day Camp.

"I started my first camp in 2006 at home in my country of Venezuela while working as a lead teacher. After moving to the USA in 2014, I volunteered as a teacher at the University of Houston to practice my English and gain valuable teaching experience while I was a student."


"In 2017, we moved to Rochester and I had the experience to work in different daycares and schools as a lead teacher and Spanish teacher."


"It was after the pandemic that I began developing my camp project to provide a nurturing environment that embraces children of all abilities. While my camp officially started a few years ago, the vision and commitment to this idea have been growing since then, driven by my dedication to my children's well-being and a desire to support other families in similar situations."

 

Do you offer any fall or winter activities?

"Yes, we offer seasonal activities throughout the year. On days when the school district is off, we organize one-day camps, from 9:00am to 4:00pm. For the past two years, we have successfully hosted a Halloween day camp, which has become a popular tradition. Due to increasing requests from parents for more events, we are planning to expand our offerings and are currently preparing to launch an Easter camp next year. Our goal is to provide enriching experiences year-round for the kids."

 

Is it too early to register for next summer’s camp? When does registration open?

"It is not too early to start planning for next summer! We usually begin promoting our summer camp during Black Friday, but this year, we are planning to open registration in January, offering our biggest deal of the season. We will be sharing promotions during Black Friday and December so parents can prepare to register when the new year starts. Additionally, we offer flexible payment plans, making it easier for families to secure their spot early and manage costs over time."


What is your educational approach to children who have disabilities?

"Our educational approach focuses on fostering inclusivity, empathy, and acceptance. We believe it is important not only to support children with disabilities but also to teach all children and families to be more inclusive and understanding of each other’s differences. By encouraging kids to work together and celebrate diversity, we create an environment where everyone feels valued."


"We also focus on helping children develop social skills and emotional awareness, ensuring that they grow in their ability to relate to and support their peers. This holistic approach prepares children to be compassionate and respectful individuals both in camp and beyond."

 

As a teacher, you are accustomed to teaching children. But, from your experience, what do the children teach you?

“Children have taught me so much, both as a teacher and as a parent. My own kids, for example, have shown me that every child learns in their own unique way. They have taught me that even when they are frustrated, not doing something perfectly, or not wanting to participate in one activity, they do not give up on each other. Instead, they find ways to help one another through difficult moments, showing incredible empathy and understanding. Rather than fearing differences, they embrace them.”


For further information, please see https://amazoniadaycamp.com/

Location: Grand View Lodge (Powder Mills Park), 49 Woolston Road, Pittsford, NY 14534

Have questions? Call or text +1 (832) 799-7268, or email info@amazoniadaycamp.com

Go Monroe - Transportation

School meetings, community & recreational events, even just going out as a family for fun…Go Monroe can help!


Click on Go Monroe for further info and Eligibility Requirements.


Contact us today to learn more or to apply! Contact Jessy May at (585) 224-7250 or jmay@starbridgeinc.org


Additional Resources


From Emotions to Advocacy: The Special Education Survival Guide - pdf with excerpts from the book


Special Education in Plain Education


Advocacy and Self-Advocacy – Starbridge website documents and links


Starbridge Fall Workshops - Features a wide variety of workshops and webinars to help you advocate, including our Family Empowerment Series!



For additional resources, please call the Starbridge Intake Line at (585) 224-7359.

STARBRIDGE | starbridgeinc.org

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