A mother’s story: the nightmare in the leaf pile

For Isabel Rose, what began as a carefree childhood leap into a leaf pile became the start of a medical nightmare.

Read her account of how a tick bite at age 8 led to decades of misdiagnosis and chronic illness.

It took years to discover she had Lyme disease and co-infections--and had unknowingly passed them on to her children.

What more than 19,000 patients taught us about Lyme disease

The 2025 MyLymeData Research Chartbook is here, capturing insights from over 19,000 patients who shared their Lyme disease experiences.

This milestone report distills 10 years of patient-led research into powerful visuals and key findings that are shaping the future of Lyme-related science.

LEARN MORE AND

DOWNLOAD YOUR OWN COPY OF THIS REPORT

PATHOBIOME PERSPECTIVES: New interview series premiers Nov. 11

Hosted by patient advocate Ali Moresco, the series explores the role of infections and the microbiome in such conditions as Alzheimer’s, Parkinson’s, Lyme disease, and long COVID.

Episodes feature conversations with researchers working to advance understanding of infection-associated chronic illness (IACI). READ MORE

More news and features

New coalition pushes for federal action on infection-triggered brain disorders

Nov. 12 info session prepares you for Feb. 18 Lyme Advocacy Day

Navigating disability insurance for Lyme disease

Titanium and tenacity: one woman’s fight for Lyme patients everywhere

Lyme and neuropathy: How to ease nerve pain, tingling, and weakness

Lyme Education Calendar

LymeDisease.org is a 501(c)(3) nonprofit organization dedicated to empowering the Lyme disease community. We represent hundreds of thousands of patients nationwide, providing them with essential tools, resources, and support. Our communications network is among the most extensive and trusted in the country, helping to amplify the patient voice, advance patient-centered research, and drive meaningful change in healthcare policy.

Learn more at www.lymedisease.org.