Fundraising Spotlight
This holiday season send the gift of Hope. There are two ways that you can help us work towards finding a cure. Purchase a limited edition ornament and order your holiday cards through Minted.com.
All proceeds will benefit SDS patients and their families!
Shwachman-Diamond Syndrome Foundation
FOUNDER: Joan Mowery 1994

BOARD OF DIRECTORS

Joan Mowery, President
Mary Balint, Secretary
Bryan Sample, Treasurer
Christian Del Ré, Communications Chair
Stephanie Gregoretti, Fundraising Chair
Nicole Shen, Membership Chair
Jenni Wachter, Webmaster
Carolina Cordova
Michelle Grenell
Savannah Lillywhite
Scott Miller


Pamela Miller, Executive Director

Other Amazing Leaders

Joyce Wall - Anna Angel Basket Coordinator
Maura Donahue - Advisor to the Board
Jess Johnson

ATTORNEY: Ann Bodewes Stephens, Herzog Crebs


Have an article, update, or fundraising activity you would like to share in a future newsletter? Email your story to:

We would love to hear from you and share your stories!
Shwachman-Diamond Syndrome Foundation
888-825-7373