June 20, 2017 - In This Issue:
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Get Ready for the 2016 National Survey of Children's Health!
As you may know, the National Survey of Children's Health (NSCH), sponsored by the Maternal and Child Health Bureau, was recently redesigned and administered again in 2016. Major changes to the  NSCH  include:

  • A switch from telephone to web-based and paper/pencil survey administration
  • Survey administration by the Census Bureau
  • Yearly administration of the survey going forward; state-level data available every 2-3 years
  • New items as a result of combining the NSCH and National Survey of Children with Special Health Care Needs 
 
In conjunction with the Maternal and Child Health Bureau, the CAHMI anticipates making the data available both on our interactive data query and as downloadable data sets after Labor Day this year. In the meantime, you can prepare for the data release using the following  supporting documents designed by the CAHMI:
Also available are links to the 2016 NSCH questionnaires in both English and Spanish. Additional NSCH supporting documents will be available later this summer, including updated FAQs and Fast Facts. The NSCH is a rich source of national and state-level data on children, adolescents, and their families, and these documents will help you prepare to use the survey data in your own research, programming, and policy!
Come Join Us at AcademyHealth's 2017 Annual Research Meeting!
Booth #416 and Presentations & Posters!
This year's  will take place in New Orleans, LA, at the Hyatt Regency from June 25-27th. P lease come visit us at  Booth #416  in the Elite Hall on Sunday and Monday, and check out CAHMI's oral and poster presentations at ARM as well as the pre-conference Interest Group (IG) meetings, listed below.  We look forward to seeing you there! 

Saturday, June 24th (IG meetings):
  • 8:30-9:30 AM, Strand 12: Quality and Value IG: Improving Organizational Safety, Quality, and Value
    • Advancing Improvements in MCH Outcomes Using Local Area Estimates and the 2016 National Survey of Children's Health: An Overview of Methods and Field Applications (oral presentation)
  • 12:30-2:30 PM, Elite Hall: Joint IG Poster Session
    • Building the Field to Address Adverse Childhood Experiences and Promote Wellbeing in Pediatrics (Child Health Services Research IG, Poster #23) 
    • The Effects of Positive Experiences on Child Health and Flourishing in the Face of Adversity: Results from the National Survey of Children's Health (Disparities IG, Poster #55)
    • Quality Improvement in Ambulatory Pediatric Care: Implementing Parent-Centered Online Tools to Improve Quality and Outcomes of Well Child Care (Health IT IG, Poster #103)
Sunday, June 25th:
  • 12:15-1:45 PM, Elite Hall: Poster Session A
    • The Effects of Positive Experiences on Child Health and Flourishing in the Face of Adversity: Results from the National Survey of Children's Health (Maternal, Child, and Family Health, Poster #277)
Monday, June 26th:
  • 8:00-9:15 AM, Elite Hall: Poster Session B
    • Advancing Improvements in MCH Outcomes Using Local Area Estimates and the 2016 National Survey of Children's Health: An Overview of Methods and Field Applications (Methods Research, Poster #674)
    • Quality Improvement in Ambulatory Pediatric Care: Implementing Parent-Centered Online Tools to Improve Quality and Outcomes of Well Child Care (Improving Safety, Quality, and Value, Poster #518)
  •  6:30-8:00 PM, Elite Hall: Poster Session C
    • Building the Field to Address Adverse Childhood Experiences and Promote Wellbeing in Pediatrics  (Public and Population Health,  Poster #1214)
To learn more about CAHMI's resources at the ARM, contact Gabriella Rosenberg at grosen10@jhu.edu.
Be Our Voice to Put Data into Action!

We need your help to spread the word about the upcoming data release of the 2016 National Survey of Children's Health!
As detailed above, data from the 2016 NSCH will be available after Labor Day. In the meantime, we need your help to make sure that everyone not only knows about the upcoming release but can also identify how these data can be used in their work. You can help by:
  • Disseminating NSCH supporting materials
  • Forwarding our newsletter and/or including briefs about the upcoming data release in your own materials
  • Engaging with the CAHMI on Twitter and Facebook
  • Including slides about the NSCH in your own presentations and trainings (these can be provided by the CAHMI)
If you are willing to help with any of the items mentioned above, please email Kate Powers at kpower13@jhu.edu so we can provide you with all the necessary tools and information. We can also provide customized resources for your particular needs. Help us share these valuable resources with your network to promote child, youth, and family health!
Partnering with Help Me Grow to Engage Families in their Child's Care and Well-Being!

The  CAHMI  is happy to share a new partnership with the  Help Me Grow  (HMG) National Center. In this partnership, the CAHMI will leverage its  Well-Visit Planner  (WVP) to provide support for HMG affiliate sites to engage families, communities, and child health providers in promoting children's healthy development. 

The Well Visit Planner is an online pre-visit planning and education tool (based on the American Academy of Pediatrics' Bright Futures guidelines) that promotes family engagement and  h elps parents of children ages four months to six years learn about and plan for their child's next preventive care visit. The WVP does so by allowing parents to reflect on their child's and family's strengths and needs; answer standardized questions about their child's development, family, and context; learn about and choose priorities for discussion; and get a personalized visit guide to share with their health care team.  The personalized visit guide will give families an overview of their responses, show their selected priorities, and provide resources and examples of questions to ask their child's health care provider. Families are able to access this tool both in standard online and mobile-optimized formats, expanding its potential reach. HMG and provider partners can receive population-based reports summarizing strengths, needs, and priorities across their families.

In this project, the WVP will be implemented in six HMG sites in four states: Alabama, California, Florida, and South Carolina. Throughout the implementation period, the CAHMI will establish a HMG/site-specific portal and provide training and technical assistance to support the implementation of the Well-Visit Planner and evaluation of this pilot project. This collaborative project will be implemented over the next nine months. An advisory committee will also be utilized to support implementation and further the development and use of technological innovations like the WVP to support family engagement in order to optimize child and family healthy development and well-being.

For more information on how your organization or practice can implement the Well-Visit Planner and CAHMI's Cycle of Engagement, please contact Kara Skelton at kskelton@cahmi.org
Child Well-Being and Adverse Childhood Experiences: Resources

As part of our focus on preventing and reducing the impacts of childhood trauma and promoting the positive health and well-being of children and their families, the CAHMI was involved in the publication of two new reports in the field of positive health. The first, co-authored with Child Trends, " Flourishing from the Start: What is it and How Can it be Measured?" focuses on the  need to accurately define, measure, and monitor, "flourishing" in order to best promote and improve child health and well-being. The second, sponsored by the Casey Family Foundation, is titled " Balancing ACEs with HOPE." It focuses on data that reinforces the need to promote positive experiences among families and children, particularly those who have dealt with adversity.

The CAHMI has also led the development of a special supplement of Academic Pediatrics on promoting child and family well-being and addressing adverse childhood experiences (ACEs). This supplement will include a national research and action agenda, 13 papers, and 15 commentaries. The papers and commentaries will cover a diverse set of topics within this field, organized into four sections:
  1. Frameworks and measurement
  2. Systems of care and clinical practice
  3. Community and family approaches
  4. Implications for policy
For more information on our work in this area, check out our  ACEs and Posit ive Health page to access the latest publications, presentations, and resources on this topic, as well as NSCH data showing the relationship between  ACEs and positive health among 6-17 year-olds in the US or your state.
Join the MCH Measurement Research Network!

The CAHMI is currently leading the Maternal and Child Health Measurement Research Network (MCH-MRN), a project funded by HRSA/MCHB whose purpose is to advance the availability and effective use of valid and actionable MCH measures to ensure data-driven innovation and shared accountability for improving outcomes and systems performance on behalf of the nation's children, youth, and families. And we'd love for you to join us! Please fill out this brief sign-up form and someone will be in touch.

Currently available on the DRC website is our Maternal and Child Health (MCH) Measurement Portal. Through this portal you can search the over 800 measures of maternal and child health represented across a range of existing MCH programs in the US. Explore these in the interactive MCH Measures Compendium, which will be updated over time. The compendium allows users to quickly sort through measures by measure set, data source, topic, key word, and more. Users can also find at-a-glance, summary profiles of the MCH program measure sets and initiatives in the compendium, which include Title V, Medicaid/CHIP, Healthy People 2020, Child Welfare, the Pediatric Quality Measurement Program measures, and more. 

The MCH-MRN is currently in the process of launching several Technical Working Groups (TWGs) on on an array of topics in the field which need to be better addressed. These include: Family Health, ACEs & Positive Health, Social Determinants of Health/Preventive Care, and Local Area Estimation, among others. If you are interested in any of these TWGs, or in starting your own, please let us know on the sign-up form or by contacting Caitlin Murphy at cmurphy@cahmi.org. We also welcome your input on our MCH-MRN framework, compendium, and strategic agenda.
Meet our New CAHMI Team Member!

Kara Skelton, CAHMI's new Research Program Manager, comes to us bringing over 8 years of experience in community health promotion, concentrating on maternal and child health nutrition. In her previous research, she worked to improve program design and implementation for child and adolescent education and health-related programs by partnering with an array of organizations, schools and institutes to provide survey development, data management and analysis, and evaluation. Mrs. Skelton is in the final stages of dissertation research for her Ph.D. in Health Education and Promotion from the School of Public Health at the University of Alabama at Birmingham; she also holds a Masters in Community Health Education/Promotion. At home, she enjoys spending time with her husband and her two children.  
New AMCHP Report: National Profile of Title V CYSHCN Programs! 

The Association of Maternal & Child Health Programs (a CAHMI partner) released a new report that explores how state agencies dedicated to serving children and youth with special health care needs (CYSHCN) carry out their mission and how their leaders believe they can improve their systems of care. Based on a survey of state and territorial agencies that provide services with federal Title V funding, the  National Title V Children and Youth with Special Health Care Needs Program Profile  offers insight into the structure and strengths of CYSHCN programs, the roles they play in systems of care, their partnerships, financing of care, and emerging issues.

Click here for the report. For more information about CYSHCN, visit www.amchp.org/programsandtopics/CYSHCN/