Hi Cure,

As you know, AS is a rare disorder with very specific features and challenges. This makes each of our loved ones their own unique unicorns 💙. But that also means it  can be hard for people they interact with who aren't familiar with AS — doctors, therapists, teachers, even family members — to understand. To help, we put together a one-stop-shop of a pamphlet, which includes both basics about the disorder, as well as a window into why (and how!) we believe it can be treated. 

If you fill out the form below, we will take care of the rest! 

As always — thank you for being a part of our FAST family. 

If you have updates you would like to be included in next week’s newsletter, please email us at info@cureangelman.org.

Last week, members of FAST’s scientific team attended the American Society of Gene & Cell Therapy’s (ASGCT) annual scientific meeting. This is the largest gene and cell therapy conference in the world with over 8000 brilliant minds estimated to be present, all coming together to improve genetic therapies for patients! The team was excited to meet like-minded individuals and share the recent advances in Angelman syndrome drug development with those working at the cutting edge. By creating awareness and visibility in these arenas the most innovative collaborations are created, adding novel advancements to our ecosystem.

Read the recap of the annual meeting here:

Dr. Barbara Bailus, the chair of our Scientific Advisory Board recently received the Faculty Research Award, which is an accolade that recognizes a faculty in the Riggs School of Applied Life Sciences who has made outstanding contributions in the area of research and scholarship in their field of study.

Dr. Bailus was awarded for her FAST-FUNDED work aiming to develop novel delivery approaches for therapeutics to the brain in Angelman syndrome.  

Learn more about Dr. Bailus’ grant:

FAST Facts with Dr. Easton Bryant, PharmD is an accessible — and shareable! — way to get educated about Angelman syndrome and receive information to make informed decisions for your loved ones who live with AS. 

ICYMI: Catch Easton’s videos on social media (Facebook, Instagram, TikTok) or view the full library on our YouTube Playlist!

Have a topic you want him to create a video on? Email us at info@cureangelman.org!

FAST has created a 4-fold pamphlet to help educate care teams and community members about Angelman syndrome and our strategic Roadmap to a Cure.

• For families: These are great to help educate your donors, genetics office, doctors, therapists, and care team about how to engage with, support, and imagine the future for those living with AS.

• For professionals: Help us get this pamphlet into clinics / hospitals that diagnose new families and/or offer continued care to individuals living with AS.

Please fill out this Google form and we’ll send a small batch of pamphlets to distribute:

Thanks for reading, and please share this link with anyone in your network who would be interested in receiving our weekly newsletter.