Siblings of children and young adults who have CHARGE syndrome will share their stories about growing up with a brother or sister who has CHARGE. The panelists will talk about how they communicate with their sibling; what makes them happy, sad, frustrated, or worried about their sibling; favorite things to do with their sibling; what has helped them better understand their sibling; and tips they would share with other siblings.
Jack - 13 years old; his sister who has CHARGE is 15 years old
Alex - 16 years old; his brother who has CHARGE is 18 years old
Anmol - 13 years old; his brother who has CHARGE is 19 years old.
A question and answer period will follow the siblings' stories.
Whether you are a sibling, parent, grandparent, or other relative of an individual with CHARGE, we hope you will please join us for this webinar! Gaining perspectives from other families' experiences can be very helpful in creating your own plans for a happy, productive and balanced family life.
If a young sibling is attending, we recommend he/she attend with a parent (only one registration is needed if attending together in the same household).
Registration is limited. Priority is given to members of The Foundation if the webinar is full. US & Canada Only.
All webinars will be recorded and available on our website.