ACPMP Research Foundation Newsletter
Fall, 2018
Happy November!

We hope everyone has been enjoying the changing leaves, pumpkins galore, and cooler weather!  Please take a minute to read about what we've been up to and the exciting things that we have planned!

We are so grateful for the organizers, volunteers, and supporters of so many great events that've happened in that last few months. It's people like you that help us raise awareness across the globe, and are helping fund critical research and education for Appendix Cancer and PMP.

Thank you so much and we hope you enjoy the rest of your autumn and winter. And happy early Thanksgiving!

From the volunteers and staff at the ACPMP Research Foundation
What's in this issue...
ACPMP reaches GuideStar Platinum Seal of Transparency
Giving Tuesday - 11/27/18
Current & Upcoming Fundraising Events
Past Fundraising Events
Past Educational Events
Donor Confidence
Rare Disease Reports
Calling All Volunteers!
About Us
The ACPMP Research Foundation is an IRS-designated 501(c)3 charitable organization. We are a predominantly volunteer based organization made up of individuals affected by Appendix Cancer and PMP. Please visit us at  ACPMP Research Foundation for more info.

ACPMP Reaches GuideStar Platinum
Great news! ACPMP  just earned the 2018 Platinum Seal of Transparency from GuideStar , the world's largest source of nonprofit information. By sharing these metrics, we're helping the sector move beyond simplistic financial ratios to assess nonprofit progress.

We chose to display quantitative metrics such as our research grant program, physicians scholarships and educational event sponsorship  to represent how hard we are working towards achieving our mission.
Giving Tuesday 
On November 27th, 2018, ACPMP will celebrate #GivingTuesday by sharing the faces of those who support us and why. Check back to our Giving Tuesday page for our 2018 video!
 
#GivingTuesday is a global day of giving that harnesses the collective power of individuals, communities and organizations to encourage philanthropy and to celebrate generosity worldwide. This year's #GivingTuesday will take place on November 27th and will kick off the giving season by inspiring people to collaborate and give back.
Our goal for Giving Tuesday is to further continue our mission of funding  research to find a cure for Pseudomyxoma Peritonei (PMP), Appendix Cancer, and related Peritoneal Surface Malignancies (PSM), and also continue funding educational programs to educate physicians and patients about these diseases.

Your donation will help fund our next grants in 2019 to find a cure for Appendix Cancer and PMP.
Current and Upcoming Events
 
2nd Annual We Believe (Breakfast with Santa / Candy Cane Lane) 2018
Santa and Mrs. Claus celebrate Christmas and continue to raise awareness for research and education for AC/PMP on  Saturday, December 8, 2018 from 8am to 10am at the Applebee's Grill & Bar at 3219 Street Rd, Bensalem, PA. 

Join Santa and Mrs. Claus for for all-you-can-eat pancakes, sausage, coffee and drinks . Santa will have a special treat for each child. You will have the opportunity to win one of three baskets filled with children's toys and other goodies by purchasing raffle tickets (three for $5.00).

Check out festive lights, holiday cheer, and decorations on  December 15th and 22nd from 6pm to 9pm at 438 Lakeside Drive, Levittown, PA.  Look for the street signs that say "Candy Cane Lane".

For more information about Breakfast with Santa and Candy Cane Lane, to register, or donate go to We Believe!

December 9th Delco We Believe Breakfast with Santa
On Sunday, December 9, 2018
9am to 12pm
Rose Tree Fire Hall
1275 North Providence Road, Media, PA

Another opportunity to join Santa and Mrs. Clause for a yummy breakfast in support of ACPMP! 

You will also have the opportunity to spend time talking and taking pictures with Santa so be sure to remember your letter!  We also ask you to please bring your phone/camera,  so you can take a family photo with Santa!

For more information about Breakfast with Santa, to register, or donate go to Delco We Believe!
Calling All Santas!
Have you, a friend, or maybe even a family member ever dreamt of dressing up as Santa Claus? Yes? No? Well, even if you haven't, maybe you've dreamt of finding a way to help out the ACPMP Research Foundation! For the both the 2018 and 2019 holidays we are looking for individuals to help put on this simple breakfast fundraiser to help support ACPMP. 

For 2019, your local Applebees offers the opportunity to collaborate in hosting this easy breakfast fundraiser. 

Or, if you have another place in mind, great! Let us know how we can help you!

If interested or wanting more information, please email info@acpmp.org. 


Forever Flowers by Carol
Carol Koch has found inspiration by creating "Forever Flowers" as a way to not only bring light to people's lives, but by donating 100% of the profits to ACPMP.

Each "Forever Flower" is handpicked, cre ated, and engraved by Carol herself as a way to spread the love and awareness all around.

Carol and her family have attracted attention all over Chicago and across the globe. They have sold roughly 1,500 flowers and have raised over $38,400 so far, through their Facebook Group and open garages, and have even caught the attention of ABC7 News.  (Click here to watch video). 

The best way to purchase one of these beautiful pieces is by joining their Facebook group: "Forever Flowers by Carol" where they post new pieces, you get to take your pick, and they will ship anywhere in the U.S. (first come first serve)!


Pole-Peddle-Paddle Challenge
Peyton and Casey Jobe pledge to Pole, Peddle and Paddle to raise awareness and funds for AC/PMP in memory of Aly Jobe (Peyton's wife and Casey's mom)

Their Challenge:
  ~ XC Ski 1 mile for every $1K
  ~ Bike 5 miles for every $1.5K
  ~ Kayak 2 miles for every $2K

"This fundraiser exists to give hope and support to my wife, Aly, and to all those suffering from PMP. Selfishly, it also exists to give my own life broader meaning, as well." says Peyton.

Join the challenge at  paddlechallenge.acpmp.org
 
Share on social media and use hashtag #DoGood

Past Fundraising Events
 
5th Annual TEAM KEITH Memorial Pub Crawl
Thank you to everyone who helped make this year's TEAM KEITH Memorial Pub Crawl so successful! On August 18, 2018  in Downtown Naperville, Illinois friends and family crawled for a cure. TEAM KEITH is family and friends coming together in memory of Keith Surges and others who support them.

Keith Surges lost his battle with appendix cancer/peritoneal carcinomatosis (pseudomyxoma peritonei) just 49 months after diagnosis. In his memory, TEAM KEITH continues to work toward helping others with this disease through fundraising, awareness and advocacy.

For more information or to donate, go to  5th Annual Team Keith Pub Crawl

Biking for the Belly 2018

It was a beautiful weekend in Vermont on September 22nd on Lake Champlain honoring the life of Barrett Peterson. Thanks to the Biking for the Belly team and the Peterson family for choosing ACPMP as the recipient of funds raised in Barrett's memory, and congratulations for raising over an astounding $59,000 in their inaugural event!

Visit Biking for the Belly's website for more info, to donate, or support the event sponsors.


Past Educational Events
 
Peritoneal Surface Oncology Group International (PSOGI) Scholarships and Recap 2018
The ACPMP Research Foundation was proud to sponsor and attend the 11th  Annual Workshop on Peritoneal Surface Malignancy in Paris, France on  September 9-11, 2018, represented by President, Jerry Lewandowski, and Communications and Development Manager, Lauren Smith.

This event is related to peritoneal metastases such as PMP and is organized by PSOGI, which promotes research, education and innovations in patient care. This year's event broke the previous attendance record with over 900 participants from countries around the world. With our participation this year, ACPMP has now participated in the last five PSOGI conferences.

For more information and to read the recap, check out ACPMP PSOGI Summary 2018
 

NORD Summit 2018
ACPMP was proud to attend the 2018 NOR D Rare Diseases  and Orphan Produ cts Breakthrough Su mmit a nd was very happy for the opportunity to talk to other groups who attended and learn about various initiatives happening in the rare disease community. ACPMP also recently became a part  of NORD's Rare Cancer Coalition.  We look forward t o continuing to work with  NORD and other rare cancer organizations  in the future!

University of Chicago and Huntsman Cancer Institute PMP/Appendix Cancer Patient-Practitioner Symposiums 2018
This October, ACPMP co-hosted two symposiums: one with Huntsman Cancer Institute on O ctober 2nd and one with The University of Chicago on October 11th. 
These educational symposiums offered updates, information, and support for people dealing with or touched by appendiceal cancer as well as a chance for medical professionals / physicians to continue their education. 

T hank you to Dr. Kiran Turaga and Dr. Laura Lambert for being our keynote speakers, continuing to educate others on AC/PMP, and positively impacting so many patients' lives.
More Information
 
Donor Confidence
ACPMP is pleased to share our Form 990 and our Reviewed Financial Statements from 2017 for public review. Click here to view our Donor Confidence page.

As always, we take financial transparency very seriously and want all of our donors to feel confident that their donations are going to the highest and best use to support research and education for appendix cancer and PMP.
Dr. Laura Lambert and Rare Disease Reports
 
Many, many thanks to ACPMP Professional Advisory Board member, Dr. Laura Lambert, for working with us to prepare rare disease reports for Appendiceal Cancer & Tumors and Goblet Cell Carcinoid for the NORD rare disease database!
Want to help? 
GO BIG or go small. Every bit helps! 

Would you like to get involved in helping to raise funds for valuable Appendix Cancer and PMP research and education? 

Do you want to organize a fundraising event? We can help! Click here to submit our Volunteer form or email us at info@acpmp.org.

We are also looking for volunteer committee members! Let us know if you are interested in serving on one of the following committees: Fundraising, Education, Communication and Marketing, Finance, and Research.

ACPMP Research Foundation

www.acpmp.org

Contact us at info@acpmp.org

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