People living with hepatitis B worldwide are
needed for survey about clinical trials
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Are you living with hepatitis B and interested in guiding future clinical trials for new hepatitis B medicines? Would you like to share your thoughts about current and future clinical trials for hepatitis B? The Hepatitis B Foundation is interested in learning more about your opinion, beliefs and perspectives on participation in clinical trials for new hepatitis B medicines.
Your responses to our anonymous online survey will help inform policy makers and drug developers about how to improve the diversity of participants in clinical trials and eliminate barriers to participation. This will ultimately improve the safety and effectiveness of future hepatitis B medicines. We need as many people as possible to complete the survey to have robust information and recommendations to share with the U.S. Food and Drug Administration (FDA) about how clinical trials can be more inclusive, leaving no one behind.
All responses will be kept anonymous and confidential. The information we share with the FDA will only be presented as a summary.
The 20-minute survey is available in English, French, Tagalog, Marshallese, Mandarin, Vietnamese, Korean, Spanish and Amharic. If you are interested in sharing your opinion, please use this link to participate in the survey. If you have any questions, please email info@hepb.org, and one of our team members will be happy to answer your questions.
Thank you so much in advance for your help!
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New U.S. hepatitis B screening recommendations are out! |
New guidance released March 9 by the U.S. Centers for Disease Control and Prevention that recommends hepatitis B testing of all U.S. adults ages 18 and older will save lives, ultimately, says Chari A. Cohen, DrPH, MPH, president of the Hepatitis B Foundation.
Chari A. Cohen, DrPH, MPH
“The Hepatitis B Foundation is grateful for the advocacy work on this issue by our Hep B United Coalition partners, the many individual advocates nationwide who have been engaged on this issue and the Congressional Hepatitis Coalition, which has been very supportive over the years of hepatitis B initiatives and decreasing HBV-related disparities,” Dr. Cohen said.
For years, the Hepatitis B Foundation has advocated that universal screening is essential to successfully addressing hepatitis B in the U.S. Our team will continue advocacy efforts to encourage the U.S. Preventive Services Task Force to align with CDC’s final recommendation.
Our press release is posted here and the CDC guidelines are here.
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It's imperative that the voices of those living with hepatitis B be heard when making guidelines about treatment.
This is an anonymous survey and will only take about 15 minutes.
Your answers will be used to help inform an update of the World Health Organization (WHO) hepatitis B guidelines.
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B the Voice: Nathaniel's story |
Nathaniel is living with #hepatitisB in Nigeria.
He explains that people don’t talk about hepatitis B where he is from and that makes it harder for people to get tested and treated.
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The purpose and process of storytelling |
The #justB campaign empowers people with lived experience to share their story and use their voice to help increase awareness and advocacy around hepatitis B, combat stigma and discrimination, and encourage more people to get tested, vaccinated and linked to care and treatment.
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Is fasting for Ramadan safe for those living with hepatitis B? |
If you have hepatitis B and you’re considering fasting to lose weight, celebrate Ramadan or “detox” your liver, talk to your doctor first.
Fasting can lower blood sugar, reduce your energy, stress your immune system and be life-threatening for people suffering liver damage from viral hepatitis.
Please read the complete article here.
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Hepatitis D testing: a new place to find testing services |
The Hepatitis B Foundation urges everyone living with hepatitis B talk to their doctor about getting tested for hepatitis D (delta), a virus that is dependent on hepatitis B to survive and impacts between 5% and 10% of people living with hepatitis B around the world.
Hepatitis delta can lead to more serious liver disease than hepatitis B alone. Sometimes, however, locating testing sites for hepatitis delta can be difficult. We encourage you to check out our newly updated Hepatitis Delta Connect page, where we have compiled testing locations and resources in countries where hepatitis D seems to be more common.
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Welcoming an experienced public health professional to our staff |
Florence Gune, MPH, MPA, joined our Philadelphia team recently as public health program coordinator.
Ms. Gune, who earned her Masters of Public Administration degree last year from Rutgers University-Newark, has extensive experience including working for the UN Population Fund and the Yetu Center for African Women in New York City and the Alliance Forum For Development in Kampala, Uganda.
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AASLD Summit: Free for people living with hepatitis B |
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AASLD is offering free registration to those living with hepatitis B, their caregivers and patient advocates. Details and registration are here.
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New "B Heppy" podcast: Hep B related stigma in the Philippines |
In part II of our stigma series, we sit down with Chris Munoz of the Yellow Warriors Society in the Philippines to talk about their hepatitis B work and what he has seen related to hepatitis B stigma and discrimination.
Please listen here. You can find all the podcast episodes here or anywhere you get your podcasts.
AND, if you'd like to suggest a topic for B Heppy, please send an email to info@hepb.org.
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FAQs: I am pregnant: What should I do to protect my baby? |
Pregnant people who have hepatitis B can transmit the virus to their newborns during delivery (due to the blood exchanged during the childbirth process).
Many of these babies will become chronically infected, which increases their risk of serious liver disease later in life. However, we can prevent hepatitis B transmission from mother to baby!
There are a few simple steps you and your doctor can take. Continue reading here.
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Hepatitis B Foundation Gala celebration |
The 2023 Hepatitis B Foundation Gala was a fundraising success and a great opportunity to honor Prof. Stephan Urban with the Blumberg Prize and Dr. Su Wang with the Community Commitment Award. We’d like to thank all of our sponsors and guests for celebrating the essential work of the Hepatitis B Foundation and the wonderful contributions to the hepatitis B community made by these amazing honorees.
Joan Block, RN, BSN (left);
Stephan Urban, PhD (center); and Su Wang, MD, MPH
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Emerging Scholars Scientific and Medical Advisory Board journal article pick of the month |
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Hepatitis B
Wen-Juei Jeng, George V Papatheodoridis, Anna S F Lok.
2023 Feb 9; S0140-6736(22)01468-4. doi: 10.1016/S0140-6736(22)01468-4.
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For March, our presenting emerging scholar is
The article summarizes the epidemiology, virology, pathophysiology, prevention, diagnosis, natural history and management, as well as new therapies in development of hepatitis B. It can provide the effective information to understand the hepatitis B infection, especially from informative and expert scholars.
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April 24-30 World Immunization Week
May - Hepatitis Awareness Month
May 9 - Blumberg Seminar, Nicholas Meanwell - Details
July 28 - World Hepatitis Day
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Learn more about our research and education programs at www.hepb.org
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The Hepatitis B Foundation is a national nonprofit organization dedicated to finding a cure and improving the quality of life for those affected by hepatitis B worldwide. Our commitment includes funding focused research, promoting disease awareness, supporting immunization and treatment initiatives, and serving as the primary source of information for patients and their families, the medical and scientific community, and the general public. |
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Hepatitis B Foundation I 3805 Old Easton Road Doylestown, PA 18902 I
215-489-4900 I info@hepb.org
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