Rare Disease Day, An Exciting Educational Webinar, COVID-19 Vaccines & More!

Happy winter! It's been a few months since we checked in, so we wanted to wish everyone a happy and healthy 2021. The Appendix Cancer PMP Research Foundation has some updates to share including upcoming events, recaps and more. Please check them out below. You can contact us anytime if you have questions or comments, we love hearing from you! Stay warm! ❄

Ways You Can Get Involved NOW:  Mark your calendar for Rare Disease Day February 28th Create a Facebook Fundraiser Shop using Amazon Smile Support us by purchasing swag from our online store Follow us on social media

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Past Events

You Helped Raise $42,306.07 for Appendix Cancer Research & Education! Giving Tuesday 2020 Recap Thank you to those who generously supported the ACPMP Research Foundation on #GivingTuesday and throughout the year. Our community of supporters is unlike any other! You raised $27,306, $15,000 of which was matched thanks to two generous, anonymous donors for a total of $42,306.07 for appendix cancer research & education! THANK YOU for helping us prove that COVID-19 cannot stop GOOD! Giving Tuesday 2020

Upcoming ACPMP Events

Zoom Webinar: "Appendix Cancer in Young Adults: A Distinct Disease Burden" | February 17th | 2PM ET Please join the ACPMP Research Foundation and Andreana N. Holowatyj, PhD, MS, Assistant Professor of Medicine and Cancer Biology, Vanderbilt University Medical Center on February 17th for an educational Zoom webinar. Dr. Holowatyj will present “Appendix Cancer in Young Adults: A Distinct Disease Burden.” This webinar will feature the opportunity for live Q&A. Free to all! Registration required. Will be recorded and available to view after. Register

Save the Date! 15th Annual Appendix Cancer Walk/Run! When: Father's Day weekend, June 19th - 20th Where: Anywhere! What: A virtual walk or run means that you can go whatever distance, whenever you’d like and you can do so in your own neighborhood!  Last year you helped us raise $94,054.09! This year is our 15th anniversary of the walk/run, held annually on Father's Day weekend! We'd love to be able to safely host it in person this year at Ridley Creek State Park in Philadelphia with a virtual option like last year! Every year it is held over Father's Day weekend and if it is in person, it will be at Ridley Creek State Park in Philadelphia. We hope to keep everyone posted on details if we can host the event safely in person this year. Regardless, the walk/run will be virtual for anyone to participate! MORE INFO TO COME SOON. Will you help us reach our goal of $100k this year?!

Rare Disease Day: Sunday, February 28th More info regarding ACPMP’s awareness campaign to come soon! Stay tuned! Add event to calendar

Patient & Caregiver News

Patient Advisory Council First Meeting At the end of 2020, we announced the launch of our Patient Advisory Council (PAC). The ACPMP Patient Advisory Council consists of 27 volunteers (patients, caregivers and advocates) across the US who will work alongside ACPMP. PAC members provide perspectives and feedback, disseminate information to the appendix cancer community, organize local patient group meetings consisting of virtual or in‐person gatherings and more. We had our first meeting in January 2021 where we had introductions and discussed our goals for the year. We hope to begin implementing our local patient/caregiver meet-ups virtually very soon and will send an email out when they begin! Learn more COVID-19 Vaccination Guidelines Check out our new post: COVID-19 vaccine considerations for appendix cancer and pseudomyxoma peritonei patients. Please consult your physician to discuss! Thank you to Dr. Laura Lambert and the Huntsman Cancer Institute for providing much of the information listed. COVID-19 Vaccine Considerations

Shop Our Store! T-Shirts, Wristbands, Hats & More! You can help raise awareness by shopping our online store and purchasing any of our various 'swag' items! They make great gifts too! Is your friend celebrating being 5 years NED? Get them a survivor t-shirt! Or purchase an amber ribbon magnet to stick on your car to show that you're an appendix cancer advocate! Get Shopping!

Patient Stories Page You can help and inspire others by sharing your story; offer hope for those newly diagnosed as they navigate our website for information. We also share all patient stories to our social media channels as well. Your story is impactful and deserves to be told. If you'd like to share your story, please email us at [email protected]. We'd love to hear about your journey, lessons learned and words of encouragement. Patient Stories Page

Helpful Links Page Check out our newly updated resource sheets for 2021 at the link below! Pass them around to family and friends or even your specialist. ACPMP's New Patient Guide, Fact Sheet, Meet the ACPMP Research Foundation Sheet and more... You can also find on our Helpful Links page other helpful resource such as links to online support forums, health insurance information, genomic tumor testing and more! Check it out! ACPMP's Helpful Links

The ACPMP Research Foundation is a 501(c)3 charitable organization created in 2008 by a community of individuals affected by Appendix Cancer and Pseudomyxoma Peritonei (PMP). ACPMP is dedicated to (1) funding research to find a cure for Appendix Cancer, PMP and related Peritoneal Surface Malignancies (PSM), and (2) funding educational programs to educate physicians and patients about these diseases.