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Dear HFM Community Member,


If you are a patient covered by Carefirst Insurance and have recently received communication from your bleeding disorder medication manufacturer’s copay assistance program instructing you to contact PrudentRx in order to qualify for copay assistance, we would greatly appreciate your feedback.


Some patients have informed us that upon reaching out to PrudentRx, they have been unexpectedly redirected to a different specialty pharmacy provider without their explicit consent. This development is concerning.


Effective data collection enables us to advocate more effectively on behalf of the entire community. Your participation is invaluable.


Submit your data here - you may remain anonymous.


Thank you,

Hemophilia Foundation of Maryland


Mental Health Awareness Month was established in 1949 to increase awareness of the importance of mental health and wellness in Americans’ lives and to celebrate recovery from mental illness. For more than 20 years, the Substance Abuse and Mental Health Services Administration (SAMHSA) has recognized Mental Health Awareness Month (MHAM) every May to increase awareness about the vital role mental health plays in our overall health and well-being and provide resources and information to support individuals and communities who may need mental health support.


This week we focus on mental health in children and teens. What’s your favorite greeting for your child when they get home or when you are back from work? ✔️ I love you! ✔️ Did you have a fun day while learning? Or ✔️ I’m so happy to see you! Consistent and positive interactions can impact a child’s mental health. Support children of all ages and stages. samhsa.gov/families/parent-caregiver-resources #MHAM2024

RSVP for Bowling HERE
RSVP HERE

Big News for vWD Folks!



🔵 Patients with severe VWD are recommended to utilize long-term prophylaxis with VWF concentrate


🔵FDA provides wilate® with up to seven years of market exclusivity for approved prophylaxis indication


Read more about the announcement by reading the press release.





Interested in a Comprehensive List of all FDA-Approved Therapies to Treat Bleeding Disorders?


The National Bleeding Disorders Foundation (formerly National Hemophilia Foundation) has done a fantastic job of compiling this information. Please visit the below link to learn more: https://www.bleeding.org/healthcare-professionals/guidelines-on-care/products-licensed-in-the-us




NBDF Announces New Treatment Recommendations for Bleeding Disorders


New documents issued by NBDF’s Medical and Scientific Advisory Council (MASAC) cover a wide range of topics relevant to bleeding disorder patients in the U.S. and abroad. They encompass recommendations for treatment with licensed therapies, chronic pain management and physical therapy, gene therapy terminology, and bleeding disorders diagnosis in women and girls. Also included are two new resolutions challenging international recommendations that could contribute to negative health and quality of life implications for patients. 


Read More

An Interesting Read About PBMs...


If Pharmacy Benefit Managers Raise Drug Prices, Then Why Are They Needed?


By: Arthur H. Gale, MD, is a Missouri Medicine Contributing Editor. He is a retired Internal Medicine physician in St. Louis.


The price of prescription drugs to consumers are soaring to unaffordable levels. In seeking root causes, it is enlightening to examine the key role played by pharmacy benefit managers (PBMS). They are a major part of the problem.


How Did Pharmacy Benefit Managers Come About?


Almost by accident, health care in the United Sates is largely employer-based. Employer-based health insurance came about during World War II. In 1942, President Franklin Roosevelt, trying to control inflation, froze wages. War time businesses were not allowed to increase workers’ pay. In order to compete for workforces, employers began offering generous health care benefits.


In 1943, the Internal Revenue Service decreed employer-based health insurance would be exempt from taxation. This made it cheaper to get health insurance through a job than by any other means. In 1940, about 9% of Americans had health insurance. By 2017, employer-based health insurance was the most common form of health coverage. About 167 million workers and dependents under the age of 65 had employer-based health insurance.


Prescription benefits are usually included with health care insurance. Over time these drug benefits have greatly expanded. For large corporations, these drug benefits have come to be managed by companies known as Pharmacy Benefit Managers (PBMs).


Read More



The Milton Doug Hiteshew Memorial Scholarship Application is now OPEN!


The application deadline is June 1, 2024.


Decisions will be finalized, and awards disbursed on June 15, 2024.


HFM will be granting a total of $12,000 in scholarship funds this year. With an expected highly competitive applicant pool, we encourage thorough review of the application and criteria. Best of luck to all applicants!


Apply Here!

Ways you can help the
Hemophilia Foundation of Maryland

  • Donate directly through our website.
  • Contribute your time by joining one of our committees. For more information, email HFM .

No Bleeding Disorder Patient Left Behind:


Are you not receiving your factor on time? (Remember, prior authorization is no excuse!) Are insurance issues causing delays? Are you facing unexpectedly high bills for your factor? Don't skip treatment because you think you can't afford it. Are you struggling with the SSI process? Do you need access to mental health resources? Are you searching for a specialty pharmacy? (Remember, one size does not fit all - we have a list!) Do you want to learn more about the treatment options available to you? We're here to help!


Contact the HFM office immediately at info@hfmonline.org. We've got your back.

Hemophilia Foundation of Maryland, Inc. | Tel: 410-661.2307 | 13 Class Court, Parkville, Maryland 21234 | www.hfmonline.org