Mental Health Awareness Month was established in 1949 to increase awareness of the importance of mental health and wellness in Americans’ lives and to celebrate recovery from mental illness. For more than 20 years, the Substance Abuse and Mental Health Services Administration (SAMHSA) has recognized Mental Health Awareness Month (MHAM) every May to increase awareness about the vital role mental health plays in our overall health and well-being and provide resources and information to support individuals and communities who may need mental health support.

This week, we focus on the aging population. We encourage you to reach out to an older friend or loved one and remind them that you see them 👀, hear them 👂, and support them 💕. #MentalHealthAwareness is part of healthy aging. Start the conversation. samhsa.gov/resources-serving-older-adults #MHAM2024 #MentalHealthAwareness

HCB-101 shows promise for diseases due to nonsense mutations

Approach may benefit patients with severe hemophilia A, other genetic diseases

HCB-101, hC Bioscience’s lead candidate to overwrite certain mutations that lead to hemophilia A, can reach the liver cells of mice, where it should then be able to drive the production of a working version of the blood-clotting protein that is faulty or missing in the disease.

Read More

US FDA approves Pfizer's gene therapy for rare bleeding disorder

April 26 (Reuters) - The U.S. Food and Drug Administration approved Pfizer's gene therapy for hemophilia B on Friday, the second such therapy for the rare bleeding disorder that typically requires regular infusions of a blood-clotting protein.

People with hemophilia have a fault in a gene that regulates production of proteins called clotting factors, which can cause spontaneous as well as severe bleeding following injuries or surgery.

Read More

NBDF Announces New Treatment Recommendations for Bleeding Disorders

New documents issued by NBDF’s Medical and Scientific Advisory Council (MASAC) cover a wide range of topics relevant to bleeding disorder patients in the U.S. and abroad. They encompass recommendations for treatment with licensed therapies, chronic pain management and physical therapy, gene therapy terminology, and bleeding disorders diagnosis in women and girls. Also included are two new resolutions challenging international recommendations that could contribute to negative health and quality of life implications for patients. 

Read More

No Bleeding Disorder Patient Left Behind:

Are you not receiving your factor on time? (Remember, prior authorization is no excuse!) Are insurance issues causing delays? Are you facing unexpectedly high bills for your factor? Don't skip treatment because you think you can't afford it. Are you struggling with the SSI process? Do you need access to mental health resources? Are you searching for a specialty pharmacy? (Remember, one size does not fit all - we have a list!) Do you want to learn more about the treatment options available to you? We're here to help!

Contact the HFM office immediately at info@hfmonline.org. We've got your back.