June 2025

Dr. Alexa Craig has been appointed as Chair of the Medical Advisory Board, and Dr. Brian Kalish will serve as Vice Chair for two year terms effective June 1, 2025.



Both leaders bring a deep commitment to advancing care and outcomes for infants, children and families affected by hypoxic ischemic encephalopathy (HIE), as well as decades of combined experience in clinical care and research.

Hustle for Hope 2025 was another record-setting year of community, awareness, connections, and raising critical funds to accelerate Hope for HIE's mission, funding support programs and services for our global community of over 10,000 families worldwide.

You are ensuring no family faces HIE alone!

We had over 1,000 registrants around the world, hosted 13 local events, and raised just over $100,000! Learn more about the standout teams, hosts and sponsors:

Were you referred to as Mom or Dad in the NICU?

As a part of the Family-Centered Care Neonatal Task Force, Hope for HIE contributes input to improve the experiences from our community.

Recently published in Neonatology Today, this peer-reviewed article dives into equity in care and involvement of parents in their child's care while in the NICU shifting the paradigm to parents as partners, not visitors.

One of the most common questions from parents as they navigate raising a child with HIE, across the wide spectrum of outcomes, is how to talk to them about their NICU or PICU stay, rough start to life, and their child's medical history.

Annie Gunning, child life specialist, will be discussing developmentally appropriate ways to tackle this topic in a LIVE Q&A on Tuesday, June 18 at 12 pm ET across Hope for HIE's social media channels.

Many families are sending their HIE children to day or overnight camps this summer. Some may not be ready yet, but wonder how all of this works for kids with differences and disabilites.

In May, we welcomed Angela Bryan, child life specialist and trauma and safety coordinator to share her knowledge to empower parents in evaluating and preparing for a great camp experience!