February Update: Building Community, Connection, and Hope
February is already shaping up to be a meaningful and busy month for our community, and I’m grateful to share a few exciting updates with you. On February 15th, registration opens for our annual Hustle for Hope fundraiser, one of the many activities taking place throughout April for HIE Awareness Month. This year, we have 18 in-person events confirmed, as well as the option to participate virtually. You can walk, run, or roll, indoors or outdoors, all at your own pace and in a way that works for you. We hope you’ll join us and help spread awareness this spring!
We are also thrilled to share that registration is officially open for the first-ever Hope for HIE Family & Community Conference, taking place April 24–26, 2026, at the Hyatt Regency Boston in Boston, MA, with options to attend in person or online. Our team and community volunteers are hard at work building a robust, meaningful, and exciting program that blends support, science, and celebration of community for HIE families—across all impacts and outcomes, ages, and stages—as well as researchers, clinicians, and advocates dedicated to advancing the unmet needs of the global HIE community.
Next week I’ll be traveling to Naples, Italy, to speak at the International Newborn Brain Conference, representing Hope for HIE on the global stage. It’s an honor to share the voices and experiences of our community with researchers and clinicians from around the world, and to continue strengthening the bridge between science, care, and lived experience.
Thank you, as always, for being part of this community and for the many ways you show up for one another. Together, we are building connection, advancing understanding, and creating hope, today and for the future.
With gratitude,
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