Hope Celebrates 10 Years in 2019!
It's hard to believe Hope is celebrating 10 years in 2019. Stay tuned as we celebrate achievements over the last decade and share our vision for where we go from here. For 2019, we will focus on the three C's: Co-morbidities, Community and Caregivers. Read more here. 
Advocacy in Action: 
 A European Collaboration Helps HH Patient
#EUProtects Campaign - EpiCARE European Reference Network for Rare and Complex Epilepsies.
#EUProtects Campaign - EpiCARE European Reference Network for Rare and Complex Epilepsies.
HH Board member Emma Nott was invited to represent the voice of HH and other rare epilepsy patients and caregivers on EpiCARE - a network of centers with expertise in treating rare diseases. A video that demonstrates this unique collaboration in action features a 4 year old Finnish boy who has HH. Click above to watch an incredibly moving story of one family's journey to treatment including two Hope for HH MAB members Drs. Helen Cross and Alexis Arzimanoglou.
Research News:
 Laser Ablation Outcomes are Positive for HH Patients
Neurology Today reported that "two-thirds of children who underwent laser ablation surgery for hypothalamic hamartoma (HH) emerged from one or more surgeries seizure-free, according to a presentation at the 2018 American Epilepsy Society annual meeting."  Click here for the full article. 
Giving Hope: Meet Little Sofia
Thanks to the Paulo Family for sharing little Sofia's HH journey here. 
Hope for Hypothalamic Hamartomas 

Provides information and support to HH patients, caregivers, and healthcare providers and  promotes research toward early detection, improved treatments, living with HH, and cure.

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