HH Board member Emma Nott was invited to represent the voice of HH and other rare epilepsy patients and caregivers on EpiCARE - a network of centers with expertise in treating rare diseases. A video that demonstrates this unique collaboration in action features a 4 year old Finnish boy who has HH. Click above to watch an incredibly moving story of one family's journey to treatment including two Hope for HH MAB members Drs. Helen Cross and Alexis Arzimanoglou.
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