June/2013
QUICK LINKS
Commitment to Community!
Wards and Grants at NSTAR Walk 2012
Congratulations to the Ward family again this year for their wonderful fundraising efforts in support of the Beggs Lab at Children's Hospital Boston, where Dr. Beggs and his team study MTM and other orphan diseases! They were joined in the walk by Scott, Betsy, and Kyle Grant in person and by the Hollingsworth and Scoggins families as virtual walkers! And several other families in our community supported them with donations! Go Team!

For our friends in the UK, be on the lookout for the the Devon Hope Walk on July 15, which will be raising funds for the Myotubular Trust. Read more about it here.

*If you want to let us know about your special event that supports the MTM-CNM Community, please let us know! We would love to spread the word! 
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Greetings from the MTM/CNM Family Conference Planning Team!
Greetings!


Billy Graham once said, "A good father is one of the most unsung, unpraised, unnoticed, and yet one of the most valuable assets in our society," however in our community we are acutely aware on a daily basis just how valuable you wonderful dads are and of how much you all mean to your children, to your wives, and to the lives of those whom you mentor and inspire. So this Father's Day, we want to send out our warmest thanks and to express our deepest appreciation to all the amazing fathers in this community! Thank you dads!!!

Family Stories!  
John and Chrissie Sanders are gearing up to remodel the www.mtmfn.com website. This website is designed to be a glimpse into the life of an MTM-CNM Family. There are some heartbreaking stories, and there are many inspirational stories. We are encouraging everyone who has a story to tell (or to update) to please reach out to John or Chrissie via email [email protected] and they will help you add your story. If you want to learn a bit more about the life of someone with MTM/CNM please visit the site.

 

MTM-CNM Family Conference 2013!
Family Conference 2011
The little cogs and wheels of the conference planning machine have been turning since the conference of 2009 (pictured on the right). So keep an eye out for exciting, upcoming announcements!

Many new families have joined our community in the past year. Welcome to all of you! Our conference mission is to inform and to unite our community. We seek to support relationships within our community of families, caregivers, and medical and scientific researchers. Please join our mailing list so you can receive updates on the conference planning and tips on how you can participate in building this great family event! If you have questions feel free to contact us and be sure to check out our conference website and join the official 2013 MTM-CNM Family Conference page on Facebook!

Hope to see many more of you in 2013!!!

 

Have a safe and happy Father's Day! 

Shout out to all you amazing mother's too!!! 
 
Sincerely,

The MTM-CNM Conference Planning Team!