Looking ahead to 2017, we remain hopeful that treatments will be more widely available and cure will be within reach for all persons touched by HH.  In the meantime, we have so much we are grateful for.

From L to R: Ilene Miller, Lisa Soeby, Emma Nott, Erica Webster, Kathy Jensen, Wendi Tipps. 





While none of us "chose" this community - many of us feel deeply enriched by the friendships and blessed by the connections we have made. 

We wish each of you warmth, happiness, and good health this holiday season and always. 
~~ Hope for HH Board of Directors

supporting families & research
Please make Hope for HH your charity of choice. Give 
gene rously and ask your friends and relatives to as well. Donate Today!

Still Holiday shopping?  Register on amazon smile  or goodshop , select Hope for HH and we will receive a % of all purchases. 

disseminating information
The HH BLOG is a great resource to stay up to date with activities of the foundation, epilepsy news, patient stories and so much more!

Read about the 70th American Epilepsy Society Annual Meeting here. Including HH slides by Drs. Curry & Regis.

Meet new HH patient Jacob here.

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gathering experts to roadmap HH
from left: Dr.Kerrigan, Kathy Jensen, Dr.Cross, Lisa Soeby, Dr.Curry, Emma Nott, Erica Webster, Ilene Miller
Hope for HH Medical Advisory Board met during AES to discuss research and other initiatives in 2017. Priorities will include: 
  • increased HH research funding, 
  • international collaboration on a comparative effectiveness study, and 
  • more information dissemination.

PS. If you are an adult living with HH, see if you qualify for a new surgery using focused ultrasound HERE

 

 

Hope for Hypothalamic Hamartomas 

Provides information and support to HH patients, caregivers, and healthcare providers and  promotes research toward early detection, improved treatments, living with HH, and cure.

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