Happy Holidays from the SADS Foundation!
One of the real joys of this holiday season is the opportunity to say thank you and to wish you the very best for the new year. We extend our deepest gratitude to each of families, health care professionals, partners, supporters, and friends for helping us the SADS Foundation the pre-eminent organization in the SADS community. Because of you, we are making a huge impact!

However, we already are looking towards 2016's goals and objectives. This upcoming year will bring expansion of existing services, new solutions to current needs, our 9th Annual International SADS Foundation Conference, and a 25th anniversary celebration!

Expanding services will include the SADS Foundation Speakers Bureau, SADS Safe School campaign, Heart Safe School Accreditation, and volunteer efforts directed at family support. Each of these areas is critical to our mission as we increase knowledge of SADS conditions and appropriate care for our families whether they are at home, school, work, or play.

We look forward to working with you to spread awareness, support families, educate health care professionals, and advocate for the best care and research to save young lives with SADS conditions.

Peace, love, and joy from all of us at the SADS Foundation!

Alice, Lynn, Jan, Shianne, and Brandon
SADS Foundation 2016 International Conference
September 30 - October 2, 2016
San Diego, CA
Location
San Diego, California
Marriott Mission Valley

Program Directors
Michael Ackerman, MD/PhD, Susan Etheridge, MD, James Perry, MD

Program highlights will include a  Fireside Chat with Dr. Michael Ackerman, cutting edge research, a comprehensive update on medical devices, breakout sessions and networking, our Heart Safe School Accreditation Program, the Healing Wall Ceremony, and a special event: Take Steps to Stop SADS.

For more information, please visit www.StopSADS.org/Conference2016.
Enrolling Study: Research for Competitive Athletes

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A Northwestern University study is looking for participants with a diagnosis of LQTS received at least 6 months ago who:
  • Are over 18 years old
  • Are prior competitive athletes
  • Have a sports or exercise restriction made by a physician because of LQTS
This short-term study involves only one 30 minute interview over the phone. Please call 1-800-STOP-SAD, or email  lynn@sads.org for more information.
Standout SADS Foundation Volunteers!

The SADS Foundation extends its deepest appreciation to Rachel Flores for all of her efforts on behalf of the SADS Foundation and awareness of SADS conditions!

This year, she was part of a San Diego fund-raising committee that hosted Find the Caymus, bringing in support for all of our programs and services. It was a great evening with other committee members Scott Dailard, Jennifer Paul and guests.

For more than a year, Rachel has been coordinating Heart Safe School Accreditation (HSSA) at her children's school Old Town Academy. Just his past November, they held their CPR and AED training, receiving coverage from ABC 10 News. Final accreditation will be received in the near future.

On top of all of this, Rachel was a committee member for the Emergency Cardiovascular Care Update conference this month in San Diego and hosted a booth for the SADS Foundation and HSSA on the opening day. She distributed information about SADS and emergency preparedness, spreading even more awareness! 

SADS Foundation member Angela Parrott did a fantastic job volunteering to represent SADS at Missouri's 23rd Annual Coordinated School Health Conference December 3-5, 2015.  She got a lot of positive feedback from the attendees, approximately 175 healthcare professionals.

Angela has done many events in the past to raise awareness about SADS conditions, but 
said it was a "whole different world" sharing with healthcare professionals. "They completely understand the importance and it makes it easy to share info with them."

Thank you so much, Rachel and Angela!

Please let the SADS Foundation know if you have any ideas for fund-raising and awareness events. We are here to help in any way we can. Contact us at 801-531-0937 or jan@sads.org .