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Many states have begun reopening business, beaches, restaurants and retail stores. While I am as impatient as anyone to see my family and friends, it is important that we all still observe the basic precautions outlined by the CDC at the beginning of the pandemic: do not go out if you have symptoms of COVID-19. Wear a face covering in public. Avoid large gatherings. Follow the recommendations regarding the number of people allowed to gather provided by local authorities. Practice physical distancing. Even as areas are reopening, many have not seen the reliable sustained decreases in positive cases, hospitalizations, and deaths that would indicate it is safe to abandon these behaviors. As president and CEO of NHF, the safety of the bleeding disorders community is my top concern. But as a doctor and an American, the health of the entire community of the country is important to me as well. I hope you will do your utmost to protect your own family, friends and community as well.
If you have specific questions about COVID-19, please send them to NHF and I will do my best to address them in the next issue or webinar.
CDC Issues Alert on New COVID-linked Disorder
The CDC issued an alert on a multisystem inflammatory syndrome in children (MIS-C) which included a case definition so doctors can recognize and report it. MIS-C has been identified in 102 children in New York City and is responsible for at least three deaths. Symptoms can include persistent fever, inflammation, poor function in one or more organs, rash, and eye irritation.

Encouraging Safety Results on Trial Vaccine
Moderna, a biotech company from Massachusetts which has been working on a COVID-19 vaccine, has reported promising results from its human safety trials. A larger clinical trial is being planned for July. At least two other vaccine candidates have shown promising results in animal studies. 

Statement from Novo Nordisk on Rebinyn ® and COVID-19
Novo Nordisk has released a statement for healthcare providers regarding hemophilia B patients using Rebinyn and undergoing treatment for COVID-19, as it may affect clotting assays used to monitor potential COVID-19-associated coagulopathy.

Telemedicine and Hemophilia in the Age of COVID-19
A commentary, published in the World Federation of Hemophilia’s journal Haemophilia  by NHF President and CEO Leonard A. Valentino, MD, NHF Medical and Scientific Advisory Council chair Steve Pipe, MD, and Mark Skinner, JD looks at how telemedicine has impacted the process of maintaining access to hemophilia treatment products and to specialized integrated care in HTCs.

Health & Exercise
Parks and beaches are reopening in some states. The CDC has recommendations to follow if you choose to visit these recreational sites.

Mental Health
The American Academy of Child and Adolescent Psychiatry has a simple fact sheet that will help you navigate discussing the pandemic with your child.

We want to hear from you!
Is there a topic you would like NHF to cover in a townhall webinar? Let us know!

Did you miss last week’s townhall webinar on physical activity during the pandemic?
You can watch last week’s webinar, Playing It Safe, here .

To help support our mission and continue to provide you with the information you need through the COVID-19 pandemic, donate here . Thank you.