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I know many of you are overwhelmed with often-conflicting information on coronavirus and COVID-19. As a doctor and researcher, the health of the bleeding disorder community is my highest priority. Every Thursday, I will be sending you vetted, trusted information about the pandemic and information you can use to keep you and your family safe. This information will also be posted on the NHF website at www.hemophilia.org .
 
If you have specific questions about COVID-19, please send them to NHF and I will do my best to address them in the next issue.
What People With Bleeding Disorders
Should Know
Join us on Friday, April 10th at 6:00pm ET for NHF's townhall webinar: Telehealth: Coping During COVID-19. Featuring Roshni Kulkarni, MD, Michigan State University; Robert Barto, Michigan State University, Leonard A. Valentino, MD, National Hemophilia Foundation, and Michelle Witkop, DNP, National Hemophilia Foundation, this webinar will discuss what is involved in a telemedicine visit, provide a look at what is needed for a successful telemedicine visit, discuss the benefits to using this technology where available to reduce the risks of infection for yourself and healthcare workers, and answer any technical or medical-related questions. We'll also have time to answer your questions.
NHF's COVID-19 Information
We have aggregated all of our COVID-19 news stories, resources, webinars, and updates in one place so you can refer to them easily.

WFH COVID-19 Risks Statement
The World Federation of Hemophilia has released a detailed statement regarding specific risks to the bleeding disorders community.

PAN Foundation COVID-19 Fund
The PAN launched a new   COVID-19 Treatment and Prevention Fund   to provide $300 of direct financial relief to qualifying Medicare beneficiaries with cancer, chronic or rare diseases who have also been diagnosed with COVID-19 or asked to self-quarantine by their healthcare provider or a government agency.

CDC Update on Face Coverings
The Centers for Disease Control and Prevention (CDC) is recommending that all people wear a mask or other cloth face covering when in spaces where it’s difficult to practice physical distancing (like grocery stores or pharmacies.)

National COVID-19 Convalescent Plasma Project
A group of physicians and scientists from 34 institutions in 17 states have come together to investigate the use of convalescent plasma (plasma from people who are known to have contracted the COVID-19 virus and recovered) during the pandemic. This site has resources for healthcare providers, updates on current studies, and information for people who would like to donate plasma.

Specialty Pharmacy Providers Update
Many of you have questions on how the COVID-19 pandemic could affect specialty pharmacy providers. NHF has been in contact with these entities and is collecting statements regarding their operations.  This page will be updated as we get more information. To see our statements from pharmaceutical companies regarding the manufacture of supply, click here .
Health & Exercise
Mental Health
Mental health resources to help you through this difficult time:
 


American Medical Association – Managing Mental Health During COVID-19
We want to hear from you!
Is there a topic you would like NHF to cover in a townhall webinar? Let us know!

I f you missed last week's webinar on financial assistance, here is a list of available resources that were covered in the webinar.

To help support our mission and continue to provide you with the information you need through the COVID-19 pandemic, donate here . Thank you.
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