I know many of you are overwhelmed with often-conflicting information on coronavirus and COVID-19. As a doctor and researcher, the health of the bleeding disorder community is my highest priority. Every Thursday, I will be sending you vetted, trusted information about the pandemic and information you can use to keep you and your family safe. This information will also be posted on the NHF website at www.hemophilia.org.
If you have specific questions about COVID-19, please send them to NHF and I will do my best to address them in the next issue.
What People With Bleeding Disorders
Join us on Friday, April 10th at 6:00pm ET for NHF's townhall webinar: Telehealth: Coping During COVID-19. Featuring Roshni Kulkarni, MD, Michigan State University; Robert Barto, Michigan State University, Leonard A. Valentino, MD, National Hemophilia Foundation, and Michelle Witkop, DNP, National Hemophilia Foundation, this webinar will discuss what is involved in a telemedicine visit, provide a look at what is needed for a successful telemedicine visit, discuss the benefits to using this technology where available to reduce the risks of infection for yourself and healthcare workers, and answer any technical or medical-related questions. We'll also have time to answer your questions.
The PAN launched a newCOVID-19 Treatment and Prevention Fundto provide $300 of direct financial relief to qualifying Medicare beneficiaries with cancer, chronic or rare diseases who have also been diagnosed with COVID-19 or asked to self-quarantine by their healthcare provider or a government agency.
The Centers for Disease Control and Prevention (CDC) is recommending that all people wear a mask or other cloth face covering when in spaces where it’s difficult to practice physical distancing (like grocery stores or pharmacies.)
A group of physicians and scientists from 34 institutions in 17 states have come together to investigate the use of convalescent plasma (plasma from people who are known to have contracted the COVID-19 virus and recovered) during the pandemic. This site has resources for healthcare providers, updates on current studies, and information for people who would like to donate plasma.