Would you like 12 months access to the very latest information on your heart rhythm condition?
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If the answer is yes...
We have a fantastic opportunity for you to learn more!
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Patients Day will be hosted online for its third year running, so wherever you are in the world, come and join us on 14 October 2022!
Patient Day 2022 offers:
- Online availability on-demand for 12 months from 14 October
- Access to educational webinars containing the very latest information on treatments and how to manage your condition
- Live support from our patient services team
- An opportunity for your questions to be answered by our medical experts
- Sessions on Syncope, RAS and PoTS, dedicated webinars on living with AF, life with a pacemaker and much more!
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Taking care in the heat.. are you travelling this summer?
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As the high temperatures are set to continue through the summer months, some people can be affected by extreme changes in body temperature, such as going from hot to cold. Whether you suffer with syncope, AF or any other heart rhythm disorder, please be particularly mindful to keep hydrated if you are travelling. For more travel advice, check out our resources.
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Don't forget! You can monitor your heart rhythm via AliveCor Kardia Mobile, available to purchase via our online shop.
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Defibrillators to become mandatory in England state schools in 2023
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This is an important step forward in making defibrillators accessible in all public places.
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Unexplained blackouts/ loss of consciousness? We can help you seek a diagnosis
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During this time of year, and the excessive heat we've all been experiencing, we have seen an increase in the numbers of people losing consciousness and fainting, some of which have gained a considerable amount of media attention.
If you are experiencing unexplained loss of consciousness, our checklist can help you understand the cause of your blackouts and possibly help to receive a diagnosis from your GP or medical practitioner.
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Are your children starting or changing school this September?
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In just over a month, children will be starting school for the first time or moving up to secondary school.
Take a look at our resources for parents with school age children who have reflex anoxic seizures (RAS) and reflex syncope (vasovagal syncope).
These include Care Plans, information booklets and a STARS Education booklet, written specifically to help schools understand how best to manage these conditions.
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Harry sprints & swims into action for Arrhythmia Alliance!
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We would like to say a huge thank you to Harry for competing in the Box End Centurion Triathlon in May. His outstanding achievement has raised £7999.60 via online donations on behalf of Arrhythmia Alliance.
Harry wanted to fundraise in memory of his beloved Aunt, who suddenly and tragically passed away earlier this year. We are so grateful to him for choosing to support us, raising awareness in helping towards a swift diagnosis in the treatment of cardiac arrhythmias and the vital importance of the distribution of defibrillators in the community. If you would like to show your support, you may wish to make a donation.
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Long-time STARS supporters meet the team!
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The STARS Patient Services Team met mother and son Katrina and Bradley when they came along to one of our events in Westminster, they have both been huge supporters of STARS for many years. Patient Services supported Katrina and Bradley against his fight of misdiagnosis.
Bradley is now a paralympic ice-skater! Over the years, to show his appreciation of the support he and his mother received, Bradley has baked chocolate cookies, raising hundreds of pounds for STARS. They were delicious!
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Bradley - your donations have helped the STARS Patient Services team to continue to educate and support patients & caregivers, so thank you and congratulations on becoming a paralympic Ice-Skater!
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Atrial Fibrillation Decision Aids now published by the NHS
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NHS England has developed a suite of eight decision support tools to support people and clinicians to hold a shared decision making conversation. One of these is: Making a decision about further treatment for Atrial fibrillation (AF).
Each decision support tool outlines the condition, possible treatment options and associated risks.
These were published on NHS England’s website on 20 July 2022.
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Updated information now available on Pulsed Field Ablation
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A catheterisation laboratory team at Royal Papworth Hospital has performed the UK’s first ablation procedure using innovative technology designed to improve safety and efficiency.
Our latest resource: ‘Treatment Options for AF’ patient booklet has been updated to include the new pulsed field ablation procedure - as performed by Dr Claire Martin at The Royal Papworth Hospital, Cambridgeshire.
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With Oxford University Hospitals NHS Foundation Trust (OUHFT) and Arrhythmia Alliance, Cardiolyse launches I-Care Pilot project
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Aiming to develop a more efficient and cost-effective way of tracking post discharged patients' progress after catheter ablation for AF through the innovative technology of Cardiolyse.
Cardiolyse is a cloud-based remote monitoring platform that uses AI algorithms to predict potential heart health problems up to two months in advance.
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BHF Data Science Centre Survey on thoughts about the most important areas of cardiovascular research
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British Heart Foundation Data Science Centre have compiled a short survey to gather public thoughts on the most important areas of cardiovascular research. The results of this will help shape their work and is specifically aimed at the public and patients.
Please take the survey for an opportunity to raise their profile and encourage research.
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COVID vaccines are safe for patients with cardiovascular disease
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COVID-19 vaccination is not associated with an increased risk of heart attack or stroke in patients with established cardiovascular disease, according to a large study published today in Cardiovascular Research, a journal of the European Society of Cardiology (ESC).
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Catheter-based cardioneural ablation safe, effective for recurrent fainting
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A novel catheter-based cardioneural ablation procedure reduced symptoms of vasovagal syncope by as much as 80% for patients with symptoms despite medical intervention and behavioural modification who did not desire permanent pacing.
In the UK this is referred to as Syncope Ablation. It is very much at the trial stage, but results have been phenomenal.
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