Hemophilia B Monthly

December 2025

Dear Friends,


As the holiday season arrives, we want to pause and reach out to you, with gratitude, warmth, and care. For many, this is a time of celebration, laughter, and cherished traditions. For others, the season may feel heavy, uncertain, or bittersweet. Wherever you are, please know that you are not alone and that you are held in our thoughts.


This time of year also reminds us how important it is to care for ourselves, to rest when needed, to give ourselves grace, and to prioritize well-being alongside togetherness. Whether that means quiet moments of reflection, spending meaningful time with loved ones, honoring comforting traditions, or creating new ones, self-care looks different for everyone and matters deeply.


As we look ahead to 2026, we are deeply grateful for the role you play in our CHB family. Because of you, we continue to grow, advocate, and support one another, now celebrating more than 35 years of meeting our community where they are.


Wishing you peace, comfort, moments of joy, and time to recharge this holiday season, and a healthy, hopeful New Year. We look forward to all that we will share together in 2026.



With heartfelt gratitude,

Kim Phelan & The Coalition for Hemophilia B Team


 
 

WAYS TO ATTEND

There are four ways to attend the Symposium:


  • Airfare/Hotel Travel Grant*
  • Driving/Hotel Travel Grant*
  • 2026 Golden Ticket Winner (awarded at 2025 Meetings on the Road)
  • Non-Grant Attendee (covering own costs)


*Priority for travel grants is given to first-time attendees and driving grant applications, to ensure the greatest number of families can participate.


Hurry and Apply for a travel & hotel scholarship by January 5th!


Get ready for a magical experience in Las Vegas, Nevada, as we celebrate over 35 years of dedication to the Hemophilia B community. This milestone is for the incredible individuals like you who make it all possible!



Don’t miss out on this chance to connect, learn, and grow together. Register today and explore scholarship options to make this unforgettable experience accessible to all. Let’s honor our shared journey and look forward to a bright future together!


 
 
 

Merry and Bright: 

How to Stress Less and 

Have a Healthy Holiday Season


By Catherine Canadeo

Coalition for Hemophilia B Health and Wellness Coach


'Tis the season for family, fun, and stress. This year, give yourself the gift of wellness by using strategies to reduce stress, strengthen family connections, and truly enjoy the holidays. As the holidays approach, it's easy to feel overwhelmed, so it's important to embrace these wellness tips for a stress-free season. 


(1) Practice Open Communication: Be Intentional 

Find the time to talk as a family about the holiday stressors and how you want to address them when they come up. Unrealistic expectations can lead to disappointment. Set realistic goals and expectations to help minimize stress. Practice gratitude and contribute to your community. 


(2) Make Time For Time Management: Quiet Your Calendar

Create a holiday schedule that allows for balance between work, family, and relaxation. Introducing time management to a hectic schedule can help reduce the feeling of being overwhelmed. The holiday season rarely goes as planned, so have a flexible mindset' No matter what the celebration looks like, connect it to the bigger reason for the season. Make time for what you love that brings you joy and happiness. 


(3) Establish Boundaries: Unplug From Work 

Set healthy boundaries by limiting the time you spend with extended family, friends, and holiday gatherings. Creating a budget for financial stress is common during the holidays. Focus on the meaning and values of this time of year rather than just the material aspects. This can help shift the emphasis away from consumerism and reduce stress. 


(4) Resolve Conflict: Share Responsibilities

Conflict often arises when you're Hungry, Angry, Lonely, or Tired. Use the HALT acronym to check in with yourself, Addressing these needs helps you manage holiday stress more effectively. Healthy coping strategies include deep breathing, mindfulness.journaling, exercise, music, and connecting with others. 


(5) Maintain Traditions: Prioritize Your Own Peace

Establish and uphold meaningful rituals and traditions to bring a sense of continuity and comfort during the holidays. Perfectionism can lead to unnecessary stress. Normalizing imperfection reminds you that no holiday season is perfect, and it's okay to have some spontaneity and unexpected surprises. Honor those who aren't here by cherishing the fond memories you've made together. 


(6) Respond With Kindness

While you can't control how others act during the holidays, you can choose your own response. Be kind to yourself-practice self-care and self-love. It's okay to take a break or say no to social events. Focus on what truly matters to you this season. Remember the "ME" in MERRY' 

 New Boundless B Episode Alert!

Stronger Together with Dr. Whitley Grant-Goodman

 Listen now on Spotify, the website, or Apple Podcasts!

 
 
 
 
 

Meet Nelly Miranda!

Nelly (left) with her son Mateo

Nelly is an incredible member of our community who gives credit to the women who have gone before her as she serves newly diagnosed families in the hemophilia B space. She is active, caring, and humble. Read her story on page 36 of the newsletter: CLICK HERE

6th Annual Gingerbread Event

Thank you to everyone who participated in our annual Gingerbread House Building event! We loved seeing all the creativity and holiday spirit. 🎄✨


Congratulations to our winners:


🥇 First Place: Jim D. and William H.

🥈 Second Place: Lori B. and Marina M.

🥉 Third Place: Courtney I. and Megan M.


Thanks again to all who joined in and helped make this event so much fun!


Santa made a special stop at the Coalition this year—and he did not disappoint! 🎄🎅


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