Hemophilia B Monthly

January 2026

A Warm Winter Hello, 

January has a way of inviting us to slow down. Like polar bears settling in for winter, many of us instinctively reach for cozy blankets, a favorite spot on the couch, settling in with a good book or movie. Others lean into the season by getting outside, running, skiing, or enjoying the crisp air. Wherever you are, we hope there’s a warm beverage nearby, maybe cocoa with marshmallows, as you ease into the rhythm of the new year.

January is a time of possibility. As the calendar turns, we think about what’s next, while also giving ourselves permission to rest, relax, and refresh. Recharging now helps prepare us for what’s ahead.

We know the year to come will be full, active, and meaningful. To meet it with energy and clarity, self care matters. Small moments of rest now help build the strength we’ll need for a robust and fulfilling year.

As always, we’re glad to be starting another year together.

However you choose to spend these winter days, know that you are part of a community that values balance, connection, and taking care of one another.

Warmly,

Kim

New York State Senator Joseph P. Addabbo Jr. Honors The Coalition for Hemophilia B for 35 Years of Service

Richmond Hill, NY — The The Coalition for Hemophilia B (CHB) is proud to announce that it has been awarded a New York State Senate Proclamation recognizing 35 years of service to individuals and families affected by hemophilia.

New Boundless B Episode Alert!

Grief, Resilience, and Mental Health in the Bleeding Disorders Community

with Dr. Mosi Williams

 Listen now on Spotify, the website, or Apple Podcasts!

Upcoming Events

One year ago today, our dear friend Wayne was given a second chance at life.

With almost no notice, he was told a liver was available in Ohio. There was no time to book a flight, so Wayne and a friend hopped in the car and drove from North Carolina to Ohio, not knowing exactly what lay ahead. What followed was nothing short of extraordinary: a liver transplant and heart surgery at the same time.

The past year has not been easy. There have been ups and downs, challenges and hard days. But through it all, Wayne persevered. He kept his spirits up, stayed hopeful, and kept showing up for life, playing golf, spending precious time with his grandchildren, his wife, and his family, and even adopting not one but two dogs and joining us at some of our events! 

Wayne’s strength, humor, and resilience are an inspiration to everyone who knows him.

Today, we celebrate one year post-transplant, a remarkable journey, and a man we love very much.

Congratulations, Wayne. We are so grateful you are here. 

-Kim