April Newsletter!

Starfish Dash 5K & Health Fair - May 3rd, 2025

The Chromosome 18 Registry & Research Society is proud to present the Annual 5K Starfish Dash Run/Walk & Health Fair on May 3rd, 2025 at UT Health in San Antonio, TX. Not in San Antonio? Learn more on starting your own virtual Dash and print your race bibs here!

2024 Annual Report

In an effort to better serve you, our amazing members, we have published the 2024 Annual Report, which summarizes the highlights of the past year.

Thank you to our members, donors, and community partners for making 2024 one of our most successful years ever for Chromosome 18!

Read the Annual Report HERE

Events

May 3: Starfish Dash 5K & Health Fair - San Antonio, TX

May 3: Crunches for Chromosome 18 - Toronto, Canada

May 15: New Family Resource & Intro Call - Zoom Call at 7pm CT

May 18: Facebook Live at 6pm CT

May 19: Spanish Speaking Family Connection Call - Zoom call at 7pm CT

Every month, Chromosome 18 goes live on Facebook! Watch April's Facebook live with Starfish Dash honoree, Kelsie, Curry here!

Clinical Research Center Newsletter

What is a Abnormality?

This month, Dr. Cody shares an article discussing the term "chromosome abnormality" and why switching to "genomic disorder" might be a better fit...

Read Full Article HERE

Starfish Dinner and Dance Tables

The 2025 conference in Niagara Falls, Canada in July will be here soon and you can reserve a family or corporate table at the Starfish Dinner and Dance! Raise or sponsor at least $1500 USD and you will be able to pick your choice of table (that seats 8-10 people) in the ballroom for the Starfish Dinner & Dance! This sponsorship allows you to invite guests to join you at no additional costs. Get your table HERE!

Golf Tournament - Save the Date!

Chromosome 18 is excited to host the 21st Annual Golf Tournament on October 10th, 2025 at Canyon Springs Golf Club! Join us for a fun-filled day of golfing in support of our chromosome 18 children and families. Play 18 holes at the beautiful Canyon Springs Golf Club in San Antonio, TX. The night before on October 9th, join us for the Starfish Soiree at Oak Hills Country Club. The reception will feature specialty cocktails, hors d’oeuvres, wine pull, and silent and live auction. Included in your registration for the Tournament is admission for you and one guest to attend the Soiree. Registration opens soon!

Celebrating 35 years!

This month, Chromosome 18 celebrated its 35th year anniversary! Thank you everyone for being a part of the Chromosome 18 family.

Watch our anniversary video HERE.