March 2021 Issue
A Message from Betsy Pilon, Executive Director
It's about that time again!

We are actively gearing up for global HIE Awareness Month in April. This year, we've selected the theme of TEAM HOPE. If anything this last year has shown, it is that we have an incredible team that comes together to work on improving the quality of life for children and families with HIE.

Whether that is collaborating to build out educational materials, supporting our newly diagnosed family boxes, participating in our upcoming Hustle for Hope 5K, or working to shift messaging to being inclusive in the NICU space, our greater community shows up in incredible ways as a team.

We are SO GRATEFUL for our Team Hope! We encourage everyone to get involved, and help us raise awareness, education and support in April!

You may have noticed that our website has a considerable facelift! We officially soft launched our new site. THANK YOU to Annie Goeller, on our board, who has championed this much-needed overhaul. We are excited for this new phase in sharing information.

Most sincerely,

Recent Events:

Upcoming Events:
  • NICU nursing and connecting HIE families
  • Hope for HIE Executive Summit
  • HIE Awareness Month parent panels
  • HIE Awareness Month Medical Advisory Board Educational Events
We are excited for the SIXTH annual HIE Awareness Month, and look forward to seeing so many of our greater community participate.

One way you can right off the bat, is grabbing some team swag.

We have our annual, limited edition style for 2021 and you can order below.

We'll be sharing our toolkit in a separate email so you can get more information to help share different initiatives widely. We'll have educational events, parent panel discussions, stories across the continuum, our annual HIE Remembrance Day on April 20th, and lots of different facts and nuggets about HIE and the impact it has across our community.
Cerebral palsy is one of the most common diagnoses that comes from HIE, with roughly 40% of all children with HIE developing some type of CP. HIE is one of the less widely known causes, as it makes up only about 10-15% of all diagnosed cases of CP.

We're sharing information about cerebral palsy and HIE all month long across our social media platforms.

We also have a few different educational Q&As, fact sheets and more that you can use to learn more:

Board of Directors Update - Welcoming Crystal Kostick
We are excited to announce that Crystal Kostick has joined the Hope for HIE Board of Directors. As a long time “super volunteer” at Hope, Crystal has been a member of the retreat planning committee, has served as a moderator of our Colorado subgroup, attended the 2019 Child Neurology Foundation Peer-to-Peer Support Training representing the organization, and has worked to build community across the entire organization.

Her role on the board includes moving forward several key programs and initiatives, including working to develop peer mentor and moderator training, maximizing partnerships, and continuing her leadership in developing Hope for HIE’s retreats.

Crystal’s connection to Hope for HIE stems from the birth of her daughter Maddie, now seven years old. She was recently interviewed in a Q&A that you can view below.
There's still time to sign up to participate in this year's Hustle for Hope 5K - whether you walk, run or roll, or participate by yourself or with a group, there's no wrong way to do it!

We also want to thank our sponsors: Trexo Robotics, Bonfire, and David & Heidi Ford.
Shop and Support Hope!
Check out our latest HOPE shirts and other swag!
Our signature roast CUP OF HOPE supports the foundation, and employs people with disabilities.
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