November 2023

Gratitude is the Attitude!

It has been an incredible year Connected by HOPE, and we are beyond grateful for the support of our community -- families, Partners in Hope, Medical Advisory Board, and the greater community who make the work we do to improve the quality of life for children and families impacted by neonatal & pediatric-acquired HIE, possible.

Check out our Community in Action photo HIElights from recent in-person conferences, meet ups, retreats and more below:

I'm looking forward to wrapping the year up strong with #GivingTuesday, our expanded peer mentor program, continued emphasis on building health literacy, and accelerating research and advocacy.

Betsy

Betsy Pilon

Executive Director

Learn More

SEIZING HOPE:

EPILEPSY AWARENESS MONTH

HIE is the leading cause of several types of seizures and epilepsy. During November's Epilepsy Awareness Month, we are elevating our community experience and research that is making a difference to support families and improve outcomes.

Support Hope

JUST ONE WEEK AWAY FROM GIVING TUESDAY!

Whether it's giving via text or online, giving back to our community through volunteering efforts, or giving your story, your contribution makes a world of difference. Your support brings hope and brighter futures to those facing HIE challenges.

Meet our Mentors

IN THE TRENCHES: PEER SUPPORT PROGRAM EXPANDS

Hope for HIE's social worker, Haley Thomas, LMSW, has expanded our Peer Support Mentor program to help more community members than ever before! No matter your connection or family dynamic, outcome, or location, we have mentors available for families to feel supported.

Visit the Hub

HOPE ON THE HORIZON: CLINICAL TRIALS & RESEARCH

Hope for HIE has four active clinical trial collaborations, offering unprecedented support and hope to patient-families. From Mild HIE cooling to groundbreaking therapeutics, these trials will profoundly impact follow-up care, communication, education, and comprehensive support for our HIE families.